- Annual Fund Goal: 61%
New Cases of Pediatric Brain Tumors in the US in 2022
Adolescents and Young Adults Living with a Brain Tumor in the US
Online Family Groups and Programs CBTF held in 2022
Number of Families CBTF Helped in 2022
The Difference We Make
COMMUNITY
A pediatric brain or spinal cord tumor impacts the entire family. CBTF builds a community so no family member goes through the journey alone.
PROGRAMS
CBTF is the nation’s leader in family programs for those impacted by brain and spinal cord tumors. CBTF provides unique programs for survivors, caregivers and siblings throughout their journey.
RESOURCES
No family should feel like they are starting from square one. CBTF will link you to the resources you need throughout the entire brain and spinal cord tumor journey.
IMPACT
As founders of the Children’s Brain Tumor Network, we will never give up on working to find a cure and support those living with the impact of a brain or spinal cord tumor diagnosis and its treatment.
Latest News and Articles
Finding Strength & Purpose Through Grief: How Running Became My Healing Journey
In the midst of despair and heartache, I found solace in running. After my son’s devastating battle with a brain tumor, it felt like my world had crumbled. But as I laced up my running shoes, something incredible happened. Running became my refuge, a place of hope, a defiant act against the impossible. It gave me control when everything else seemed uncontrollable. Every step was a tribute to my sweet boy, a reminder that life, despite its challenges, is a gift worth cherishing. I don’t run for medals; I run for Rohan, infusing profound meaning into every mile.
Running for Eli: Why I Chose to Run the NYC Marathon with Team CBTF
By Heather Mahnken On April 19, 2017 my youngest son was diagnosed with a brain tumor. It was one of my scariest...
Glioblastoma Breakthrough: New Fusion of Quantum Theraputics Electrically Charge Molecules to Target and Destroy Brain Tumor Cells
Discover how electrically charged molecules are changing the game in brain tumor treatment. Researchers at the University of Nottingham are pioneering a groundbreaking approach, using quantum biology to target and destroy cancer cells. Learn about this remarkable breakthrough in glioblastoma research.
Revolutionary Sonodynamic Therapy Offers Hope in Glioblastoma Battle: First Participant Treated in NYU Langone Study
Dr. Dimitris G. Placantonakis of NYU Langone Health’s Perlmutter Cancer Center leads a groundbreaking trial in glioblastoma treatment. Using noninvasive sonodynamic therapy, ultrasound-induced luminescence targets cancer cells without surgery. Promising Phase 1 results suggest extended survival for recurrent or progressive glioblastoma patients.
MONTHLY ACTIVITIES AND GROUPS
Bereaved Parent Group
This is an online group for all bereaved parents. This group meets the third Tuesday of the month at 9PM Eastern/6PM Pacific. Please join our Bereavement Facebook Group to participate.
Bereaved Parent DIPG/DMG Group
In collaboration with the Marc Jr. Foundation, This group is for bereaved parents and caregivers of children who had a DIPG/DMG diagnosis. This group meets the fourth Monday of the month at 9PM Eastern/6PM Pacific. Please contact Jessica Elder at jelder@cbtf.org to join.
CBTF Cooks
This two-class workshop for surivors and siblings of all ages will teach you how to create a healthy and delicious meal! Participants will receive a gift card for groceries. This group meets the last Tuesday and Thursday of the month at 7PM Eastern/4PM Pacific. Space is limited. Register here.
College Chat
This group is for survivors preparing to enter or currently attending college. Topics vary from month to month and include organization, social life, accommodations and more. This workshop is held the third Wednesday of the month at 7PM Eastern/4PM Pacific. Register here.
Creative Matters Art Workshop
Each month CBTF hosts a fun, interactive, online art program for survivors and siblings of all ages. Participants receiver an art kit with supplies for the project in the mail. This workshop is held the fourth Sunday of the month at 3PM Eastern/12PM Pacific. Register here.
DIPG/DMG Parent Group
This group is for parents and caregivers whose children have been diagnosed with DIPG or DMG. This group meets the third Wednesday of the month at 8:30PM Eastern/5:30PM Pacific. Register here.
Fathers of Survivors Group
This group for fathers of brain tumor survivors gives them a place to connect over a shared experience which can be challenging to find during their journey. This group meets bi-monthly. Register here.
