- published: 06 Jun 2016
- views: 1842
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Erin is one of 800 known cases of Fibrodysplasia Ossificans Progressiva. F.O.P. is one of the rarest, most disabling genetic conditions known to medicine, it causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another.
Crowdfunding:
https://www.youcaring.com/erin-mccloskey-581885
Blog:
http://www.friendswithfop.com
http://www.ifopa.org (USA)
http://www.cfopn.org (CAN)
http://www.fopfriends.org (UK)
Music:
bensound.com/acousticbreeze
http://www.bensound.com/royalty-free-music/track/acoustic-breeze
A show about one of the most devastating medical disorders known to man: Fibrodisplasia Ossificans Progressiva (FOP).
My daughter has this and some of her photos were used in this documentary. Read more about Erin (and her friend Miranda) at www.friendswithfop.com
- published: 03 Mar 2009
- views: 2974635
http://www.facebook.com/1armbandit
Ashley Kurpiel has been featured on Mystery Diagnosis, 20/20 and the BBC. This video is from the Tyra Banks Show originally aired 2/25/10. Keep up with Ashley on Facebook or Twitter. http://www.twitter.com/1armbandit
As a point of reference, Ashley did not know what questions Tyra was going to ask beforehand.
- published: 13 Mar 2010
- views: 588670
A 2003 documentary on the rare genetic disorder called Fibrodysplasia Ossificans Progressiva (FOP).
For more info visit: http://www.weldonfop.org/
- published: 14 Oct 2009
- views: 42637
It was a reunion of old friends, and they all have one of the rarest diseases on earth.
Nancy Sando said, "My jaw is completely fused."
Ashley Kurpiel said, "My leg is fused at the hip."
Their condition causes their muscles, ligaments, and tendons to become bone, turning their bodies rock hard.
"We are turning into human statues. We can't move," said Kurpiel.
Three friends who suffer from a disease known as FOP (Fibrodysplasia Ossificans Progressiva). There are only 700 known cases in the world, and almost half of them are in the U.S.
Kurpiel lives outside Atlanta, Georgia. As a toddler, her arm was amputated after doctors misdiagnosed her with cancer. They missed the tell-tale signature of FOP disease, a crooked big toe. Now, her muscles have started hardening into bone.
"I cannot move this arm away from my body. It's like superglued to my side, my upper arm, because it does not move" said Kurpiel. Her neck and spine are now fused. Five years ago Kurpiel's leg got stuck in a bent position.
Kurpiel said, "Its stuck and that thigh is rock-hard bone."
A four-inch platform shoe enables her to walk. The 30-year-old showed INSIDE EDITION how she uses a drawer handle to take off her pants. A convenient closet door knob helps her get them back on.
Patrick Doerr showed INSIDE EDITION his lack of movement and said, "This is it for movement in the shoulders."
Doerr's jaw is nearly frozen shut. "Just enough to talk," said Patrick.
His mom, Gretchen, a pediatric nurse, was heartbroken when he was diagnosed.
"He was 17 and big and burley, and next thing you know he's in such severe pain," said Gretchen. She watched helplessly as his muscles and joints turned to solid bone.
Patrick said the condition causes, "Very intense swelling, very intense pain."
At 52, Sando is one of the oldest living people with FOP. As she inches her way toward the bed, it becomes obvious that her body is stiff as a board.
"God has given me the ability to find the joy in the little things in life," said Sando.
"It's a tremendous hardship. FOP is a devastating disease," said Dr. Frederick Kaplan.
Dr. Kaplan of the University of Pennsylvania is the leader in the fight against the disease, and personally sees to every case.
"We adore Nancy and Ashley and Patrick. They are all a testimony to human spirit. They're shining example what human beings can do when faced with such incredible adversity," said Dr. Kaplan.
With the reunion set, getting there would prove quite an undertaking.
Sando and her care giver left Michigan's Upper Peninsula, driving three hours in her minivan. Kurpiel gets a little help down the jet way in Atlanta, then walks on board her flight and takes her seat. Patrick boarded his plane in Philadelphia. When he found his seat, the 30-year-old accountant enjoyed a drink with his own ingenious invention, an extra-long straw.
The three friends finally made it to Detroit and settled in at their hotel. They shared techniques for doing all the things we all take for granted. They gathered by the pool, and Kurpiel took a refreshing swim.
Dinner proves the most challenging of all. Since Doerr and Sando's jaws are all but fused shut, they first use their lips to mash the food against their teeth, then push it through gaps.
And everywhere they go they draw inspiration from each other. It helps to know that they are not alone.
- published: 18 Sep 2013
- views: 29833
Join the #SoochCrew
Hi. Joey Sooch here! Follow me everywhere.
Donate here: https://fundly.com/stop-fop-1
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Website: http://JoeySooch.com
Shirts will be available soon for purchase if you want to show your support in other ways!
Business Inquiries: JSuchanek11@gmail.com
- published: 03 Mar 2015
- views: 286764
www.fopsverige.se Hugo 8år träffar tre kronor, inspelat i december 2006 sändes i feb 2007. FOP Fibrodysplasia Ossificans Progressiva är en genetisk mutation och en av världens mest sällsynta diagnoser som omvandlar muskler, senor, ligament och annan sammanbindande vävnad till skelett.
- published: 31 Jan 2012
- views: 11769
(Visit: http://www.uctv.tv/) Dr. Joseph A. Kitterman, UCSF Professor Emeritus of Pediatrics, explores Fibrodysplasia Ossificans Progressiva (FOP), a rare genetic disease (incidence 1 in 2 million) and one of the most horrific conditions that affect humans. In FOP, skeletal muscle, tendons, and ligaments undergo endochondral ossification in episodes known as flare-ups that lead to progressive permanent loss of range motion in joints. Most people with FOP are initially given erroneous diagnoses, often leading to inappropriate treatment with permanent complications. Currently, there is no effective treatment, but recent research suggests there will be a clinical trial of treatment in the relatively near future.
Series: "UCSF Osher Center for Integrative Medicine presents Mini Medical School for the Public" [1/2014] [Health and Medicine] [Show ID: 25799]
- published: 30 Dec 2013
- views: 10617
Ali McKean was born with a very rare genetic disorder called Fibrodysplasia Ossificans Progressiva (FOP). It took a large team of doctors more than 5 years to diagnose Ali's disorder, which causes her muscles to turn into bone, slowly turning the little girl into a statue.
Read more: http://www.northwestohio.com/news/story.aspx?id=759937
You can learn more about Ali's fight and how to help at http://www.alis-army.org/
- published: 30 May 2012
- views: 30710
sunt doar cateva cupluri din Fairly odd parents. Sper sa va placa :))
- published: 07 Apr 2011
- views: 224353
Fop
Fop became a pejorative term for a foolish man excessively concerned with his appearance and clothes in 17th-century England. Some of the very many similar alternative terms are: "coxcomb",fribble, "popinjay" (meaning "parrot"), fashion-monger, and "ninny". "Macaroni" was another term, of the 18th century, more specifically concerned with fashion.
A modern-day fop may also be a reference to a foolish person who is excessively concerned about his clothing, luxuries, minor details, refined language and leisurely hobbies. He is generally incapable of engaging in conversations, activities or thoughts without the idealism of aesthetics or pleasures.
Origins
The word "fop" is first recorded in 1440, and for several centuries just meant a fool of any kind; the Oxford English Dictionary notes first use with the meaning of "one who is foolishly attentive to and vain of his appearance, dress, or manners; a dandy, an exquisite" in 1672. An early example of the usage is in the restoration drama The Soldier's Fortune, in which a woman dismisses a potential suitor by saying "Go, you are a fop."
This page contains text from Wikipedia, the Free Encyclopedia -
http://wn.com/Fop
This article is licensed under the Creative Commons Attribution-ShareAlike 3.0 Unported License, which means that you can copy and modify it as long as the entire work (including additions) remains under this license.
This article is licensed under the Creative Commons Attribution-ShareAlike 3.0 Unported License, which means that you can copy and modify it as long as the entire work (including additions) remains under this license.
Tyra Banks
Tyra Lynne Banks (born December 4, 1973) is an American model, television personality, talk show host, producer, author, actress, singer and business woman. She began her career as a model at age 15 and rose to fame, becoming the first African American woman on the covers of GQ and the Sports Illustrated Swimsuit Issue, on which she appeared twice. She is one of the original Victoria's Secret Angels. By the early 2000s, Banks was one of the top-earning models in the world. Subsequently she moved onto television and film, known for her roles as Eve in Disney channel's Life-Size and Zoe in the box office hit Coyote Ugly. Banks first appeared on television on the show The Fresh Prince of Bel-Air and has since been featured in small roles in romantic film Love & Basketball and horror film Halloween: Resurrection and has appeared in numerous television shows, including Gossip Girl and Glee.
