I am not talking about extreme CFS--I think we know what happens to them--but severe CFS, where people can ostensibly move, but not perform basic tasks of living such as lifting objects and opening packages without crashing? I assume they just have to power through? What has been the fate of people like this? Do they eventually just die of starvation when they lose the ability to move? This is not a question of morbid curiosity by the way, I have severe CFS, no income, no transportation, no husband, and old parents who don't accept me ,so yeah, that's me! Thanks! Trinity
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Our top priority as a community is to be a calm, healing place. We do not allow rudeness, snarkiness, hurtful sarcasm, or argumentativeness. Please remain civil in all discussion.
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Our original posting policy describes this in more detail.
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Solicitation of patients to participate in research must be accompanied by a verifiable faculty sponsor contact at a recognized research institution, either in the post itself, or shared with the moderators for verification prior to posting. If the researcher or institution are well known to the ME/CFS community, this is not necessary. The purpose of this rule is to protect patients from giving their personal and health information to an imposter, and to ensure proper participant privacy.
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