- published: 06 Jun 2016
- views: 36246
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Erin is one of 800 known cases of Fibrodysplasia Ossificans Progressiva. F.O.P. is one of the rarest, most disabling genetic conditions known to medicine, it causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another.
Crowdfunding:
https://www.youcaring.com/erin-mccloskey-581885
Blog:
http://www.friendswithfop.com
http://www.ifopa.org (USA)
http://www.cfopn.org (CAN)
http://www.fopfriends.org (UK)
Music:
bensound.com/acousticbreeze
http://www.bensound.com/royalty-free-music/track/acoustic-breeze
SUBSCRIBE to Barcroft TV: http://bit.ly/Oc61Hj
Luciana Wulkan is a seven year old girl who lives a happy life in Bolton, England. Like other seven-year-olds she is a member of the Rainbows, loves going to school and seeing her friends and really, really wants to go horse riding. However unlike most young girls she understands the meaning of the words Fibrodysplasia Ossificans Progressiva, an extremely rare genetic condition that affects just 450 people worldwide. FOP is a degenerative disease that slowly paralyses the body. The faulty gene triggers muscles, tendons, ligaments, and other connective tissues to turn into bone.
CREDIT: ZIgZag
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- published: 25 Apr 2017
- views: 2791894
Coloring Book with Paw Patrol, Kids! We paint with colored Markers.
New video here: https://www.youtube.com/channel/UCXycbZqxJ4HpcSpVcprIsaQ
- published: 27 Apr 2017
- views: 81252
Luciana Wulkan, 17, suffers Fibrodysplasia Ossificans Progressiva (FOP) - an extremely rare connective tissue disease which affects just 800 people worldwide.
Also known as Stone Man Syndrome, it slowly turns muscles, tendons, ligaments into solid bone, and is currently incurable.
She was born with a stiff neck, and began struggling to move her joints as she grew.
Now studying for her A-levels, her jaw has also locked and she has lost the use of her right hand after her wrist muscles fused into bone.
But while the disease can leave sufferers completely immobilised, she is determined to remain positive, and even does her own make up every day with her left hand.
Miss Wulkan said:
'The condition is slowly calcifying my muscles and other soft tissues into bone.'
'It eventually leaves people with very limited movement but I'm not focusing on that, I won't let it control my life.'
'Both of my arms have limited movement so I can't put my arms over my head and my right wrist is also fused.
'But I still manage to do all my make-up myself and I've not allowed the condition to affect my studying.'
'I enjoy being sociable and going shopping and dining out with my friends and family.'
FOP is a genetic condition, but can be triggered by episodes of trauma, including knocks and falls, biopsies and surgery.
Miss Wulkan's mother, Mrs Di-Falco believes her daughter's condition was triggered when she fell down the stairs and bumped her head.
Mrs Di-Falco said:
'For Luciana living with FOP, bumps and falls can result in a flare-up which then often leads to further muscles turning into bone.'
'Both myself and Sandro are so proud of how she has dealt with the condition, it's extremely rare so not many doctors even know much about it.'
'It wasn't until we watched a documentary on TV that we realised Luciana had FOP.'
'Thankfully although the condition causes her muscles to turn into bone it is not painful all the time.'
FOP is so rare it affects just 800 people worldwide.
Fibrodysplasia Ossificans Progressiva (FOP) is one of the rarest, most disabling genetic conditions known to medicine.
It causes bone to form in muscles, tendons, ligaments and other connective tissues.
Ridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone.
There are no other known examples in medicine of one normal organ system turning into another.
Music by Kevin MacLeod /Easy Lemon/
http://incompetech.com/music/royalty-free/
Licensed under Creative Commons: By Attribution 4.0
http://creativecommons.org/licenses/by/4.0/
Blog: http://amazingworldnewsnow.blogspot.com
- published: 16 Feb 2016
- views: 83128
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- published: 03 Mar 2015
- views: 301221
http://www.facebook.com/1armbandit
Ashley Kurpiel has been featured on Mystery Diagnosis, 20/20 and the BBC. This video is from the Tyra Banks Show originally aired 2/25/10. Keep up with Ashley on Facebook or Twitter. http://www.twitter.com/1armbandit
As a point of reference, Ashley did not know what questions Tyra was going to ask beforehand.