In 2003, Banks created and became the host of the UPN/The CW long-running reality television show America's Next Top Model (2003 - 2015) Banks was also the co-creator of True Beauty, and was the host of her own talk show, The Tyra Banks Show, which aired on The CW for five seasons and won two Daytime Emmy award for Outstanding Talk Show Informative. She co-hosted the talk show FABLife.
This page contains text from Wikipedia, the Free Encyclopedia -
http://wn.com/Tyra_Banks
This article is licensed under the Creative Commons Attribution-ShareAlike 3.0 Unported License, which means that you can copy and modify it as long as the entire work (including additions) remains under this license.
This article is licensed under the Creative Commons Attribution-ShareAlike 3.0 Unported License, which means that you can copy and modify it as long as the entire work (including additions) remains under this license.
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5:17This is FOP
This is FOPThis is FOP
Erin is one of 800 known cases of Fibrodysplasia Ossificans Progressiva. F.O.P. is one of the rarest, most disabling genetic conditions known to medicine, it causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another. Crowdfunding: https://www.youcaring.com/erin-mccloskey-581885 Blog: http://www.friendswithfop.com http://www.ifopa.org (USA) http://www.cfopn.org (CAN) http://www.fopfriends.org (UK) Music: bensound.com/acousticbreeze http://www.bensound.com/royalty-free-music/track/acoustic-breeze -
26:14Mystery Diagnosis: Girl Who Couldnt Move
Mystery Diagnosis: Girl Who Couldnt MoveMystery Diagnosis: Girl Who Couldnt Move
A show about one of the most devastating medical disorders known to man: Fibrodisplasia Ossificans Progressiva (FOP). My daughter has this and some of her photos were used in this documentary. Read more about Erin (and her friend Miranda) at www.friendswithfop.com -
9:19Tyra Banks Show - Ashley Kurpiel - FOP
Tyra Banks Show - Ashley Kurpiel - FOPTyra Banks Show - Ashley Kurpiel - FOP
http://www.facebook.com/1armbandit Ashley Kurpiel has been featured on Mystery Diagnosis, 20/20 and the BBC. This video is from the Tyra Banks Show originally aired 2/25/10. Keep up with Ashley on Facebook or Twitter. http://www.twitter.com/1armbandit As a point of reference, Ashley did not know what questions Tyra was going to ask beforehand. -
8:25The Battle Against FOP - 1 of 5
The Battle Against FOP - 1 of 5The Battle Against FOP - 1 of 5
A 2003 documentary on the rare genetic disorder called Fibrodysplasia Ossificans Progressiva (FOP). For more info visit: http://www.weldonfop.org/ -
3:43Friends With Rare FOP Disease Reunite
Friends With Rare FOP Disease ReuniteFriends With Rare FOP Disease Reunite
It was a reunion of old friends, and they all have one of the rarest diseases on earth. Nancy Sando said, "My jaw is completely fused." Ashley Kurpiel said, "My leg is fused at the hip." Their condition causes their muscles, ligaments, and tendons to become bone, turning their bodies rock hard. "We are turning into human statues. We can't move," said Kurpiel. Three friends who suffer from a disease known as FOP (Fibrodysplasia Ossificans Progressiva). There are only 700 known cases in the world, and almost half of them are in the U.S. Kurpiel lives outside Atlanta, Georgia. As a toddler, her arm was amputated after doctors misdiagnosed her with cancer. They missed the tell-tale signature of FOP disease, a crooked big toe. Now, her muscles have started hardening into bone. "I cannot move this arm away from my body. It's like superglued to my side, my upper arm, because it does not move" said Kurpiel. Her neck and spine are now fused. Five years ago Kurpiel's leg got stuck in a bent position. Kurpiel said, "Its stuck and that thigh is rock-hard bone." A four-inch platform shoe enables her to walk. The 30-year-old showed INSIDE EDITION how she uses a drawer handle to take off her pants. A convenient closet door knob helps her get them back on. Patrick Doerr showed INSIDE EDITION his lack of movement and said, "This is it for movement in the shoulders." Doerr's jaw is nearly frozen shut. "Just enough to talk," said Patrick. His mom, Gretchen, a pediatric nurse, was heartbroken when he was diagnosed. "He was 17 and big and burley, and next thing you know he's in such severe pain," said Gretchen. She watched helplessly as his muscles and joints turned to solid bone. Patrick said the condition causes, "Very intense swelling, very intense pain." At 52, Sando is one of the oldest living people with FOP. As she inches her way toward the bed, it becomes obvious that her body is stiff as a board. "God has given me the ability to find the joy in the little things in life," said Sando. "It's a tremendous hardship. FOP is a devastating disease," said Dr. Frederick Kaplan. Dr. Kaplan of the University of Pennsylvania is the leader in the fight against the disease, and personally sees to every case. "We adore Nancy and Ashley and Patrick. They are all a testimony to human spirit. They're shining example what human beings can do when faced with such incredible adversity," said Dr. Kaplan. With the reunion set, getting there would prove quite an undertaking. Sando and her care giver left Michigan's Upper Peninsula, driving three hours in her minivan. Kurpiel gets a little help down the jet way in Atlanta, then walks on board her flight and takes her seat. Patrick boarded his plane in Philadelphia. When he found his seat, the 30-year-old accountant enjoyed a drink with his own ingenious invention, an extra-long straw. The three friends finally made it to Detroit and settled in at their hotel. They shared techniques for doing all the things we all take for granted. They gathered by the pool, and Kurpiel took a refreshing swim. Dinner proves the most challenging of all. Since Doerr and Sando's jaws are all but fused shut, they first use their lips to mash the food against their teeth, then push it through gaps. And everywhere they go they draw inspiration from each other. It helps to know that they are not alone. -
4:30Boy Turning Into Stone: Ep. 01 "Fear & Strength"
Boy Turning Into Stone: Ep. 01 "Fear & Strength"Boy Turning Into Stone: Ep. 01 "Fear & Strength"
Join the #SoochCrew Hi. Joey Sooch here! Follow me everywhere. Donate here: https://fundly.com/stop-fop-1 Twitter: http://twitter.com/JoeySooch1 Instagram: http://instagram.com/JoeySooch Snapchat: JoeySooch Myspace: lol Website: http://JoeySooch.com Shirts will be available soon for purchase if you want to show your support in other ways! Business Inquiries: JSuchanek11@gmail.com -
9:25FOP Hugo i Outsiders Kanal 5 2007
FOP Hugo i Outsiders Kanal 5 2007FOP Hugo i Outsiders Kanal 5 2007
www.fopsverige.se Hugo 8år träffar tre kronor, inspelat i december 2006 sändes i feb 2007. FOP Fibrodysplasia Ossificans Progressiva är en genetisk mutation och en av världens mest sällsynta diagnoser som omvandlar muskler, senor, ligament och annan sammanbindande vävnad till skelett. -
88:08Genetic Mysteries: FOP - When Bodies Turn to Bone
Genetic Mysteries: FOP - When Bodies Turn to BoneGenetic Mysteries: FOP - When Bodies Turn to Bone
(Visit: http://www.uctv.tv/) Dr. Joseph A. Kitterman, UCSF Professor Emeritus of Pediatrics, explores Fibrodysplasia Ossificans Progressiva (FOP), a rare genetic disease (incidence 1 in 2 million) and one of the most horrific conditions that affect humans. In FOP, skeletal muscle, tendons, and ligaments undergo endochondral ossification in episodes known as flare-ups that lead to progressive permanent loss of range motion in joints. Most people with FOP are initially given erroneous diagnoses, often leading to inappropriate treatment with permanent complications. Currently, there is no effective treatment, but recent research suggests there will be a clinical trial of treatment in the relatively near future. Series: "UCSF Osher Center for Integrative Medicine presents Mini Medical School for the Public" [1/2014] [Health and Medicine] [Show ID: 25799] -
4:33Family fights to save child with rare genetic disorder FOP
Family fights to save child with rare genetic disorder FOPFamily fights to save child with rare genetic disorder FOP
Ali McKean was born with a very rare genetic disorder called Fibrodysplasia Ossificans Progressiva (FOP). It took a large team of doctors more than 5 years to diagnose Ali's disorder, which causes her muscles to turn into bone, slowly turning the little girl into a statue. Read more: http://www.northwestohio.com/news/story.aspx?id=759937 You can learn more about Ali's fight and how to help at http://www.alis-army.org/ -
2:46FOP Couples
FOP CouplesFOP Couples
sunt doar cateva cupluri din Fairly odd parents. Sper sa va placa :))
'Fop' is featured as a movie character in the following productions:
Scayrecrow (2008)
Actors: Jonas Hawkins (producer), James Harrod (editor), Ashley Thorpe (editor), Ashley Thorpe (actor), Ashley Thorpe (writer), Ashley Thorpe (director), Stuart Mitchell (producer), Mick Grierson (composer), Mick Grierson (editor), Ed Berry (actor), Sue Tilbrook (actress), Robert Thorpe (actor),
Plot: 1742 - and the daring robberies of Joshua Rookwood are the talk of all of England. No-one it seems is safe on the Kings highways from the notorious highwayman and his fearful alter-ego 'The Scayrecrow'. Though his name is whispered in the same breath as Turpin, Rookwood's motives are not mere brutality and greed. Every full moon, after robbing the gentry of their riches, Rookwood steals away to deliver the choicest of the booty to his love, the serving girl Eleanor Tawney. As the reward for his capture grows ever large, these moonlit rendezvous attract unwanted attention...and slowly and surely plans are drawn against them.