Life After High School has merged with Stepping Forward
This group for young adult survivors (ages 18+) navigating life as a young adult brain tumor survivor has merged with Stepping Forward. Register here.
Mindfulness and Light Yoga
Sondra Albert leads a mindful movement class coordinating movement and breath to relax the body and reduce the mind’s constant chatter. This includes a series of gentle yoga poses with a focus on our breath as we move. This class is held on Mondays at 8PM Eastern/5PM Pacific. Survivors and family members of all ages are welcome. Mindfulness is currently offered on a limited schedule. Contact kgiacin@cbtf.org with questions.
Parents of Teen Survivors Group
This is a group for parents of teen survivors ages 13-17 at all stages of treatment and survivorship. this group will meet on the third Tuesday of the month at 8PM Eastern/5PM Pacific. Register here.
Parents of Young Adults Group
This group is a place for parents of young adult survivors (ages 18+) discuss challenges related to life post-diagnosis. This group meets the fourth Tuesday of the month at 8PM Eastern/5PM Pacific. Register here.
Parents of Young Survivors Group
This is a group for parents whose children are 15 and younger at all stages of treatment and survivorship. This group meets the second Wednesday of the month at 8PM Eastern/5PM Pacific. Register here.
Read to Dogs Program
CBTF’s Read to Dogs Program is for elementary and middle school age survivors and siblings of all reading abilities. Your child will be paired with a therapy dog and its person and will spend time reading out loud to an attentive, non-judgmental dog. It’s all about gaining confidence and having fun. This group meets the second Thursday of the month at 6:30PM Eastern/3:30PM Pacific and the third Thursday of the month at 7PM Eastern/4PM Pacific. Email shaferko@gmail.com to attend.
Stepping Forward Young Adult Survivor Chat
This is a monthly groups for young adult survivors (ages 18+). Our goal is to build friendships and provide meaningful tools and information for life during and after high school and beyond, including career advice, advocacy, and support, all while having fun! This group meets the third Wednesday of the month 6:30PM Eastern/3:30PM Pacific. Register here.
Teen Survivor Chat
Join other teenagers (ages 13-18) to make new friends, have fun, talk about life as a teenager, and share experiences and tips with others who’ve had a brain tumor. This group meets the fourth Wednesday of the month at 7PM Eastern/4PM Pacific. Register here.
Young Adult Survivor Chat
Take part in games and conversation with other young adult survivors (ages 18+). This group meets on Fridays at 3PM Eastern/12PM Pacific. Register here .
Young Survivor Chat
In this group for survivors (ages 8-15), there are opportunities to meet other children with brain tumors, practice social skills, and learn coping skills through games and conversation. This group meets the first Saturday of the month at 1PM Eastern/10AM Pacific. Register here.
FEATURED EVENTS
$35 for 35 Years of CBTF
CBTF's 4th Annual
Holiday Webathon
Generously Sponsored by DayOne Biopharmaceuticals
To mark this incredible milestone, CBTF is launching the “$35 for 35 Years” donation campaign. We invite supporters, old and new, to contribute $35 (or any amount you can) to help us continue our vital work for the next 35 years and beyond. Join us in making a difference in the lives of these brave children and their families. Together, we can ensure that no child faces the challenges of a brain tumor alone. Please consider making a donation today and help us reach our $35,000 goal. Your contribution will bring hope, healing, and brighter futures to those who need it most.
Join us on Sunday December 17th from 6:00 PM - 9:00 PM eastern for our 4th Annual Holiday Webathon! It's a chance to celebrate the holiday spirit and make a meaningful impact by supporting the Children's Brain Tumor Foundation. Through heartfelt testimonials and generous contributions, we contribute to the vital work of the foundation, providing warmth and hope to children and their families facing brain tumors. Your participation creates moments of love and support that resonate not just during the holiday season but beyond. Join us for a festive evening filled with holiday singalongs, stories, games, raffles, and more! It's a special celebration that comes just once a year, and you're invited!
Item of the Month
The holiday season is here, and our 4th Annual CBTF Holiday Webathon is just around the corner! Gear up in style and support a great cause! Get your Holiday Webathon merch today!
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