Dravet Syndrome Foundation

@curedravet

The mission of DSF is to raise funds for research into Dravet syndrome and related epilepsies, while offering support to patients and families.

Cherry Hill, NJ
સપ્ટેમ્બર 2009 જોડાયા

ટ્વીટ્સ

તમે @curedravet અવરોધિત કર્યું છે

શું તમે ખરેખર આ ટ્વીટ્સ જોવા માંગો છો? ટ્વીટ્સ જોવાથી @curedravet અનાવરોધિત કરવામાં નહીં આવે

  1. 2 સપ્ટે

    Step Towards a Cure September 18th - 25th! Join us for a virtual 1-mile walk, family stroll, or run across the United States that everyone can participate in! Register to create your very own team today and together we'll . 💜

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  2. 2 સપ્ટે

    We know preparing for surgery can cause worry & anxiety when your loved one already has underlying health concerns. 💜 We've compiled some tips, resources, and considerations to help you feel more prepared. Visit to learn more.

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  3. એ પુનટ્વીટ કરી
    1 સપ્ટે

    Will soon be talking at the (online) about and disability

    , , અને 7 અન્યો
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  4. 31 ઑગસ્ટ
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  6. 30 ઑગસ્ટ

    Thank you to The Rainbow Girls for hosting their virtual walk and raising over $1200 for DSF and the community!!

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  7. 30 ઑગસ્ટ

    ICD-10 codes are used by medical providers to track health statistics about Dravet and to assist in billing. Have you downloaded our handout with ICD-10 code information yet? Get yours here! 👉

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  8. 30 ઑગસ્ટ

    Thank you to Jim Brennan of for discussing the upcoming fundraiser, Dance for , on The Charlie Brennan Show this morning! Jump to the 28:00 minute mark to hear the full interview and learn how you can join us on Oct 22nd -

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  9. 27 ઑગસ્ટ

    We're here to help you learn about the past, present, and future of Dravet syndrome and the Dravet Syndrome Foundation. Stay up to date on our current research, treatment options, and community activities in our blog!

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  10. 26 ઑગસ્ટ

    Comment a 💜 below if you're following us on all of our other channels!

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  11. 26 ઑગસ્ટ

    The Virtual Backpack is a one-stop resource that links out to the information you need to help you prepare for Back to School or IEP meetings! Start the school year right!

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  12. 24 ઑગસ્ટ

    Know someone who has a family member that was recently diagnosed with ? Newly diagnosed families who sign up with the DSF Family Network will receive a packet with tools & resources to help care for their child. Tag someone who needs to know this!

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  13. 24 ઑગસ્ટ

    Join us on August 30 for “Caring for a Loved One with Developmental and Epileptic Encephalopathy: Harnessing the Power of Knowledge to Enhance Diagnosis, Reduce Seizures, and Improve Overall Quality of Life”. Register to watch live or on-demand!

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  14. 24 ઑગસ્ટ

    Have you signed up for our 8-week curriculum to promote exposure of syndrome in adult neurology residency training? Participants will be compensated with a $100 gift card after completion of the curriculum! Interested in participating? Visit:

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  15. 23 ઑગસ્ટ

    Medical professionals! Can you list 4 diagnostic criteria for Dravet syndrome in both pediatric and adult patients? If not, our CME-accredited webinar series is for you. Sign up for free here:

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  16. 20 ઑગસ્ટ

    Thank you Ryker's Rally for all of your hard work raising funds for DSF and the community, as well as reminding us to always !

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  17. 19 ઑગસ્ટ

    Show us your loved ones you fight for. 💜

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  18. 19 ઑગસ્ટ

    Let's raise awareness and continue the fight for ! 💜

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  19. 18 ઑગસ્ટ

    We’ve joined the Child Neurology Foundation to help shorten the diagnostic journey. DSF believes that a diagnosis is EMPOWERMENT. What does a diagnosis mean for you?

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  20. 17 ઑગસ્ટ

    You can also watch speak about Syndrome in Adult Patients in our Listen+Learn Series! Register to watch:

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