Keywords: ghost, hammer-films, highwayman, surrealismGenres: Animation, Horror, Short,
Taglines: A tale of old both dark yet sweet...of pistol, crow and earthen sheet.
The Phantom of the Opera (2004)
Actors: Miranda Richardson (actress), Andrew Lloyd Webber (writer), Kevin McNally (actor), Emmy Rossum (actress), Gaston Leroux (writer), Andrew Lloyd Webber (producer), Murray Melvin (actor), Simon Callow (actor), Paul Brooke (actor), Minnie Driver (actress), Ciarán Hinds (actor), Patrick Wilson (actor), Gerard Butler (actor), Joel Schumacher (writer), Andrew Lloyd Webber (writer),
Plot: Begins when an opera ghost terrorizes the cast and crew of the French Opera House while tutoring a chorus girl. He finally drives the lead soprano crazy so she and her friend leave. The girl is able to sing lead one night but the soprano doesn't want her show stolen so she comes back. The ghost demands they keep giving his protégé lead roles. Meanwhile, His pupil falls in love with the Vicomte de Chagny, but the Phantom is in love with Christine, his student. The Phantom is outraged by their love and kidnaps Christine to be his eternal bride. Will Raoul, the Vicomte, be able to stop this dastardly plan?
Keywords: 1870s, 1910s, 19th-century, auction, backstage, ballroom, based-on-novel, based-on-stage-musical, based-on-stage-musical-based-on-novel, black-and-whiteGenres: Drama, Musical, Romance, Thriller,
Taglines: Her voice became his passion. Her love became his obsession. Her refusal became his rage..... Listen to the Music of the Night The world's biggest musical! The waiting is over...let the fantasy begin. The classic musical comes to the big screen for the first time.
Quotes:
Raoul: I fought so hard to free you!Christine: Say you love me.::Raoul: You know I do.
Carlotta: Well, if my managers command. Mr. Reyer?::Reyer: If my diva commands.::Carlotta: Yes, I do.
The Phantom: [after Christine pulls off his mask and glimpses his face] Damn you! You little prying Pandora! You little demon - is this what you wanted to see? Curse you! You little lying Delilah! You little viper!
The Phantom: Can you even dare to look or bear to think of me?
The Phantom: Softly, deftly, music shall carress you. Hear it, feel it, Secretly possess you.
Raoul: There is no phantom of the opera.
The Phantom: [singing as he descends the staircase at the Masquerade Ball] Why so silent, good monsieurs? Did you think that I had left you for good? Have you missed me, good monsieurs? I have written you an opera! Here I bring the finished score - Don Juan Triumphant! Fondest greetings to you all. A few instructions now before rehearsals start: Carlotta must be taught to act, not her normal trick of strutting 'round the stage. Our Don Juan must lose some weight; it's not healthy in a man of Piangi's age. And my managers must learn that their place is in an office! not the arts. As for our star, Miss Christine Daae... no doubt she'll do her best. It's true her voice is good; she knows, though, should she wish to excel, she has much still to learn, if pride will let her return to me, her teacher... her teacher.
Crowd: [singing] Track down this murderer, he must be found! Hunt out this animal, who runs to ground! Too long he's preyed on us - but now we know: the Phantom of the Opera is there deep down below...
The Phantom: Did I NOT instruct that Box 5 was to be left empty?::Meg Giry: He's here, the phantom of the opera!::Christine: It's him!::Carlotta: Your part is silent, little toad!::The Phantom: A toad, madam? Perhaps it is you who are the toad...
Comrades (1986)
Actors: Alex Norton (actor), Alex Norton (actor), Alex Norton (actor), Alex Norton (actor), Philip Davis (actor), Alex Norton (actor), Murray Melvin (actor), Keith Allen (actor), James Fox (actor), Alex Norton (actor), John Hargreaves (actor), Michael Hordern (actor), Freddie Jones (actor), Alex Norton (actor), Alex Norton (actor),
Plot: The story of "The Tolpuddle Martyrs". A group of 19th century English farm labourers who formed one of the first trade unions and started a campaign to receive fair wages.
Keywords: deportation, independent-film, labor-union, left-wing-politics, unionistGenres: Drama,
The Great McGonagall (1974)
Actors: Valentine Dyall (actor), Valentine Dyall (actor), Valentine Dyall (actor), John Bluthal (actor), John Bluthal (actor), Valentine Dyall (actor), Valentine Dyall (actor), John Bluthal (actor), John Bluthal (actor), John Bluthal (actor), John Bluthal (actor), John Bluthal (actor), John Bluthal (actor), Spike Milligan (actor), Valentine Dyall (actor),
Plot: The tale of an unemployed Scotsman, William McGonagall whose ambition was to become England's Poet Laureate. One minor drawback is that his poetry is terrible.
Keywords: character-name-in-title, independent-film, poetGenres: Biography, Comedy,
Quotes:
William McGonagall: But for my age I too would have joined your army.::Queen Victoria: Oh come now, Mr McGonagall. You're only 45.::William McGonagall: Aye, that's my age but I do not...::Queen Victoria: Oh come now, join up. Join up and travel to distant and exotic places. Meet interesting and exciting people, and then kill them.William McGonagall: Is anything worn under the kilt?::John Brown: No, everything is in working order.
Queen Victoria: I am Queen Victoria, and I am very big in England!
The Great McGonagall (1974)
Actors: Valentine Dyall (actor), Valentine Dyall (actor), Valentine Dyall (actor), John Bluthal (actor), John Bluthal (actor), Valentine Dyall (actor), Valentine Dyall (actor), John Bluthal (actor), John Bluthal (actor), John Bluthal (actor), John Bluthal (actor), John Bluthal (actor), John Bluthal (actor), Spike Milligan (actor), Valentine Dyall (actor),
Plot: The tale of an unemployed Scotsman, William McGonagall whose ambition was to become England's Poet Laureate. One minor drawback is that his poetry is terrible.
Keywords: character-name-in-title, independent-film, poetGenres: Biography, Comedy,
Quotes:
William McGonagall: But for my age I too would have joined your army.::Queen Victoria: Oh come now, Mr McGonagall. You're only 45.::William McGonagall: Aye, that's my age but I do not...::Queen Victoria: Oh come now, join up. Join up and travel to distant and exotic places. Meet interesting and exciting people, and then kill them.William McGonagall: Is anything worn under the kilt?::John Brown: No, everything is in working order.
Queen Victoria: I am Queen Victoria, and I am very big in England!
De wiskunstenaars (1973)
Actors: Jef Burm (actor), Walter Cornelis (actor), Jeanine Schevernels (actress), Jacky Morel (actor), Bob Van der Veken (actor), Joris Collet (actor), Arnold Willems (actor), Emmy Leemans (actress), Marc Leemans (actor), Gerard Vermeersch (actor), Juul Claes (director), Hilde Sacré (actress), Johan De Meester (director), Pieter Langendijk (writer),
Genres: ,Forever Amber (1947)
Actors: Cyril Delevanti (actor), James Craven (actor), Jean De Briac (actor), Robert Adler (actor), Edmund Breon (actor), Ted Billings (actor), Robert Anderson (actor), Leonard Carey (actor), Leo G. Carroll (actor), Patrick Aherne (actor), Jimmy Ames (actor), Gordon B. Clarke (actor), Robert Coote (actor), Harry Cording (actor), Leslie Denison (actor),
Plot: Amber St Clair means to get on in life and despite a poor background knows she has the assets to do it. Husbands, lovers, prison and a liaison with King Charles II form a tapestry of apparently calculating ups and downs, although in fact the one love of her life, Bruce Carlton, is never far from Amber's thoughts.
