Fibroid Network UK    Fibroids

@fibroidsupport

Network UK Patient Led Advocacy support News, Research, Events, options 20yrs campaign4betterEvidence, Outcomes, QOLY Uterine

London
Joined July 2015
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  1. Pinned Tweet
    Aug 14

    Thread👇here Uterine Fibroids are benign, non cancerous womb tumours. Many are symptomless & don’t always need treatment There’s No UK Fibroid Treatment Guideline, despite requests No Drug treatments permanently prevent progression Fibroids vs Womb removal is available

    Replying to @fibroidsupport @MaggietheMezzo and 21 others
    What You Need to Know About ? Explained by Dr Cathryn Chan 2013. It’s pre Morcellator restriction but types, Fertility effects & What fibroids are, is useful 🎥Video
    1 reply 2 retweets 5 likes
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  2. Retweeted
    Apr 5
    Replying to and

    Double Blind, Prospective study suggests Vitamin D supplementation in women with fibroids with low Vitamin D, may help reduce uterine size New research suggests it may be protective for respiratory

    2 replies 5 retweets 3 likes
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  3. Retweeted
    5 hours ago

    COVID-19 patients who get enough vitamin D are 52% less likely to die of the infection, study finds

    53 replies 221 retweets 365 likes
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  4. Retweeted
    12 hours ago

    Vitamin D sufficiency was linked with a significantly decreased level of inflammatory markets, and higher blood levels of immune cells, in new research from Boston University's school of medicine

    88 replies 386 retweets 722 likes
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  5. Retweeted
    3 hours ago
    Replying to and

    Study of 5154👩🏻 undergoing hysterectomy with Open Morcellation, mainly for (aka Leiomyoma) & Heavy Periods found that 20% had New after surgery which wasn’t there prior

    1 reply 1 retweet
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  6. Retweeted
    4 hours ago
    Replying to and

    is often diagnosed during or after surgery or following Fibroids , or Hysterectomy, open morcellation. The relationship between these conditions, needs more research & Definition

    Replying to @moirahughes87
    A study suggests 87% of women with symptomatic & pain, were also found to have Endometriosis Shared issues,but Treatments are often not effective for both. Good Diagnosis can show issues. Ultrasound can also find
    3 replies 1 retweet 1 like
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  7. Retweeted
    4 hours ago
    Replying to and

    Why do some Patients experience upstaging of disease? Is it related to use of Unconfined Power Morcellation? It has already been identified as a problem for patients & is banned by due to spread of removed tissue

    With unconfined power morcellatation the endometrium and myometrium cells are dispersed in the peritoneal cavity. Understanding the pathophysiology of endometriosis makes this a very logical cause of endometriosis
    1 reply 1 retweet
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  8. Retweeted
    Feb 17

    Excellent letter outlining the need for informed patient consent prior to morcellation. However, 'it may be time for fibroid management to be concentrated in specialist fibroid centres, much like endometriosis surgery' isn't strictly accurate, as many endo patients will confirm.

    A National Survey: Evaluating Current Practice and Risk Assessment in Morcellation Amongst Gynaecologists in the United Kingdom –Letter to the editor, fulltext link:
    1 reply 1 retweet 5 likes
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  9. Retweeted
    Sep 23

    We also talk a lot about advocating for yourself with doctors if you know something isn’t right. Something we don’t do enough of - men and women. Thanks for having me guys. Ps really loved talking to men about this.

    This week on How Do You Cope talks about her experience of , a condition that affects 1 in 10 women, that’s approx 176 MILLION WOMEN. It’s a cruel & incredibly painful condition that she spoke about with great honesty and humour
    12 replies 13 retweets 177 likes
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  10. Retweeted
    5 hours ago
    Replying to and

    I personally think it’s far more than 1 in 10, so many women I know have it and when you consider how long the diagnosis takes (average of 7 years, although for a lot of women I know it’s over 20) Also so many women think painful periods are normal so don’t even look into it

    1 reply 3 retweets 18 likes
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  11. Retweeted
    4 hours ago
    Replying to and

    There’s also an increase in patients having New Pain & Iatrogenic Endometrial like tissue growth outside the womb, after, minimal surgeries ie laparoscopic myomectomy & hysterectomy aka Perineal leiomyomatosis disseminata. Needs Review & Audit

    Replying to @RCObsGyn
    Not removing tissue, from the abdomen, after Endo operations, could also spread benign Endo tissue to other organs RCOG Laparoscopic WebSurvey
    1 reply 3 retweets 1 like
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  12. Retweeted
    Sep 22

    For more on risk reduction, see guidelines:

    The WHO Guidelines on risk reduction of cognitive decline and dementia provide evidence-based recommendations on lifestyle behaviours and interventions to delay or prevent cognitive decline and dementia.
    , and
    5 retweets 12 likes
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  13. Retweeted
    Sep 23

    If you have missed it, no worries! You can still access the whole forum pre-recorded material, and in the next days we will make available the entire recording of the live event!

    1:12
    Best of day 1 Join us today live at 2PM CET
    7 retweets 18 likes
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  14. Retweeted
    6 hours ago

    "Best of" the International Forum on Women's Brain and Mental Health 2020 via still can be watched for the next 2 months at

    2 retweets 2 likes
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  15. 5 hours ago

    Many thanks for sharing the Video🎥 Highlights of the International Forum on Women’s Brain & Mental Health 2020 on :

    "Best of" the International Forum on Women's Brain and Mental Health 2020 via still can be watched for the next 2 months at
    1 retweet 1 like
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  16. Retweeted
    Sep 24

    We have so much more to learn about endometriosis.

    1 reply 2 retweets 6 likes
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  17. Retweeted
    Sep 25

    TY for supporting the campaign: 'It's essential that our young people receive education which helps them understand...periods, menopause and their impact on women('s) wellbeing...meeting the goals of a healthier and more equal Wales'

    1 reply 6 retweets 8 likes
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  18. Retweeted
    Sep 25

    Please RT,

    4 retweets 3 likes
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  19. Retweeted
    22 hours ago

    Think MDs are the high earners in healthcare? Think again. It is mostly CEOs of medical device/pharmaceutical companies.

    3 replies 20 retweets 62 likes
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  20. Retweeted
    Sep 25

    Action is required and quickly 8 times has bought this to the house. stories shared from just last week means women are continueingly denied informed consent. Who are to decide our fate! time to step up with the government

    1,500 stories of painful appeals to for action not sympathy
    2 replies 4 retweets 9 likes
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  21. Retweeted
    22 hours ago

    We're on countdown! ENVIRONMENSTRUAL WEEK 🩸🩸🩸 is coming.... Kicking off on the 19th October - join us to make healthy & sustainable period products available to everyone. Find out more:

    4 retweets 7 likes
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