patient: so the symptoms I've been having are—
doctor:
God I wish that were me. Literally every single person in my family has a thyroid disease and my doctor still claims my symptoms are "just anxiety" and refuses to test me
turns out doctors will test your thyroid if you have literally anything except a thyroid problem
You guys know you can switch doctors or demand that they indicate in your chart that they are refusing to test you, right?
I spent my entire adolescence going around to over 30 different absolutely clueless specialists more than half of whom insisted on testing my thyroid function despite being able to see in my records that it had already been tested a dozen times but thanks I guess
"Just switch doctors and make demands "??? In this economy???
Learning to advocate for yourself at the doctor is one of the biggest hurdles of early chronic illness. Here are some things someone could practice saying (practice with family, friends, or other safe people who will play this out with you):
“my thyroid function was checked recently. That information should be accessible to you in my chart. If it isn’t, please let me know so that I can get you those results. In the meantime, what else might be causing my symptoms?”
“Ive explored that avenue with other physicians. what else might be causing my symptoms?”
“I’d like to test ____. Can you order that one?” [if they say no] “Please note in my records that I requested that test and you declined to order it. I’ll wait here while you do that.” [then, ask the nurse for an after-visit summary that includes the doctor’s notes to check that they did it]
When in doubt- bring a friend!! There’s no reason why doctors appointments have to be solitary, and a friend can help you remember stuff you wanted to say, remember stuff the doctor said back, be brave and advocate for yourself, and if necessary, advocate for you.
I’ve recently had to explain “I have been suffering from anxiety/panic attacks for more than 20 years, so I know what those feel like. This is new.”
It worked, though.
Write things down before and during. Bring notes on what you need to talk about. Take notes on what the doctor is telling you.
If you request your records they have 30 days to comply or it’s a HIPPA violation. They can charge up to 10 cents per page for printing cost.
It can also be difficult to self-advocate if you have mental health problems on record. I know I’ve had doctors who pointed to my diagnosed anxiety disorder to claim I was just a hypochondriac when I was so sick it was hard to WALK.
One thing that seriously helps:
If you are having physical problems misconstrued as mental illness and have a good therapist or psychiatrist, ask them to vouch for you in writing.
My psychiatrist writing me a note that said, “actually my professional opinion is that this person’s anxiety is well-controlled, please take that into account and FUCKING BELIEVE HER PLEASE”, and he was listened to more than I was.
If you can get other professionals on your side it really is helpful.
Is it deeply fucked up that some doctors won’t trust that you know your own body? Yes. But in the moment, trying to find other ways to get yourself heard can be a necessary sacrifice. Do that first and lodge any complaints later — ESPECIALLY if you think you’ve been discriminated against or dismissed base on race/age/gender because that happens a ton.
And ALWAYS keep a paper trail.
EDIT: Even if you’re not dealing with illness actually I’d love if people would rb to spread it. Self-advocacy is hard and working needlessly difficult systems to get vital help all alone can be a deeply demoralizing experience.