Keywords: 1660s, 17th-century, ambition, based-on-novel, character-name-in-title, duel, england, fire, foundling, king-charles-iiGenres: Adventure, Drama, History,
Quotes:
King Charles II: [to his spaniels] Children, children, what distressing behavior.Lord Harry Almsbury: Amber, you've restored my vanished faith in gambling at long odds.
King Charles II: [at a royal ball] Look at them. My loving subjects. You'd never know that half of them danced in Puritan garb while my father went to the chopping block.::Amber St. Clair: [moved] No wonder you seek solace in amusement, sire. [slyly] Can a common trollop help you to forget?
The Foxes of Harrow (1947)
Actors: Ralph Faulkner (actor), Hugo Haas (actor), John Doucette (actor), Joseph Crehan (actor), Jean Del Val (actor), Jean De Briac (actor), Eugene Borden (actor), William Bailey (actor), Leonard Bremen (actor), Frederick Burton (actor), John Bagni (actor), André Charlot (actor), Gordon B. Clarke (actor), Frank Dae (actor), John Hamilton (actor),
Genres: Drama,Taglines: The Pages of a Best Seller Pour Their Excitement Onto the Screen! The fire that was in him -- would always kindle the flame in her heart!
Quotes:
Stephen Fox: [after nodding to a passing coach] That's the second time I've comprised you. Once more and your father would probably force me to marry you.::Odalie 'Lilli' D'Arceneaux: Me to Marry you? Why you're the most insufferable, insulting - !::Stephen Fox: Stop being so angry with yourself. Face up to it. All your pretty notions are going astray and you have little left to use against me except I'm no gentleman and you're wrong there too. Because I'm from as fine a flock of sheep that's ever grazed in Ireland. But I had the luck to be the odd one. And it carried me out into a good world, full of living. And it will carry me out wherever I want it to - even to you. [kisses her]Forever Amber (1947)
Actors: Cyril Delevanti (actor), James Craven (actor), Jean De Briac (actor), Robert Adler (actor), Edmund Breon (actor), Ted Billings (actor), Robert Anderson (actor), Leonard Carey (actor), Leo G. Carroll (actor), Patrick Aherne (actor), Jimmy Ames (actor), Gordon B. Clarke (actor), Robert Coote (actor), Harry Cording (actor), Leslie Denison (actor),
Plot: Amber St Clair means to get on in life and despite a poor background knows she has the assets to do it. Husbands, lovers, prison and a liaison with King Charles II form a tapestry of apparently calculating ups and downs, although in fact the one love of her life, Bruce Carlton, is never far from Amber's thoughts.
Keywords: 1660s, 17th-century, ambition, based-on-novel, character-name-in-title, duel, england, fire, foundling, king-charles-iiGenres: Adventure, Drama, History,
Quotes:
King Charles II: [to his spaniels] Children, children, what distressing behavior.Lord Harry Almsbury: Amber, you've restored my vanished faith in gambling at long odds.
King Charles II: [at a royal ball] Look at them. My loving subjects. You'd never know that half of them danced in Puritan garb while my father went to the chopping block.::Amber St. Clair: [moved] No wonder you seek solace in amusement, sire. [slyly] Can a common trollop help you to forget?
Forever Amber (1947)
Actors: Cyril Delevanti (actor), James Craven (actor), Jean De Briac (actor), Robert Adler (actor), Edmund Breon (actor), Ted Billings (actor), Robert Anderson (actor), Leonard Carey (actor), Leo G. Carroll (actor), Patrick Aherne (actor), Jimmy Ames (actor), Gordon B. Clarke (actor), Robert Coote (actor), Harry Cording (actor), Leslie Denison (actor),
Plot: Amber St Clair means to get on in life and despite a poor background knows she has the assets to do it. Husbands, lovers, prison and a liaison with King Charles II form a tapestry of apparently calculating ups and downs, although in fact the one love of her life, Bruce Carlton, is never far from Amber's thoughts.
Keywords: 1660s, 17th-century, ambition, based-on-novel, character-name-in-title, duel, england, fire, foundling, king-charles-iiGenres: Adventure, Drama, History,
Quotes:
King Charles II: [to his spaniels] Children, children, what distressing behavior.Lord Harry Almsbury: Amber, you've restored my vanished faith in gambling at long odds.
King Charles II: [at a royal ball] Look at them. My loving subjects. You'd never know that half of them danced in Puritan garb while my father went to the chopping block.::Amber St. Clair: [moved] No wonder you seek solace in amusement, sire. [slyly] Can a common trollop help you to forget?
-
This is FOP
Erin is one of 800 known cases of Fibrodysplasia Ossificans Progressiva. F.O.P. is one of the rarest, most disabling genetic conditions known to medicine, it causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another. Crowdfunding: https://www.youcaring.com/erin-mccloskey-581885 Blog: http://www.friendswithfop.com http://www.ifopa.org (USA) http://www.cfopn.org (CAN) http://www.fopfriends.org (UK) Music: bensound.com/acousticbreeze http://www.bensound.com/royalty-free-music/track/acoustic-breeze -
Mystery Diagnosis: Girl Who Couldnt Move
A show about one of the most devastating medical disorders known to man: Fibrodisplasia Ossificans Progressiva (FOP). My daughter has this and some of her photos were used in this documentary. Read more about Erin (and her friend Miranda) at www.friendswithfop.com -
Tyra Banks Show - Ashley Kurpiel - FOP
http://www.facebook.com/1armbandit Ashley Kurpiel has been featured on Mystery Diagnosis, 20/20 and the BBC. This video is from the Tyra Banks Show originally aired 2/25/10. Keep up with Ashley on Facebook or Twitter. http://www.twitter.com/1armbandit As a point of reference, Ashley did not know what questions Tyra was going to ask beforehand. -
The Battle Against FOP - 1 of 5
A 2003 documentary on the rare genetic disorder called Fibrodysplasia Ossificans Progressiva (FOP). For more info visit: http://www.weldonfop.org/ -
Friends With Rare FOP Disease Reunite
It was a reunion of old friends, and they all have one of the rarest diseases on earth. Nancy Sando said, "My jaw is completely fused." Ashley Kurpiel said, "My leg is fused at the hip." Their condition causes their muscles, ligaments, and tendons to become bone, turning their bodies rock hard. "We are turning into human statues. We can't move," said Kurpiel. Three friends who suffer from a disease known as FOP (Fibrodysplasia Ossificans Progressiva). There are only 700 known cases in the world, and almost half of them are in the U.S. Kurpiel lives outside Atlanta, Georgia. As a toddler, her arm was amputated after doctors misdiagnosed her with cancer. They missed the tell-tale signature of FOP disease, a crooked big toe. Now, her muscles have started hardening into bone. "I canno... -
Boy Turning Into Stone: Ep. 01 "Fear & Strength"
Join the #SoochCrew Hi. Joey Sooch here! Follow me everywhere. Donate here: https://fundly.com/stop-fop-1 Twitter: http://twitter.com/JoeySooch1 Instagram: http://instagram.com/JoeySooch Snapchat: JoeySooch Myspace: lol Website: http://JoeySooch.com Shirts will be available soon for purchase if you want to show your support in other ways! Business Inquiries: JSuchanek11@gmail.com -
FOP Hugo i Outsiders Kanal 5 2007
www.fopsverige.se Hugo 8år träffar tre kronor, inspelat i december 2006 sändes i feb 2007. FOP Fibrodysplasia Ossificans Progressiva är en genetisk mutation och en av världens mest sällsynta diagnoser som omvandlar muskler, senor, ligament och annan sammanbindande vävnad till skelett. -
Genetic Mysteries: FOP - When Bodies Turn to Bone
(Visit: http://www.uctv.tv/) Dr. Joseph A. Kitterman, UCSF Professor Emeritus of Pediatrics, explores Fibrodysplasia Ossificans Progressiva (FOP), a rare genetic disease (incidence 1 in 2 million) and one of the most horrific conditions that affect humans. In FOP, skeletal muscle, tendons, and ligaments undergo endochondral ossification in episodes known as flare-ups that lead to progressive permanent loss of range motion in joints. Most people with FOP are initially given erroneous diagnoses, often leading to inappropriate treatment with permanent complications. Currently, there is no effective treatment, but recent research suggests there will be a clinical trial of treatment in the relatively near future. Series: "UCSF Osher Center for Integrative Medicine presents Mini Medical Schoo... -
Family fights to save child with rare genetic disorder FOP
Ali McKean was born with a very rare genetic disorder called Fibrodysplasia Ossificans Progressiva (FOP). It took a large team of doctors more than 5 years to diagnose Ali's disorder, which causes her muscles to turn into bone, slowly turning the little girl into a statue. Read more: http://www.northwestohio.com/news/story.aspx?id=759937 You can learn more about Ali's fight and how to help at http://www.alis-army.org/ -
FOP Couples
sunt doar cateva cupluri din Fairly odd parents. Sper sa va placa :))
This is FOP
- Order: Reorder
- Duration: 5:17
- Updated: 06 Jun 2016
- views: 1842
Erin is one of 800 known cases of Fibrodysplasia Ossificans Progressiva. F.O.P. is one of the rarest, most disabling genetic conditions known to medicine, it c...