- published: 13 Mar 2010
- views: 601310
www.fopsverige.se Hugo 8år träffar tre kronor, inspelat i december 2006 sändes i feb 2007. FOP Fibrodysplasia Ossificans Progressiva är en genetisk mutation och en av världens mest sällsynta diagnoser som omvandlar muskler, senor, ligament och annan sammanbindande vävnad till skelett.
- published: 31 Jan 2012
- views: 151969
A show about one of the most devastating medical disorders known to man: Fibrodisplasia Ossificans Progressiva (FOP).
My daughter has this and some of her photos were used in this documentary. Read more about Erin (and her friend Miranda) at www.friendswithfop.com
- published: 03 Mar 2009
- views: 3223535
developed with YouTube
Fop
Fop became a pejorative term for a foolish man excessively concerned with his appearance and clothes in 17th-century England. Some of the very many similar alternative terms are: "coxcomb",fribble, "popinjay" (meaning "parrot"), fashion-monger, and "ninny". "Macaroni" was another term, of the 18th century, more specifically concerned with fashion.
A modern-day fop may also be a reference to a foolish person who is excessively concerned about his clothing, luxuries, minor details, refined language and leisurely hobbies. He is generally incapable of engaging in conversations, activities or thoughts without the idealism of aesthetics or pleasures.
Origins
The word "fop" is first recorded in 1440, and for several centuries just meant a fool of any kind; the Oxford English Dictionary notes first use with the meaning of "one who is foolishly attentive to and vain of his appearance, dress, or manners; a dandy, an exquisite" in 1672. An early example of the usage is in the restoration drama The Soldier's Fortune, in which a woman dismisses a potential suitor by saying "Go, you are a fop."
This page contains text from Wikipedia, the Free Encyclopedia -
https://wn.com/Fop
This article is licensed under the Creative Commons Attribution-ShareAlike 3.0 Unported License, which means that you can copy and modify it as long as the entire work (including additions) remains under this license.
This article is licensed under the Creative Commons Attribution-ShareAlike 3.0 Unported License, which means that you can copy and modify it as long as the entire work (including additions) remains under this license.
FOP
FOP or fop may refer to:
Science and technology
Other uses
This page contains text from Wikipedia, the Free Encyclopedia -
https://wn.com/FOP
This article is licensed under the Creative Commons Attribution-ShareAlike 3.0 Unported License, which means that you can copy and modify it as long as the entire work (including additions) remains under this license.
This article is licensed under the Creative Commons Attribution-ShareAlike 3.0 Unported License, which means that you can copy and modify it as long as the entire work (including additions) remains under this license.
Fibrodysplasia ossificans progressiva
Fibrodysplasia ossificans progressiva (FOP) is an extremely rare connective tissue disease. The disease is caused by a mutation of the body's repair mechanism, which causes fibrous tissue (including muscle, tendon, and ligament) to be ossified spontaneously or when damaged. In many cases, injuries can cause joints to become permanently frozen in place. Surgical removal of the extra bone growths has been shown to cause the body to "repair" the affected area with even more bone.
Signs and symptoms
For unknown reasons, children born with FOP have deformed big toes, possibly missing a joint or simply presenting with a notable lump at the minor joint. The first "flare-up" that leads to the formation of FOP bones usually occurs before the age of 10. The bone growth progresses from the top downward, just as bones grow in fetuses. A child with FOP will typically develop bones starting at the neck, then on the shoulders, arms, chest area and finally on the feet.
This page contains text from Wikipedia, the Free Encyclopedia -
https://wn.com/Fibrodysplasia_ossificans_progressiva
This article is licensed under the Creative Commons Attribution-ShareAlike 3.0 Unported License, which means that you can copy and modify it as long as the entire work (including additions) remains under this license.
This article is licensed under the Creative Commons Attribution-ShareAlike 3.0 Unported License, which means that you can copy and modify it as long as the entire work (including additions) remains under this license.
Mystery Diagnosis
Mystery Diagnosis is a television program that airs on the OWN: Oprah Winfrey Network. Each episode focuses on two or more individuals and their struggles to find out what ailments they suffer from. As the program's title suggests, doctors have a difficult time finding a diagnosis, often due to nonspecific symptoms, masquerading syndromes, the rarity of the condition or disease, or the patient's case being an unusual manifestation of said condition or disease.
