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Companioning at a Time of Perinatal Loss: A Guide for Nurses, Physicians, Social Workers, Chaplains and Other Bedside Caregivers Paperback – May 1, 2004

4.8 4.8 out of 5 stars 137 ratings

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Intended for nurses, doctors, midwives, social workers, chaplains, and hospital support staff, this guide gives caring and practical advice for helping families grieve properly after losing a child at birth. As the special needs of families experiencing perinatal loss are intense and require more than just the bereavement standards in most hospitals, this handbook offers tips and suggestions for opening up communication between caregivers and families, creating a compassionate bedside environment, and helping with mourning rituals. Encouraging continual grief support, these specific companioning strategies can help ease the pain of this most sensitive situation.

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About the Author

Jane Heustis, RN, is the Pathways Perinatal Loss Support Coordinator at Methodist Hospital and the parish nurse at Irvington United Methodist Church in Indianapolis, Indiana. She lives in Indianapolis, Indiana. Marcia Meyer Jenkins, RN, is a childbirth educator and perinatal bereavement coordinator at St. Francis Hospital and parish nurse at Russellville Community Church in Russellville, Indiana. She lives in Indianapolis, Indiana. Alan D. Wolfelt, PhD, serves as the director of the Center for Loss and Life Transition. He writes the "Children and Grief column for Bereavement Magazine and has appeared on The Oprah Winfrey Show, Larry King Live, and Today. He is the author of Healing a Teen's Grieving Heart, Healing Your Grieving Heart, and Understanding Your Grief. He lives in Fort Collins, Colorado.

Excerpt. © Reprinted by permission. All rights reserved.

Companioning at a Time of Perinatal Loss

A Guide for Nurses, Physicians, Social Workers, Chaplains and Other Bedside Caregivers

By Jane Heustis, Marcia Jenkins

Center for Loss and Life Transition

Copyright © 2005 Jane Heustis and Marcia Jenkins
All rights reserved.
ISBN: 978-1-879651-47-0

Contents

Title Page,
Copyright Page,
Dedication,
FOREWORD,
PREFACE,
INTRODUCTION,
CHAPTER ONE - FAMILIES: BECOMING PART of THEIR STORY,
CHAPTER TWO - CAREGIVERS: ENTERING INTO the WILDERNESS,
CHAPTER THREE - ENVIRONMENT: CREATING a SPACE for MOURNING,
CHAPTER FOUR - COMMUNICATION: BEGINNING the CONVERSATION,
CHAPTER FIVE - STRATEGIES: PRACTICING the ART of CARING,
CHAPTER SIX - MEMORIES: MAKING the MOMENT LAST a LIFETIME,
CHAPTER SEVEN - DISCHARGE: PREPARING for the WORK of MOURNING,
CHAPTER EIGHT - OTHER PREGNANCY LOSSES: SUPPORT WHEN THERE IS "NO BABY",
CHAPTER NINE - AFTER DISCHARGE: CONTINUING COMPANIONING,
CHAPTER TEN - FINAL THOUGHTS: FINDING JOY,


CHAPTER 1

FAMILIES: BECOMING PART of THEIR STORY


John and Mindy experienced the stillbirth of their first baby at 40 weeks gestation. This is their story, told at a support meeting months later.

They arrived at the hospital early on Monday morning. Contracting since the evening before, they showed up in triage — video camera rolling — ready to greet Matthew, their soon-to-be-born son.

Both were so excited they didn't notice the nurse's difficulty finding the fetal heart rate. After a few tries, the nurse announced she was going to get an ultrasound. They weren't even thinking about anything going wrong. The doctor had had trouble a few times in the office because of Mindy's larger size. When the resident doctor, a person they had never met before, spoke the words "I can't find a heartbeat," Mindy said, "Can't find it? Where did it go?" As soon as she said it, she saw a look of horror on John's face. The doctor continued, "I'm sorry, Mrs. Harris, but your baby has died."

Mindy thought: this isn't possible; the baby was moving just this morning. Besides, she had done everything her doctor asked and read every book on pregnancy. She asked for another doctor. When a second doctor verified the diagnosis, she asked for another ultrasound machine. Not until Mindy's own doctor came did she begin to believe. John sat by the bedside dumbfounded, unable to speak. Mindy thought about crying but couldn't. Rather she felt someone had lifted her up and put her someplace else. She knew she was in the bed and she saw people talking but couldn't hear what they were saying. John experienced the opposite: it was as if the walls of the cubicle closed in, trapping him, forcing him to hear every word. Thoughts of losing his wife as well as his son raced through this mind.