Erin is one of 800 known cases of Fibrodysplasia Ossificans Progressiva. F.O.P. is one of the rarest, most disabling genetic conditions known to medicine, it causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another.
Crowdfunding:
https://www.youcaring.com/erin-mccloskey-581885
Blog:
http://www.friendswithfop.com
http://www.ifopa.org (USA)
http://www.cfopn.org (CAN)
http://www.fopfriends.org (UK)
Music:
bensound.com/acousticbreeze
http://www.bensound.com/royalty-free-music/track/acoustic-breeze
wn.com/This Is Fop
Erin is one of 800 known cases of Fibrodysplasia Ossificans Progressiva. F.O.P. is one of the rarest, most disabling genetic conditions known to medicine, it causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another.
Crowdfunding:
https://www.youcaring.com/erin-mccloskey-581885
Blog:
http://www.friendswithfop.com
http://www.ifopa.org (USA)
http://www.cfopn.org (CAN)
http://www.fopfriends.org (UK)
Music:
bensound.com/acousticbreeze
http://www.bensound.com/royalty-free-music/track/acoustic-breeze
- published: 06 Jun 2016
- views: 1842
Mystery Diagnosis: Girl Who Couldnt Move
- Order: Reorder
- Duration: 26:14
- Updated: 03 Mar 2009
- views: 2974635
A show about one of the most devastating medical disorders known to man: Fibrodisplasia Ossificans Progressiva (FOP).
My daughter has this and some of her phot...
A show about one of the most devastating medical disorders known to man: Fibrodisplasia Ossificans Progressiva (FOP).
My daughter has this and some of her photos were used in this documentary. Read more about Erin (and her friend Miranda) at www.friendswithfop.com
wn.com/Mystery Diagnosis Girl Who Couldnt Move
A show about one of the most devastating medical disorders known to man: Fibrodisplasia Ossificans Progressiva (FOP).
My daughter has this and some of her photos were used in this documentary. Read more about Erin (and her friend Miranda) at www.friendswithfop.com
- published: 03 Mar 2009
- views: 2974635
Tyra Banks Show - Ashley Kurpiel - FOP
- Order: Reorder
- Duration: 9:19
- Updated: 13 Mar 2010
- views: 588670
http://www.facebook.com/1armbandit
Ashley Kurpiel has been featured on Mystery Diagnosis, 20/20 and the BBC. This video is from the Tyra Banks Show originally a...
http://www.facebook.com/1armbandit
Ashley Kurpiel has been featured on Mystery Diagnosis, 20/20 and the BBC. This video is from the Tyra Banks Show originally aired 2/25/10. Keep up with Ashley on Facebook or Twitter. http://www.twitter.com/1armbandit
As a point of reference, Ashley did not know what questions Tyra was going to ask beforehand.
wn.com/Tyra Banks Show Ashley Kurpiel Fop
http://www.facebook.com/1armbandit
Ashley Kurpiel has been featured on Mystery Diagnosis, 20/20 and the BBC. This video is from the Tyra Banks Show originally aired 2/25/10. Keep up with Ashley on Facebook or Twitter. http://www.twitter.com/1armbandit
As a point of reference, Ashley did not know what questions Tyra was going to ask beforehand.
- published: 13 Mar 2010
- views: 588670
The Battle Against FOP - 1 of 5
- Order: Reorder
- Duration: 8:25
- Updated: 14 Oct 2009
- views: 42637
A 2003 documentary on the rare genetic disorder called Fibrodysplasia Ossificans Progressiva (FOP).
For more info visit: http://www.weldonfop.org/
A 2003 documentary on the rare genetic disorder called Fibrodysplasia Ossificans Progressiva (FOP).
For more info visit: http://www.weldonfop.org/
wn.com/The Battle Against Fop 1 Of 5
A 2003 documentary on the rare genetic disorder called Fibrodysplasia Ossificans Progressiva (FOP).
For more info visit: http://www.weldonfop.org/
- published: 14 Oct 2009
- views: 42637
Friends With Rare FOP Disease Reunite
- Order: Reorder
- Duration: 3:43
- Updated: 18 Sep 2013
- views: 29833
It was a reunion of old friends, and they all have one of the rarest diseases on earth.
Nancy Sando said, "My jaw is completely fused."
Ashley Kurpiel said, "...
It was a reunion of old friends, and they all have one of the rarest diseases on earth.
Nancy Sando said, "My jaw is completely fused."
Ashley Kurpiel said, "My leg is fused at the hip."
Their condition causes their muscles, ligaments, and tendons to become bone, turning their bodies rock hard.
"We are turning into human statues. We can't move," said Kurpiel.
Three friends who suffer from a disease known as FOP (Fibrodysplasia Ossificans Progressiva). There are only 700 known cases in the world, and almost half of them are in the U.S.
Kurpiel lives outside Atlanta, Georgia. As a toddler, her arm was amputated after doctors misdiagnosed her with cancer. They missed the tell-tale signature of FOP disease, a crooked big toe. Now, her muscles have started hardening into bone.
"I cannot move this arm away from my body. It's like superglued to my side, my upper arm, because it does not move" said Kurpiel. Her neck and spine are now fused. Five years ago Kurpiel's leg got stuck in a bent position.
Kurpiel said, "Its stuck and that thigh is rock-hard bone."
A four-inch platform shoe enables her to walk. The 30-year-old showed INSIDE EDITION how she uses a drawer handle to take off her pants. A convenient closet door knob helps her get them back on.
Patrick Doerr showed INSIDE EDITION his lack of movement and said, "This is it for movement in the shoulders."
Doerr's jaw is nearly frozen shut. "Just enough to talk," said Patrick.
His mom, Gretchen, a pediatric nurse, was heartbroken when he was diagnosed.
"He was 17 and big and burley, and next thing you know he's in such severe pain," said Gretchen. She watched helplessly as his muscles and joints turned to solid bone.
Patrick said the condition causes, "Very intense swelling, very intense pain."
At 52, Sando is one of the oldest living people with FOP. As she inches her way toward the bed, it becomes obvious that her body is stiff as a board.
"God has given me the ability to find the joy in the little things in life," said Sando.
"It's a tremendous hardship. FOP is a devastating disease," said Dr. Frederick Kaplan.
Dr. Kaplan of the University of Pennsylvania is the leader in the fight against the disease, and personally sees to every case.
"We adore Nancy and Ashley and Patrick. They are all a testimony to human spirit. They're shining example what human beings can do when faced with such incredible adversity," said Dr. Kaplan.
With the reunion set, getting there would prove quite an undertaking.
Sando and her care giver left Michigan's Upper Peninsula, driving three hours in her minivan. Kurpiel gets a little help down the jet way in Atlanta, then walks on board her flight and takes her seat. Patrick boarded his plane in Philadelphia. When he found his seat, the 30-year-old accountant enjoyed a drink with his own ingenious invention, an extra-long straw.
The three friends finally made it to Detroit and settled in at their hotel. They shared techniques for doing all the things we all take for granted. They gathered by the pool, and Kurpiel took a refreshing swim.
Dinner proves the most challenging of all. Since Doerr and Sando's jaws are all but fused shut, they first use their lips to mash the food against their teeth, then push it through gaps.
And everywhere they go they draw inspiration from each other. It helps to know that they are not alone.
wn.com/Friends With Rare Fop Disease Reunite
It was a reunion of old friends, and they all have one of the rarest diseases on earth.
Nancy Sando said, "My jaw is completely fused."
Ashley Kurpiel said, "My leg is fused at the hip."
Their condition causes their muscles, ligaments, and tendons to become bone, turning their bodies rock hard.
