Been dealing with progressive neurological dysfunction, atrophy, weakness, speech and walking problems that continue to get worse over time..
And being in neurological limbo with neurologists who simply diagnosed me with fibro and sent me in my way has been more than frustrating.
So I began working on advocating for my own self and trying to fix my own problems by trying to take supplements that fight neuroinflammation, having read a number of studies showing different supplements being effective for that. But something strange is happening.
Sometimes I either can't tell if these supplements are doing any good, or sometimes I feel like they're actually making me feel worse or accelerating my decline. I don't know if that's just a side effect that I'll eventually move past, or if I'm actually harming myself further by taking these.
I see a lot of people recommending protocols that eliminate Spike protein, but if you look into the cost of taking all of these supplements, it gets quite expensive. Hundreds of dollars and sometimes even north of $1,000 a month, and I don't have a whole lot of income to spare.
So for those of you who are taking these protocols of different vitamins and supplements and so forth, are they actually working? Have they been worth the money that you're spending? Or do you feel worse? Or no different at all? How has it affected your progression? Do you feel like it's worth it?
Right now this is what I'm taking to try to fight this. I have flare ups and some days are worse than others, but even if I recover from a poor day, I never quite get back to where I was before. I'm especially starting to have difficulty with flights of stairs, dropping things all the time, and I now have a positive Babinski reflex whereas I didn't before. Positive on Hoffman's as well. I don't feel like I'm getting better. I don't know if any of this is working.
Nordic Naturals Ultimate Omega Fish Oil 1280mg Nature's Truth Co-Q10 100mg Signature Care Probiotic 12.5 billion cells Spring Valley D3 2,000 IU Qunol Extra Strength Turmeric 1000mg Nature's Truth Cyanocobalamin Fast Dissolve B12 2,500 mcg Spring Valley Flush-Free Niacin B3 Inositol Hexanicotinate 500mg Nature's Truth Ultra Quercetin 585mg Nature's Truth Advanced Berberine HCl 500mg Nature's Truth Lion's Mane Mushroom 2100mg Walgreens Resveratrol 500mg Walgreens Ashwagandha Root 920mg
All of these are meant to have antioxidant, anti-inflammatory, neuroprotective properties but the only one that actually seems to be making me feel better after I take it consistently is the fish oil. Everything else, is kind of hit or miss.
Part of me worries that some of these brands may actually contain some lead because I don't actually know where they're sourced from and you can never quite fully trust supplements to always be pure or exactly what stated on the bottle, and with a limited budget I can't exactly buy the stuff that's $100 a bottle online. But still. I'm doing my best to try to manage this with the resources that I have. If the doctors won't help me then I've got to help me. But do these protocols really work? And is the one I'm taking enough? I'm planning on adding more things to it as time and budget allow, but I want to fight this post-covid or post-vax neurological disorder with everything I've got until we come up with some kind of cure.
I am not completely sure whether it was covid that did this to me, or the vaccine. My first two shots of Pfizer went fine with no side effects. When I got my booster, I switched to moderna because I had heard it was more effective against the new variants. 3 months after my booster I got covid itself, for the first time. And 6 months after my covid infection, my neurological symptoms began. So all of this did start until 9 months after my mother and a booster. 6 months after covid itself. It's hard to say which was the culprit. But nevertheless I think I've got the same problem a lot of You are having, I believe my neurons are being attacked and destroyed which is causing tremendous pain throughout my body and gradual loss of motor function.
Any thoughts on your experience with supplements that might help you fight back against this? Has anything actually worked?
Apologies if this has been asked and answered before. Appreciate any constructive answers you may have.