Preeclampsia Foundation

Melbourne, FL   |  www.preeclampsia.org

Mission

Established in the year 2000, the Preeclampsia Foundation is a 501(c)(3) non-profit organization whose mission is to reduce maternal and infant illness and death due to preeclampsia and other hypertensive disorders of pregnancy by providing patient support and education, raising public awareness, catalyzing research and improving health care practices.

The Preeclampsia Foundation serves anyone in the United States and we often receive emails for support and education from other countries around the world.

Ruling year info

2001

CEO

Eleni Tsigas

Main address

3840 W. Eau Gallie Blvd, Suite 104

Melbourne, FL 32934 USA

Show more contact info

EIN

91-2073087

NTEE code info

Health (General and Financing) (E80)

Fund Raising and/or Fund Distribution (E12)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The Preeclampsia Foundation reduces maternal and infant illness and death due to preeclampsia, HELLP syndrome, and other hypertensive disorders of pregnancy by providing patient support and education, raising public awareness, catalyzing research and improving healthcare practices. We envision a world where preeclampsia no longer threatens the lives of mothers and babies.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Patient & Provider Education Education

There are many points where pregnant women have a potential educational intersection with care providers- childbirth educators, doulas, midwives, nurse-midwives and the traditional physicians and nurses they encounter in clinics, hospitals and medical offices. Each of those encounters is an opportunity to provide that woman with important information about the signs and symptoms of preeclampsia and to take action if she has concerns. Since 2010, the Preeclampsia Foundation has attended childbirth educating conferences and conducted an educational survey on what nurses, midwives and doulas provide in the way of preeclampsia patient education. The statistics, which will hopefully soon be published, show an alarming lack of regular preeclampsia education.

It is therefore obvious that while a physician-targeted approach to change clinical behavior around patient education is a priority for the Foundation, it is also important that we consider the entire continuum of prenatal care. The goal of this program is to elevate awareness of preeclampsia as a serious condition by provide specific teaching tools and techniques to other professionals likely to influence a pregnant women’s behavior using bona fide health literacy training.

Preeclampsia Foundation's programs include: an "Ask the Experts" feature--where we get expert opinions on FAQ, advocacy for more public awareness, sponsor meetings to create more professional awareness, and are working on building chapters in all 50 states and around the world.

Population(s) Served
Women and girls

Research efforts this past decade have produced exciting breakthroughs that may bring us closer to finding the cause of preeclampsia, help us improve diagnosis and prediction, and may lead to prevention and new treatments. But research needs far more support and funding if we hope to find the true cause of preeclampsia, as well as a way to prevent or cure it.

Part of The Preeclampsia Foundation's mission is to catalyze and accelerate research. Through small research funding of Vision Grants, participating in trials, collaborating with investigators, and building the world's only patient Registry, we hope to help research progress on hypertensive disorders of pregnancy.

Population(s) Served
Women and girls

The Promise Walk for Preeclampsia™ supports the mission of the Preeclampsia Foundation as we provide patient support and education, raise public awareness, catalyze research and improve health care practices for millions of mothers and their babies every year who are impacted by preeclampsia and related hypertensive disorders of pregnancy.

Population(s) Served
Families
Women and girls

Where we work

Awards

CINE 2008

CINE

Videos

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

number of patients supported via phone/email/Facebook Messenger

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Related Program

Patient & Provider Education Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Incoming Patient requests - supported via phone, email or Facebook

number of pieces of educational materials distributed

This metric is no longer tracked.
Totals By Year
Related Program

Patient & Provider Education Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Patient Education materials sent out (pieces)

number of volunteers involved in patient support and education

This metric is no longer tracked.
Totals By Year
Related Program

Patient & Provider Education Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The amount of volunteers providing peer to peer education and support

total forum posts

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Cumulative postings in the Forum

number of families attending in-person support group

This metric is no longer tracked.
Totals By Year
Related Program

Patient & Provider Education Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The amount of families participating in our in-person support groups