"We are turning into human statues. We can't move," said Kurpiel.
Three friends who suffer from a disease known as FOP (Fibrodysplasia Ossificans Progressiva). There are only 700 known cases in the world, and almost half of them are in the U.S.
Kurpiel lives outside Atlanta, Georgia. As a toddler, her arm was amputated after doctors misdiagnosed her with cancer. They missed the tell-tale signature of FOP disease, a crooked big toe. Now, her muscles have started hardening into bone.
"I cannot move this arm away from my body. It's like superglued to my side, my upper arm, because it does not move" said Kurpiel. Her neck and spine are now fused. Five years ago Kurpiel's leg got stuck in a bent position.
Kurpiel said, "Its stuck and that thigh is rock-hard bone."
A four-inch platform shoe enables her to walk. The 30-year-old showed INSIDE EDITION how she uses a drawer handle to take off her pants. A convenient closet door knob helps her get them back on.
Patrick Doerr showed INSIDE EDITION his lack of movement and said, "This is it for movement in the shoulders."
Doerr's jaw is nearly frozen shut. "Just enough to talk," said Patrick.
His mom, Gretchen, a pediatric nurse, was heartbroken when he was diagnosed.
"He was 17 and big and burley, and next thing you know he's in such severe pain," said Gretchen. She watched helplessly as his muscles and joints turned to solid bone.
Patrick said the condition causes, "Very intense swelling, very intense pain."
At 52, Sando is one of the oldest living people with FOP. As she inches her way toward the bed, it becomes obvious that her body is stiff as a board.
"God has given me the ability to find the joy in the little things in life," said Sando.
"It's a tremendous hardship. FOP is a devastating disease," said Dr. Frederick Kaplan.
Dr. Kaplan of the University of Pennsylvania is the leader in the fight against the disease, and personally sees to every case.
"We adore Nancy and Ashley and Patrick. They are all a testimony to human spirit. They're shining example what human beings can do when faced with such incredible adversity," said Dr. Kaplan.
With the reunion set, getting there would prove quite an undertaking.
Sando and her care giver left Michigan's Upper Peninsula, driving three hours in her minivan. Kurpiel gets a little help down the jet way in Atlanta, then walks on board her flight and takes her seat. Patrick boarded his plane in Philadelphia. When he found his seat, the 30-year-old accountant enjoyed a drink with his own ingenious invention, an extra-long straw.
The three friends finally made it to Detroit and settled in at their hotel. They shared techniques for doing all the things we all take for granted. They gathered by the pool, and Kurpiel took a refreshing swim.
Dinner proves the most challenging of all. Since Doerr and Sando's jaws are all but fused shut, they first use their lips to mash the food against their teeth, then push it through gaps.
And everywhere they go they draw inspiration from each other. It helps to know that they are not alone.
- published: 18 Sep 2013
- views: 29833
Boy Turning Into Stone: Ep. 01 "Fear & Strength"
- Order: Reorder
- Duration: 4:30
- Updated: 03 Mar 2015
- views: 286764
Join the #SoochCrew
Hi. Joey Sooch here! Follow me everywhere.
Donate here: https://fundly.com/stop-fop-1
Twitter: http://twitter.com/JoeySooch1
Instagram: ht...
Join the #SoochCrew
Hi. Joey Sooch here! Follow me everywhere.
Donate here: https://fundly.com/stop-fop-1
Twitter: http://twitter.com/JoeySooch1
Instagram: http://instagram.com/JoeySooch
Snapchat: JoeySooch
Myspace: lol
Website: http://JoeySooch.com
Shirts will be available soon for purchase if you want to show your support in other ways!
Business Inquiries: JSuchanek11@gmail.com
wn.com/Boy Turning Into Stone Ep. 01 Fear Strength
Join the #SoochCrew
Hi. Joey Sooch here! Follow me everywhere.
Donate here: https://fundly.com/stop-fop-1
Twitter: http://twitter.com/JoeySooch1
Instagram: http://instagram.com/JoeySooch
Snapchat: JoeySooch
Myspace: lol
Website: http://JoeySooch.com
Shirts will be available soon for purchase if you want to show your support in other ways!
Business Inquiries: JSuchanek11@gmail.com
- published: 03 Mar 2015
- views: 286764
FOP Hugo i Outsiders Kanal 5 2007
- Order: Reorder
- Duration: 9:25
- Updated: 31 Jan 2012
- views: 11769
www.fopsverige.se Hugo 8år träffar tre kronor, inspelat i december 2006 sändes i feb 2007. FOP Fibrodysplasia Ossificans Progressiva är en genetisk mutation och...
www.fopsverige.se Hugo 8år träffar tre kronor, inspelat i december 2006 sändes i feb 2007. FOP Fibrodysplasia Ossificans Progressiva är en genetisk mutation och en av världens mest sällsynta diagnoser som omvandlar muskler, senor, ligament och annan sammanbindande vävnad till skelett.
wn.com/Fop Hugo I Outsiders Kanal 5 2007
www.fopsverige.se Hugo 8år träffar tre kronor, inspelat i december 2006 sändes i feb 2007. FOP Fibrodysplasia Ossificans Progressiva är en genetisk mutation och en av världens mest sällsynta diagnoser som omvandlar muskler, senor, ligament och annan sammanbindande vävnad till skelett.
- published: 31 Jan 2012
- views: 11769
Genetic Mysteries: FOP - When Bodies Turn to Bone
- Order: Reorder
- Duration: 88:08
- Updated: 30 Dec 2013
- views: 10617
(Visit: http://www.uctv.tv/) Dr. Joseph A. Kitterman, UCSF Professor Emeritus of Pediatrics, explores Fibrodysplasia Ossificans Progressiva (FOP), a rare geneti...
(Visit: http://www.uctv.tv/) Dr. Joseph A. Kitterman, UCSF Professor Emeritus of Pediatrics, explores Fibrodysplasia Ossificans Progressiva (FOP), a rare genetic disease (incidence 1 in 2 million) and one of the most horrific conditions that affect humans. In FOP, skeletal muscle, tendons, and ligaments undergo endochondral ossification in episodes known as flare-ups that lead to progressive permanent loss of range motion in joints. Most people with FOP are initially given erroneous diagnoses, often leading to inappropriate treatment with permanent complications. Currently, there is no effective treatment, but recent research suggests there will be a clinical trial of treatment in the relatively near future.
Series: "UCSF Osher Center for Integrative Medicine presents Mini Medical School for the Public" [1/2014] [Health and Medicine] [Show ID: 25799]
wn.com/Genetic Mysteries Fop When Bodies Turn To Bone
(Visit: http://www.uctv.tv/) Dr. Joseph A. Kitterman, UCSF Professor Emeritus of Pediatrics, explores Fibrodysplasia Ossificans Progressiva (FOP), a rare genetic disease (incidence 1 in 2 million) and one of the most horrific conditions that affect humans. In FOP, skeletal muscle, tendons, and ligaments undergo endochondral ossification in episodes known as flare-ups that lead to progressive permanent loss of range motion in joints. Most people with FOP are initially given erroneous diagnoses, often leading to inappropriate treatment with permanent complications. Currently, there is no effective treatment, but recent research suggests there will be a clinical trial of treatment in the relatively near future.
Series: "UCSF Osher Center for Integrative Medicine presents Mini Medical School for the Public" [1/2014] [Health and Medicine] [Show ID: 25799]
- published: 30 Dec 2013
- views: 10617
Family fights to save child with rare genetic disorder FOP
- Order: Reorder
- Duration: 4:33
- Updated: 30 May 2012
- views: 30710
Ali McKean was born with a very rare genetic disorder called Fibrodysplasia Ossificans Progressiva (FOP). It took a large team of doctors more than 5 years to d...
Ali McKean was born with a very rare genetic disorder called Fibrodysplasia Ossificans Progressiva (FOP). It took a large team of doctors more than 5 years to diagnose Ali's disorder, which causes her muscles to turn into bone, slowly turning the little girl into a statue.
Read more: http://www.northwestohio.com/news/story.aspx?id=759937
You can learn more about Ali's fight and how to help at http://www.alis-army.org/
wn.com/Family Fights To Save Child With Rare Genetic Disorder Fop
Ali McKean was born with a very rare genetic disorder called Fibrodysplasia Ossificans Progressiva (FOP). It took a large team of doctors more than 5 years to diagnose Ali's disorder, which causes her muscles to turn into bone, slowly turning the little girl into a statue.