Mindy was quickly moved to a labor room. An IV was started and epidural placed. Staff talked to her about seeing the baby at delivery, but their words were garbled to her. John stood nearby, not sure what to do. When the chaplain suggested he contact family, John mechanically made calls, telling them "there might be something wrong with the baby." He couldn't make the "real words come out."

Matthew was born about 12 hours later. They decided to wait to hold him. Mindy said she was too exhausted from the delivery and John agreed. Looking back, they realize they both were too afraid — afraid of what he would look like, afraid of what his lifeless body would feel like, and, most of all, afraid the pain would be too overwhelming. It was their nurse who helped

Product details

  • Publisher ‏ : ‎ Companion Press (May 1, 2004)
  • Language ‏ : ‎ English
  • Paperback ‏ : ‎ 144 pages
  • ISBN-10 ‏ : ‎ 1879651475
  • ISBN-13 ‏ : ‎ 978-1879651470
  • Item Weight ‏ : ‎ 8.8 ounces
  • Dimensions ‏ : ‎ 5.25 x 0.4 x 8.25 inches
  • Customer Reviews:
    4.8 4.8 out of 5 stars 137 ratings

Customer reviews

4.8 out of 5 stars
137 global ratings

Top reviews from the United States

Reviewed in the United States on October 17, 2016
As the mother of a stillborn child, my wish is that all caregivers on the L&D; floor - doctors, nurses, technicians, social workers, even housekeeping - will read this book to equip themselves with the knowledge and compassion to help guide a family through one of the most devastating experiences of their loves. I was blessed that the people who took care of me followed this standard of care, and it made a huge difference in my ability to heal and to survive the depths of my grief. (I unfortunately know too many families who were not that lucky.) If you are a caregiver to bereaved parents, thank you for all you do - and you definitely won't regret picking up this book.
3 people found this helpful
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Reviewed in the United States on April 16, 2012
I received this book about a month ago and finished reading it within just a few days. The authors are writing specifically for nurses and others who will be companioning families when they lose a baby in the hospital. I see this as being applicable for doulas as well.

As a doula who assists women who have lost childen prior to delivery, it is nice to have guidance and ideas about how I can help the family make this the most gentle, loving situation possible given the sad circumstances. But as a doula, I help bridge the transition from home to hospital back to home- this book does not cover everything that would be helpful in my work, but it doesn't propose to.

As a resource for how to companion families experiencing perinatal loss in the hospital, this book is second to none. Recommending it for a perinatal loss doula training I am helping to design.

All the best...
3 people found this helpful
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Reviewed in the United States on October 24, 2014
This book should be required reading for all professionals working with people facing perinatal (or post natal) loss. It's clear, concise, and so very informative. I would love it to be updated to include information specific to Doulas. I read it for coursework to become a Bereavement Doula at Stillbirthday.com and found the book to be an excellent suppliment to the amazing information I was learning in the course.

This book discusses the emotional and compassionate aspect of dealing with parents facing a loss. So many times care providers who are not trained in what to do and say end up making the experience worse for these families, and at a time of such despair, it is paramount that the professionals providing care know how to come along side these families.
4 people found this helpful
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Reviewed in the United States on March 27, 2021
It took me a while to get through this book because of all the crying I did while reading. It is sad, it is enlightening, it is educational, it is amazing and gives the exact perspective I have of caring for the dying and bereaved.
Excellent book. Recommend to everyone.
Reviewed in the United States on October 13, 2021
It allows you to take a step back and be a little more empathetic to those who are grieving.
Reviewed in the United States on June 25, 2013
I like to joke that this is the book I would have written if I weren't too lazy to do it. I work in this field and recognize that this introduction is pivotal for those new to providing Perinatal Loss support and helpful for those who consider themselves seasoned in this care. It is the only book I know of that speaks so specifically to professional bedside caregivers and introduces very hard topics in very safe and helpful ways. If you are an MD, RN, SW or Chaplain and Maternity / Newborn care is part of your responsibility then you need to get a copy. When you are done, pass it around work.
Reviewed in the United States on April 5, 2019
As a LDRP nurse, some of the most rewarding moments come from caring for moms suffering perinatal losses. When you make even a small difference in their life it is such a blessing. I feel honored to be allowed to be a small part of their lives.
Reviewed in the United States on November 26, 2019
This is such a powerful book! I just finished it for an upcoming pregnancy and infant loss course I am attending and this was one of the required books. It’s emotionally hard to read at times , but so necessary.

Top reviews from other countries

Angie Hallam
4.0 out of 5 stars Great book
Reviewed in Canada on November 14, 2020
This book is very informative and very well written. Excellent for birth workers or those wanting to understand infertility and pregnancy loss.
mrs mair smith
5.0 out of 5 stars Fast delivery, product as described.
Reviewed in the United Kingdom on March 15, 2019
Fast delivery, product as described.
Book is great