The series debuted on Discovery Health Channel in 2005, and was continued when the Oprah Winfrey Network replaced Discovery Health on January 1, 2011; the current season premiered January 5, 2011.
Description
The episodes's opening titles once began with a voice-over narration that transcribed as follows:
That narration was later dropped in favor of on-screen captions that read:
What if
all the tests
told you NOTHING?
They study the symptoms.
They look for signs.
They find the cure.
This page contains text from Wikipedia, the Free Encyclopedia -
https://wn.com/Mystery_Diagnosis
This article is licensed under the Creative Commons Attribution-ShareAlike 3.0 Unported License, which means that you can copy and modify it as long as the entire work (including additions) remains under this license.
This article is licensed under the Creative Commons Attribution-ShareAlike 3.0 Unported License, which means that you can copy and modify it as long as the entire work (including additions) remains under this license.
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5:17This is FOP
This is FOPThis is FOP
Erin is one of 800 known cases of Fibrodysplasia Ossificans Progressiva. F.O.P. is one of the rarest, most disabling genetic conditions known to medicine, it causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another. Crowdfunding: https://www.youcaring.com/erin-mccloskey-581885 Blog: http://www.friendswithfop.com http://www.ifopa.org (USA) http://www.cfopn.org (CAN) http://www.fopfriends.org (UK) Music: bensound.com/acousticbreeze http://www.bensound.com/royalty-free-music/track/acoustic-breeze -
47:16DOCS: The Girl Whose Muscles Are Turning To Bone
DOCS: The Girl Whose Muscles Are Turning To BoneDOCS: The Girl Whose Muscles Are Turning To Bone
SUBSCRIBE to Barcroft TV: http://bit.ly/Oc61Hj Luciana Wulkan is a seven year old girl who lives a happy life in Bolton, England. Like other seven-year-olds she is a member of the Rainbows, loves going to school and seeing her friends and really, really wants to go horse riding. However unlike most young girls she understands the meaning of the words Fibrodysplasia Ossificans Progressiva, an extremely rare genetic condition that affects just 450 people worldwide. FOP is a degenerative disease that slowly paralyses the body. The faulty gene triggers muscles, tendons, ligaments, and other connective tissues to turn into bone. CREDIT: ZIgZag Barcroft TV: https://www.youtube.com/user/barcroftmedia/featured Barcroft Animals: https://www.youtube.com/barcroftanimals/featured Barcroft Cars: https://www.youtube.com/user/BarcroftCars/featured Bear Grylls Adventure: https://www.youtube.com/channel/UCzcUNwS7mypzPhW4gsjO7og/featured For more of the amazing side of life: For the full story, visit BARCROFT.TV: http://www.barcroft.tv/ Like @BarcroftTV on Facebook: https://www.facebook.com/BarcroftTV Follow @Barcroft_TV on Twitter: https://www.Twitter.com/Barcroft_TV Check out more videos: https://www.youtube.com/user/barcroftmedia/videos -
2:26Her muscles and ligaments are turning to bone
Her muscles and ligaments are turning to bone -
5:03PAW Patrol Rubble is fun playing - Coloring Pages fop Kids
PAW Patrol Rubble is fun playing - Coloring Pages fop KidsPAW Patrol Rubble is fun playing - Coloring Pages fop Kids
Coloring Book with Paw Patrol, Kids! We paint with colored Markers. New video here: https://www.youtube.com/channel/UCXycbZqxJ4HpcSpVcprIsaQ -
3:15Human Statue: Teenager's Muscles Turn To BONE Due To Rare Condition
Human Statue: Teenager's Muscles Turn To BONE Due To Rare ConditionHuman Statue: Teenager's Muscles Turn To BONE Due To Rare Condition