Read more: http://www.northwestohio.com/news/story.aspx?id=759937
You can learn more about Ali's fight and how to help at http://www.alis-army.org/
- published: 30 May 2012
- views: 30710
FOP Couples
- Order: Reorder
- Duration: 2:46
- Updated: 07 Apr 2011
- views: 224353
sunt doar cateva cupluri din Fairly odd parents. Sper sa va placa :))
sunt doar cateva cupluri din Fairly odd parents. Sper sa va placa :))
wn.com/Fop Couples
sunt doar cateva cupluri din Fairly odd parents. Sper sa va placa :))
- published: 07 Apr 2011
- views: 224353
close fullscreen
- Playlist
- Chat
close fullscreen
- Playlist
- Chat
5:17
This is FOP
Erin is one of 800 known cases of Fibrodysplasia Ossificans Progressiva. F.O.P. is one of...
published: 06 Jun 2016
This is FOP
This is FOP
- Report rights infringement
- published: 06 Jun 2016
- views: 1842
26:14
Mystery Diagnosis: Girl Who Couldnt Move
A show about one of the most devastating medical disorders known to man: Fibrodisplasia Os...
published: 03 Mar 2009
Mystery Diagnosis: Girl Who Couldnt Move
Mystery Diagnosis: Girl Who Couldnt Move
- Report rights infringement
- published: 03 Mar 2009
- views: 2974635
9:19
Tyra Banks Show - Ashley Kurpiel - FOP
http://www.facebook.com/1armbandit
Ashley Kurpiel has been featured on Mystery Diagnosis, ...
published: 13 Mar 2010
Tyra Banks Show - Ashley Kurpiel - FOP
Tyra Banks Show - Ashley Kurpiel - FOP
- Report rights infringement
- published: 13 Mar 2010
- views: 588670
8:25
The Battle Against FOP - 1 of 5
A 2003 documentary on the rare genetic disorder called Fibrodysplasia Ossificans Progressi...
published: 14 Oct 2009
The Battle Against FOP - 1 of 5
The Battle Against FOP - 1 of 5
- Report rights infringement
- published: 14 Oct 2009
- views: 42637
3:43
Friends With Rare FOP Disease Reunite
It was a reunion of old friends, and they all have one of the rarest diseases on earth.
N...
published: 18 Sep 2013
Friends With Rare FOP Disease Reunite
Friends With Rare FOP Disease Reunite
- Report rights infringement
- published: 18 Sep 2013
- views: 29833
4:30
Boy Turning Into Stone: Ep. 01 "Fear & Strength"
Join the #SoochCrew
Hi. Joey Sooch here! Follow me everywhere.
Donate here: https://fund...
published: 03 Mar 2015
Boy Turning Into Stone: Ep. 01 "Fear & Strength"
Boy Turning Into Stone: Ep. 01 "Fear & Strength"
- Report rights infringement
- published: 03 Mar 2015
- views: 286764
9:25
FOP Hugo i Outsiders Kanal 5 2007
www.fopsverige.se Hugo 8år träffar tre kronor, inspelat i december 2006 sändes i feb 2007....
published: 31 Jan 2012
FOP Hugo i Outsiders Kanal 5 2007
FOP Hugo i Outsiders Kanal 5 2007
- Report rights infringement
- published: 31 Jan 2012
- views: 11769
88:08
Genetic Mysteries: FOP - When Bodies Turn to Bone
(Visit: http://www.uctv.tv/) Dr. Joseph A. Kitterman, UCSF Professor Emeritus of Pediatric...
published: 30 Dec 2013
Genetic Mysteries: FOP - When Bodies Turn to Bone
Genetic Mysteries: FOP - When Bodies Turn to Bone
- Report rights infringement
- published: 30 Dec 2013
- views: 10617
4:33
Family fights to save child with rare genetic disorder FOP
Ali McKean was born with a very rare genetic disorder called Fibrodysplasia Ossificans Pro...
published: 30 May 2012
Family fights to save child with rare genetic disorder FOP
Family fights to save child with rare genetic disorder FOP
- Report rights infringement
- published: 30 May 2012
- views: 30710
2:46
FOP Couples
sunt doar cateva cupluri din Fairly odd parents. Sper sa va placa :))
published: 07 Apr 2011
FOP Couples
FOP Couples
- Report rights infringement
- published: 07 Apr 2011
- views: 224353
This is FOP...
Mystery Diagnosis: Girl Who Couldnt Move...
Tyra Banks Show - Ashley Kurpiel - FOP...
The Battle Against FOP - 1 of 5...
Friends With Rare FOP Disease Reunite...
Boy Turning Into Stone: Ep. 01 "Fear & Strength"...
FOP Hugo i Outsiders Kanal 5 2007...
Genetic Mysteries: FOP - When Bodies Turn to Bone...
Family fights to save child with rare genetic diso...
FOP Couples...
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Lyrics list:lyrics
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Bad Chick
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Im Ready
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What You Want (feat. Lil Trill)
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Gotta Show Me U Worth It
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Come Here Bitch
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Wipe Me Down Remix
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Rubber Tonight
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Thuggin'
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I Do Em All (feat. K.T.)
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Just like this
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Bad Chick
Come on, I need a bad bitch
Come on if you a bad bitch
See, I want a bad bitch
The girl be cooking and cleaning and cleaning and cooking
She be constantly douching and cleaning her pussy
And when she step on the scene everybody be looking
And to get in them jeans everybody be wishing
But she only want players who far from rookie
And if you ain't got the cake, can't play with the nookie
Her titties sitting pretty and she soft as a cushion
If you try to holla she might holla she tooken
And she walk like a bad bitch, talk like a bad bitch
And go and get her hair and shit fixed is a habit
Now bad bitch go and buy Finch more than average
And bad bitches get to take trips with the savage
Can never tell a bad bitch a freak she too classy
But shit I can tell from her lips that she nasty
Expensive ass pant-ses grip to them asses
She mean as a pitbull sweet like care-bear
Now that's a bad bitch
(A bad bitch)
Now that's a bad bitch
(A bad bitch)
Now that's a bad bitch
(A bad bitch)
Now that's a bad bitch
(A bad bitch)
Girl, you a bad bitch
(A bad bitch)
Girl, you a bad bitch
(A bad bitch)
Girl, you a bad bitch
(A bad bitch)
Girl, you a bad bitch
(A bad bitch)
Now see I can impress a bad bitch the girl gon' smile
Caress the bad bitch now the girl gon' wild
I'll feed it and treat it like that's my child
Then freak it up and beat it up and that's my style
You get a lot of head when your bread in piles
'Cuz I'm on right now and I'm saying that loud
A trifling ass bitch make the big dog growl
A bad ass bitch make the big dog proud
Which one is the baddest, that's the one I'm having
The one with no kids or just one baby daddy
And she ain't hard-headed, can listen and respect it
And you ain't a bad bitch if you got bad credit
A thong and press-ons and know how to cook neckbones
I want the MVP with that throwback dress on
Don't like to get dirty and don't mind working
And she don't mind giving me some mouth and lip service
Now that's a bad bitch
(A bad bitch)
Now that's a bad bitch
(A bad bitch)
Now that's a bad bitch
(A bad bitch)
Now that's a bad bitch
(A bad bitch)
Girl, you a bad bitch
(A bad bitch)
Girl, you a bad bitch
(A bad bitch)
Girl, you a bad bitch
(A bad bitch)
Girl, you a bad bitch
(A bad bitch)
Now make yourself seen
'Cuz you a bad bitch
Girl, you a bad bitch
Yeah, you a bad bitch
Now show your ass off
'Cuz you a bad bitch
Girl, you a bad bitch
Yeah, you a bad bitch
Man I love them bad bitches with them sexy ass tattoos
Them bad bitches with them bad bitches attitudes
She a damn a fool got a crib, she'll let me camp
Make sure her nigga stay filled with them foodstamps
I N D E P E N D E N T
Do you know what that mean, man
Own damn house flossed out big screen man
I bring the whole hundred shit what you gon' do for me, man
Look at her own income she a beast man
Bad bitches holla business first then streets man
She ain't crying over, no, nigga, she ain't weak man
The kinda bitch that put a real nigga on his feet man
Now that's a bad bitch
(A bad bitch)
Now that's a bad bitch
(A bad bitch)
Now that's a bad bitch
(A bad bitch)
Now that's a bad bitch
(A bad bitch)
Girl, you a bad bitch
(A bad bitch)
Girl, you a bad bitch
(A bad bitch)
Girl, you a bad bitch
(A bad bitch)
Girl, you a bad bitch
(A bad bitch)
Now that's a bad bitch
(A bad bitch)
Now that's a bad bitch
(A bad bitch)
Now that's a bad bitch
(A bad bitch)
Now that's a bad bitch
(A bad bitch)
Girl, you a bad bitch
(A bad bitch)
Girl, you a bad bitch
(A bad bitch)
Girl, you a bad bitch
(A bad bitch)
Girl, you a bad bitch
(A bad bitch)
Come here fa sho
Trill Entertainment nigga
I'm Webbie nigga
My name ain't Weebie ya heard me
Get it right
Mouse on the track
2004 this my year right chea
I'm out this bitch
I need a bad bitch
photo: Public Domain / Chuck Kennedy
Michelle Obama’s “I Wake up Every Morning in A House Built by Slaves” Is Only Partially Right
Edit WorldNews.com 28 Jul 2016
Article by WN.com Correspondent Dallas DarlingJust as she did on the first night of the Democratic National Convention, it has become very fashionable, even unsuspecting, for First Lady Michelle Obama to travel the country and in her speeches declare. “I wake up every morning in a house built by slaves.” The only problem is that she is partially right, one-sixth right to be exact ... He is a correspondent for www.worldnews.com ... Washington....