Number of unique website visitors

This metric is no longer tracked.
Totals By Year
Related Program

Patient & Provider Education Education

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

number of website page views

This metric is no longer tracked.
Totals By Year
Related Program

Patient & Provider Education Education

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

newletter open rate

This metric is no longer tracked.
Totals By Year
Related Program

Patient & Provider Education Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Percentage

newletter click rate

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Percentage

Facebook Reach

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Context Notes

Facebook Reaches – Post Likes, Comments, Shares (total for year)

Twitter Followers

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Context Notes

Cumulative amount

number of healthcare workers trained in latest PE guidelines, including patient education and support

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Healthcare professionals trained

Number of reports written/published

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Research papers published

number of participants in the Preeclampsia Registry

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The Preeclampsia Registry cumulative participants

Number of research studies conducted

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Research Collaborations

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

We envision a world where preeclampsia no longer threatens the lives of mothers and their babies.

We develop and distribute evidence-based tools and training to improve patient education and support, incorporating best practices in health literacy to reach vulnerable populations. We advocate for and participate in national, statewide and hospital systems' quality improvement programs. We provide direct support and broad advocacy for the people whose lives have been or will be affected by the condition – mothers, babies, fathers and their families. We also advocate on a national and international level for increased funding to support research into the cause, treatments and improved patient care and outcomes and actively participate in several coalitions to advance our knowledge of these complications of pregnancy. We directly fund young investigators with novel ideas and we have built a unique data and biobank registry which is being used in researchers' investigations.

We have a staff of 11, a government relations manager, over 1000 active volunteers, fundraising programs that are highly diversified, a 16-member highly regarded Medical Advisory Board, and an executive level volunteer Board of Directors. Our communication channels are among the most recognized and utilized in the field. We have over 2 million website views and over 870 thousand social media impressions. Our patient education materials have been presented in peer-reviewed high impact journals, and endorsed by and included in QI programs in California, New York, Oklahoma, Florida, as well as poised for similar uptake in other high birth rate states. Our staff and volunteers are trained as empathetic, credible authorities who are in communities across the country and the world supporting families in need and engaging with healthcare providers. We routinely collect and analyze patient data and perspectives to present the patient point of view in all matters.

In 2020, the Foundation distributed more than 361,000 patient education materials, and trained more than 138 maternal health patient advocates. We awarded two Peter Joseph Pappas Research Grants. We have 11 research studies underway, and more than 6,696 participants have enrolled in the Preeclampsia Registry. We launched our Racial Disparities Task Force with 18 top experts to created recommendations addressing the needs of BIPOC preeclampsia patients.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.

  • Who are the people you serve with your mission?

    Women and families who have been affected by preeclampsia or other hypertensive disorders of pregnancy.

  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Focus groups or interviews (by phone or in person), Community meetings/Town halls, Constituent (client or resident, etc.) advisory committees, Suggestion box/email,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve,

  • What significant change resulted from feedback?

    We formed an 18 person Racial Disparities Task Force to guide how we help/support BIPOC preeclampsia patients. These recommendations have been incorporated into our annual strategic and operations plans

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our funders, Our community partners,

  • How has asking for feedback from the people you serve changed your relationship?

    We continue to shift communications channels to engage our community where they want to be engaged at.

  • Which of the following feedback practices does your organization routinely carry out?

    We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We act on the feedback we receive,

  • What challenges does the organization face when collecting feedback?

    It is difficult to find the ongoing funding to support feedback collection,

Financials

Preeclampsia Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Preeclampsia Foundation

Board of directors
as of 02/08/2022
SOURCE: Self-reported by organization
Board co-chair

Mrs. Kim Smith


Board co-chair

Dr. Rakhi Dimino

Ob Hospitalist Group

Term: 2020 - 2024

Eleni Tsigas

Preeclampsia Foundation

Lindsay Dills

Babycenter.com

Clement Pappas

Federal Distilling

Kishin Kirpalani

Plugg LLC

Robyn D'Oria

Central Jersey Family Health Consortium

Chris Carlson

United Healthcare

Kim Smith

Tenet Healthcare

Rakhi Dimini, MD

Ob Hospitalist Goup

Todd McLaughlin

Association of Fundraising Professionals

Deb Kilday

Premier Inc.

Natalie Davis

United States of Care

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 9/16/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

No data

Disability

No data

Equity strategies

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.