TS Alliance

@tsalliance

The Tuberous Sclerosis Alliance is dedicated to finding a cure for tuberous sclerosis complex, while improving the lives of those affected.

United States
tsalliance.org
Joined August 2008
1,107 Photos and videos Photos and videos

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  1. Pinned Tweet
    27 Mar 2020

    For all of our resources, including a FAQ for parents and caregivers, resources for physicians, and recordings of our ongoing webinar series, visit:

    1 retweet 5 likes
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  2. 8 hours ago

    Did you miss 's performance on American Idol last night? Re-watch it now here:

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  3. Retweeted
    18 hours ago

    Our friends at E-TSC (European TSC) are putting together a short video to highlight what life is like living with TSC. Share your photos, finishing the sentence 'Living with TSC is...' and you might be included in the video! Email admin@tuberous-sclerosis.org or put it below. 👇

    6 retweets 9 likes
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  4. 11 hours ago

    Congrats and the !

    Thrilled to share with you my postdoctoral work in the where we identified a new metabolic pathway under mTORC1! Thank you to all of our great collaborators and the for supporting me!
    1 reply 2 likes
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  5. 11 hours ago

    Excited to share our new article published in Molecular Cell on the regulation of S-adenosyl-methionine synthesis and m6A RNA methylation by mTORC1 signaling. Congrats to the brilliant postdoc, , for pulling this project off! 1/13
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    3 likes
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  6. 12 hours ago

    Join our friends at the Public Advisory Roundtable, chaired by President and CEO , for a Meet The Experts Forum on "Going Virtual with Patients and Families" on Saturday, May 15 ! Register by May 7:

    1 retweet 1 like
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  7. Mar 21

    Will you Step Forward with us? Register today for our Global Virtual Walk-Run-Ride.

    1 reply 4 likes
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  8. Mar 20

    How will you Step Forward? Register today for our Global Virtual Walk-Run-Ride.

    2 likes
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  9. Retweeted
    Mar 19

    Resiliency and adaptability. Two very important qualities for surviving COVID as a nonprofit. Thank you for a fabulous afternoon sharing best practices on Successful Nonprofits Podcast.

    1 retweet 8 likes
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  10. Retweeted
    Mar 19

    day for ..so proud of our young man!! He participated in his meeting & is crushing 📚 We love his team & are grateful for their expertise!

    1 retweet 5 likes
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  11. Retweeted
    Mar 19

    How I’ve beenfeeling bout y’all ASHFOEOSHAGDUEBDLSJFKFH Hollywood Week is right around the corner!!! Sunday AND monday on

    1 reply 4 retweets 14 likes
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  12. Mar 19

    Step Forward with us May 15 & 16. Register today for our Global Virtual Walk-Run-Ride.

    2 retweets 2 likes
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  13. Retweeted
    Mar 18

    Registration is now open for the 2021 . This 2-day virtual event brings together patients and families to learn, network and participate in wellness/entertainment sessions. Register now:

    11 retweets 14 likes
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  14. Retweeted
    Mar 18

    So proud of Director of Government and Global Katie Smith for being a part of this groundbreaking worldwide initiative!

    Highlights from the Panel of Experts Meeting for North & Central :📢"In a lack of national integration challenges care for . In the access to expertise and therapies remains a barrier to and .
    1 retweet 12 likes
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  15. Mar 18

    Will you Step Forward? Register today for our Virtual Walk-Run-Ride.

    1 retweet 2 likes
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  16. Retweeted
    Mar 16

    Last week, the held a virtual roundtable discussion entitled “Reproductive Health and Lung Diseases – A Discussion with PCD and LAM Experts" featuring LAM expert Nishant Gupta, MD and PCD expert Deepika Polineni, MD, MPH.

    3 retweets 8 likes
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  17. Mar 16

    Join Us TOMORROW for a  E-Webinar! Managing Treatment & TAND Specialists Wednesday, March 17 2 PM EDT Presented by Billy Holcombe, PhD Register:

    3 likes
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  18. Retweeted
    Mar 15

    Dup15q Alliance has 2 spots left in the Chicago Marathon (Sunday, October 10, 2021) as a charity runner!! If you need an entry please reach out to believe@dup15q.org.  Charity entries must be claimed by March 25th!  

    1 retweet 3 likes
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  19. Retweeted
    Mar 15

    New : "Driving Cures for Rare Diseases: The Role of Patient Nonprofits in Engaging Industry and Academic Researchers to Accelerate Drug Development” on March 31 at 2:30pm ET. Register:

    1 reply 10 retweets 32 likes
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  20. Mar 15

    Today kicks off , a global campaign by to foster support for brain science. Brain research holds the key to combat some of the worst manifestations of TSC, including epilepsy, autism & tumor growth. Learn about at:

    3 likes
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  21. Retweeted
    Mar 15

    We’re launching a new project exploring how we can support better collaboration and connection in , and unlock the full potential of advocacy-industry relationships. We’ll share our findings but, for now, find out more on our website.

    1 reply 1 retweet 13 likes
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