photo: AP / David Guttenfelder
North Korea says U.S. has crossed red line, relations now on war footing
Edit Baltimore Sun 28 Jul 2016
North Korea's top diplomat for U.S. affairs said Thursday that Washington "crossed the red line" and effectively declared war by putting leader Kim Jong Un on its list of sanctioned individuals, and said a vicious showdown could erupt if the U.S. and South Korea hold annual war games as planned... ....
photo: US Army / Staff Sgt. Jon Soucy
Rep. Duckworth to Trump: I didn't serve my country 'so you could invite Russia to ...
Edit Politico 29 Jul 2016
There were no shortage harsh quips directed towards Donald Trump at the Democratic National convention, but Rep. Tammy Duckworth, a military veteran, had her own take down for Trump’s widely criticized invitation to Russia to hack Hillary Clinton’s emails ... ....
photo: NASA/JPL-Caltech
[VIDEO]: Mysterious Fireball Soars Over Western U.S. Skies
Edit WorldNews.com 28 Jul 2016
Areas of the Western United States were lit up last night as a blazing fireball streaked across the sky Wednesday, igniting a social media frenzy, ABC News reported.From southern California all the way to Utah, residents observed a curious streak of light, with many people taking to the Internet to find out what it was and share their own theories ......
photo: AP / Alexander Kots/Komsomolskaya Pravda via AP
Military Offensive in Manbij Yields ISIS Data Windfall
Edit WorldNews.com 28 Jul 2016
A U.S.-supported military offensive on the Islamic State (ISIS) militant group’s strategic hub in the Syrian city of Manbij has yielded a mother lode of more than four terabytes of data on the group’s foreign fighter network, Newsweek reported Thursday.The cache of information is the biggest data seizure from the radical Islamist group since the U.S ... “We think this is a big deal....
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FOP president says union plans to appeal newly signed contract between Pittsburgh, police force
Edit WPXI 28 Jul 2016
The president of Pittsburgh’s Fraternal Order of Police told Channel 11 News Wednesday that the union plans to appeal a newly signed contract between the city and its police force all the way to the Pennsylvania Supreme Court. . “In my opinion, they don’t care about their police here,” Pittsburgh’s FOP President Robert Swartzwelder said ... ... ... ... ... ... ... ... ....
Baltimore FOP president: 'Justice has been done' in dropping charges against police officers
Edit Baltimore Sun 27 Jul 2016
Representatives for the six officers who had been charged in the Freddie Gray case defended their clients and criticized State's Attorney Marilyn Mosby during a press conference Wednesday afternoon. "Justice has been done," said Gene Ryan, president of FOP Lodge 3, which represents city police... ....
City asks court to preserve CPD misconduct records
Edit Chicago Sun-Times 27 Jul 2016
The city filed the petition to vacate the Fraternal Order of Police’s arbitration award Tuesday in Cook County Circuit Court. Section 8.4 of the collective bargaining agreement between the FOP and the city states that disciplinary records more than five years old are to be destroyed, except for criminal and civil litigation-related material ... On Feb ... Dean Angelo, president of the FOP, could not be reached for comment Tuesday evening ... ....
'Shocked and saddened': Philly police react to gun violence speakers at DNC
Edit Penn Live 27 Jul 2016
The Fraternal Order of Police Lodge 5 issued a strongly worded statement slamming the presidential nominee Hillary Clinton and the Democratic Party ... "It is sad that to win an election Mrs ... . President John McNesby and the membership of Philadelphia Lodge 5 FOP are shocked and saddened by the planned choice of speakers at the upcoming DNC in Philadelphia ... Mrs ... ....
Chicago Police union to officers: Don't request overtime
Edit Austin American Statesman 27 Jul 2016
The Chicago Police Department typically deploys thousands of officers on overtime to counteract the spike in shootings that usually occurs during long holiday weekends ... "There is a new level of concern that families now have when their loved ones leave for work in law enforcement that they didn't have a month ago," Chicago FOP President Dean Angelo said, referring to the recent fatal shootings in Dallas and Baton Rouge, Louisiana ... ....
FOP picks Portman, firefighters union for Strickland
Edit Cincinnati 26 Jul 2016
COLUMBUS -�Sen. Rob Portman snatched another key union endorsement from former Gov. Ted Strickland. the Fraternal Order of Police of Ohio.� ... ....
Nashville Fraternal Order of Police president resigns
Edit Nashville Tennessean 26 Jul 2016
Nashville Fraternal Order of Police President Danny Hale has resigned from his position, according to an FOP statement Monday evening. . ... ....
Union urges cops to refuse ‘non-mandatory’ Labor Day weekend OT
Edit Chicago Sun-Times 25 Jul 2016
That request was a flier distributed to FOP members that also invited them to a Labor Day picnic at union headquarters ... “Labor Day weekend is a time to celebrate the achievements of labor and the workers who contributed to the strength, prosperity and well-being of our country,” the FOP said in the flier ... FOP President Dean Angelo could not be reached for comment about the directive....
Arbitration Panel Issues Final Police Contract Award (City of Pittsburgh, PA)
Edit Public Technologies 25 Jul 2016
(Source. City of Pittsburgh, PA) ... 1 ... 'This is a fair - and legally required - contract in which neither side got everything it wanted ... They include.. A pilot program requested by the FOP to study a switch to a four-day, 10-hour schedule ... Another change requested by the FOP allowing all officers the ability to annually pick their duty locations and shifts, where previously only the top 25% most senior officers were allowed to do so ... McLay....
Vermeer Terrain Leveler® SEM can help address drill and blast, air quality restrictions (Vermeer Corporation)
Edit Public Technologies 25 Jul 2016
(Source. Vermeer Corporation). PELLA, Iowa - Regulations are having a significant impact on productivity in the mining industry at a time when it's already running on thin margins ... One solution is the Vermeer T1255III Terrain Leveler® surface excavation machine (SEM) ... How it works ... The machines are available with a rollover protective module (ROPM) and a falling object protective structure (FOPS) for working near a high pit wall ... (noodl....
DNC 2016 gives our region a chance to shine | Editorial
Edit NJ dot com 24 Jul 2016
The Democrats' convention puts the Philadelphia area under a big spotlight. Outside the hall, at least, the GOP's Cleveland convention was the perfect role model ... We anticipate a more aspirational tone in Clinton's remarks, and many will be greatly disappointed if that is not the case ... The FOP's point will be valid only if the convention fails to include others who grieve for officers who were gunned down by thugs ... Help them....
Black Lives Matter protesters call out police unions for defending bad cops
Edit The Times Picayune 24 Jul 2016
We are here today to say that is not OK." ... on Danziger Bridge the Sunday after Hurricane Katrina. Michael Glasser of PANO and Jim Gallagher of the FOP were upset at "Why it's so hard to trust the police," a column where I included a list of the many felonies New Orleans officers had committed even before officers stood accused of killing and maiming innocent people on the bridge ... And yet, Mr. DeBerry's column sickens me. " ... ....
Exchange Between Elderly Man, BLM Protesters Goes Viral (Video)
Edit Opposing Views 22 Jul 2016
this week ... Group members lined up in front of the Fraternal Order of Police (FOP) local office, forming human chains that stretched across multiple streets ... Some demonstrators chained themselves to outdoor railings near the FOP office on Massachusetts Avenue ... The demonstrators told reporters that they were protesting the role they say the FOP has played in allowing police brutality. “FOP, we see you,” said one unnamed protester ... ....
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