Zeldman on Web & Interaction Design

I’ve had Coronavirus for five weeks. My daughter has it, now, too. Her mom’s had it for weeks, but only recently recognized it for what it is. It sneaks up on you, disguised as a persistent headache, a seasonal allergy, some other unpleasant but harmless annoyance—until you can’t stand at the sink washing dishes for five minutes without immediately needing to lie down and catch your breath. Then you know.

It’s not just here in New York. A dear family member who lives far away (and who also has an underlying health condition) has come down with it. I think of them with hope, terror, denial, panic. We ping each other. You still there?

Some things are getting better.

For four weeks I could not get a grocery delivery slot from Fresh Direct, no matter what time of day or night I tried. This week I finally secured one. Four weeks ago I could not get Tylenol for love of money. This week I was finally able to order some—and it arrived today.

The grocery delivery slot means more workers are available, fewer are out sick. The arrival of the Tylenol (actually a generic Acetaminophen—you still can’t get branded Tylenol) suggests that supply chains and delivery chains may be doing a little better than they were during the first four weeks of the crisis. (By which I mean the first four weeks of March, even though the crisis was actually upon us in January—but we civilians didn’t know it.)

It’s a rotten disease.

This morning I woke at 5:00 AM. Ingested two espressos and a bowl of cereal and immediately went back to sleep. My daughter woke me at 11:00. She was sick but sort of hungry, so I got up and threw together a breakfast. We watched TV. I worked for an hour while she slept. Then I went back to sleep. That one hour of work took everything out of me.

It’s a rotten disease. You’re well enough not to need hospitalization, but too weak to do anything useful.

An adventure!

At 6:30 PM the kid woke me again. She was weak and exhausted and craving a sweet.

I got out of bed, threw on mask and gloves, and ventured out of my apartment for the first time in about a week. Picked up Oreos for the kid at the little deli across the street.

Then I visited my postal mailbox for the first time in over a week. It was flooded with junk. Nothing stops junk mail. Not signing “do not deliver” lists and opt-out lists (but of course junk mailers ignore those). And apparently not even Coronavirus can stem the junk-mail tide. The mechanisms of our dysfunction outlive us. Somewhere, surely, there’s a postal worker who contracted a fatal case of the virus while delivering junk mail to a dead woman.

Forgive me, I came hoping to spread cheer. Oh, well.

I’m grateful. Most people who die of this thing die right away. We lucky ones who survive just feel rotten for weeks and weeks. Rotten beats dead. The longer my kid feels sick, the safer I’ll feel about about her prognosis.

Rotten beats dead, but it’s still rotten. I wish those for whom this whole thing is an abstraction could see what I see and feel what I feel. The tragic unthinkable horror in the newspaper is the tip of this iceberg. Recovery is going to be long and hard and sad. The world we return to will be different.

Finishing Week 4 with Coronavirus, heading into Week 5. I’m home—haven’t needed to go to the hospital, thank God—and my fever petered out last week. So all that’s left are cold and cough symptoms and a totally debilitating complete lack of energy. Oh, and lower back pain: a bad cough threw one side of my back out, and lying in bed 18 hours a day somehow hasn’t unkinked it. Go figure.

I’m lucky.

I’m recovering. Slowly and unmeasurably but pretty definitely. Sitting at a desk to type these thoughts is something I can do today. Last week, not so much.

So lucky. My daughter is with me and, for the first time in over ten years, I have family in the building. We have enough food. Sure, it’s mostly lentils and pasta, but I know at least two delicious ways of serving those staples. And despite low energy, I still cook. It’s what I do now: sleep and cook.

The doctor who diagnosed me couldn’t test me.

There aren’t enough tests, but you read the papers, you know that. But my symptoms told the tale. I don’t know if he reported me as a case. So much data that could save lives isn’t being recorded because, well, you know why.

I reported myself to my company and our team (who are incredibly, brilliantly supportive), and to the MFA program where I teach one day a week, and, of course, to my wonderfully stalwart conference team. So many cases will not be diagnosed or reported. So many will spread the disease without knowing. So many will die and we (as a people) won’t be sure what took them.

I live in a hospital zone in Manhattan.

There have been morgue trucks on my block for weeks. I don’t look out that window much.

I’m lucky. I’m insured. I live in a safe neighborhood. And…

I’m white.

Not everybody thinks so, and it’s not a club I’m particularly proud to belong to anyway, but it’s still conferred massive privileges on me all my life. Some of which I recognized as a child. Some of which I’m still blind to. The point is, the people the virus is hurting the most are not white. Which is one reason the white people in charge have been slow to take it seriously.

But I get to stay home. I’ll get to work remotely, when I’m well enough to start working again. Privilege and dumb luck. Life and death.

I’m undeservedly fortunate and I’m thankful. To my colleagues, doing my work while I rest. To the medical professionals who live in this building and work in the hospitals around the corner. To the workers who toil in this building and haven’t the luxury to shelter in place. And to you who’ve been texting and emailing and DMing well wishes. Thank you. It helps.

Stay safe, stay strong, and be kind.