AFE FOUNDATION

The AFE foundation exists to better understand AFE and identify it’s cause so that clinicians will be able to predict, prevent, and thereby reduce lives lost and collateral harm done to mothers, babies, families and communities.

Our strategy is to advance research, promote education, elevate awareness, and provide support for those impacted. We are frequently asked to speak, participate as a panelist, and lecture on amniotic fluid embolism and patient advocacy.

We are an international network of those affected by AFE, advised by a world-renowned medical advisory board comprising respected physicians, nurses, and expert researchers. The AFE Foundation also collaborates with other non-profit organizations, governmental agencies, prestigious academic institutions, and corporate partners to help carry out our mission and vision.

We have an expert community willing to participate in research and education. The Executive Director of the AFE Foundation serves on boards of various maternal health organizations. She is the Patient Advocate for the Council for Patient Safety in Women’s Health Care based in Washington D.C., Executive Committee Member for the California Maternal Quality Care Collaborative (CMQCC), Pregnancy Associated Maternal Mortality Review Committee (PAMR) Executive Advisory Member for the Institute for Perinatal Quality Improvement, and as a member of the expert panel for the Obstetric Life Support Pregnancy Resuscitation Program at Baylor College of Medicine. We are seen as the experts of AFE and revered as the primary resource for information as it pertains to AFE.

We have accomplished a great deal since 2008. Our research registry has garnered an international following and collaboration. We have published more than a dozen papers on AFE treatment and management, diagnostic criteria, subsequent pregnancies, risk factors, and how to support patients, family, and staff after a severe maternal event.

We have provided direct education to over 10,000 clinicians across the globe through lectures and panels at Grand Rounds, webinars, and medical society meetings.

More than 1,500 families are engaged in our organization and participate in various support groups, peer outreach programs, and advocacy training opportunities.

Our impact would not be possible without the generosity and engagement of our supporters. While we have much to be proud of, we know there is still a great deal of work to be done. AFE remains unpreventable and poorly understood. Mothers and their babies are still dying. We envision a world free from the devastation of AFE when all moms can experience motherhood.