Luciana Wulkan, 17, suffers Fibrodysplasia Ossificans Progressiva (FOP) - an extremely rare connective tissue disease which affects just 800 people worldwide. Also known as Stone Man Syndrome, it slowly turns muscles, tendons, ligaments into solid bone, and is currently incurable. She was born with a stiff neck, and began struggling to move her joints as she grew. Now studying for her A-levels, her jaw has also locked and she has lost the use of her right hand after her wrist muscles fused into bone. But while the disease can leave sufferers completely immobilised, she is determined to remain positive, and even does her own make up every day with her left hand. Miss Wulkan said: 'The condition is slowly calcifying my muscles and other soft tissues into bone.' 'It eventually leaves people with very limited movement but I'm not focusing on that, I won't let it control my life.' 'Both of my arms have limited movement so I can't put my arms over my head and my right wrist is also fused. 'But I still manage to do all my make-up myself and I've not allowed the condition to affect my studying.' 'I enjoy being sociable and going shopping and dining out with my friends and family.' FOP is a genetic condition, but can be triggered by episodes of trauma, including knocks and falls, biopsies and surgery. Miss Wulkan's mother, Mrs Di-Falco believes her daughter's condition was triggered when she fell down the stairs and bumped her head. Mrs Di-Falco said: 'For Luciana living with FOP, bumps and falls can result in a flare-up which then often leads to further muscles turning into bone.' 'Both myself and Sandro are so proud of how she has dealt with the condition, it's extremely rare so not many doctors even know much about it.' 'It wasn't until we watched a documentary on TV that we realised Luciana had FOP.' 'Thankfully although the condition causes her muscles to turn into bone it is not painful all the time.' FOP is so rare it affects just 800 people worldwide. Fibrodysplasia Ossificans Progressiva (FOP) is one of the rarest, most disabling genetic conditions known to medicine. It causes bone to form in muscles, tendons, ligaments and other connective tissues. Ridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another. Music by Kevin MacLeod /Easy Lemon/ http://incompetech.com/music/royalty-free/ Licensed under Creative Commons: By Attribution 4.0 http://creativecommons.org/licenses/by/4.0/ Blog: http://amazingworldnewsnow.blogspot.com -
4:30Boy Turning Into Stone: Ep. 01 "Fear & Strength"
Boy Turning Into Stone: Ep. 01 "Fear & Strength"Boy Turning Into Stone: Ep. 01 "Fear & Strength"
Join the #SoochCrew Hi. Joey Sooch here! Follow me everywhere. Donate here: https://fundly.com/stop-fop-1 Twitter: http://twitter.com/JoeySooch1 Instagram: http://instagram.com/JoeySooch Snapchat: JoeySooch Myspace: lol Website: http://JoeySooch.com Shirts will be available soon for purchase if you want to show your support in other ways! Business Inquiries: JSuchanek11@gmail.com -
9:19Tyra Banks Show - Ashley Kurpiel - FOP
Tyra Banks Show - Ashley Kurpiel - FOPTyra Banks Show - Ashley Kurpiel - FOP
http://www.facebook.com/1armbandit Ashley Kurpiel has been featured on Mystery Diagnosis, 20/20 and the BBC. This video is from the Tyra Banks Show originally aired 2/25/10. Keep up with Ashley on Facebook or Twitter. http://www.twitter.com/1armbandit As a point of reference, Ashley did not know what questions Tyra was going to ask beforehand. -
9:25FOP Hugo i Outsiders Kanal 5 2007
FOP Hugo i Outsiders Kanal 5 2007FOP Hugo i Outsiders Kanal 5 2007
www.fopsverige.se Hugo 8år träffar tre kronor, inspelat i december 2006 sändes i feb 2007. FOP Fibrodysplasia Ossificans Progressiva är en genetisk mutation och en av världens mest sällsynta diagnoser som omvandlar muskler, senor, ligament och annan sammanbindande vävnad till skelett. -
3:59FOP - Fibrodisplasia Ossificante Progressiva
FOP - Fibrodisplasia Ossificante ProgressivaFOP - Fibrodisplasia Ossificante Progressiva
Martinha Brito portadora de uma doença rara -
26:14Mystery Diagnosis: Girl Who Couldnt Move
Mystery Diagnosis: Girl Who Couldnt MoveMystery Diagnosis: Girl Who Couldnt Move
A show about one of the most devastating medical disorders known to man: Fibrodisplasia Ossificans Progressiva (FOP). My daughter has this and some of her photos were used in this documentary. Read more about Erin (and her friend Miranda) at www.friendswithfop.com -
9:39FOP
FOPFOP
-
3:54Mystery Diagnosis - FOP Part 4
Mystery Diagnosis - FOP Part 4 -
4:37FOP disorder
FOP disorderFOP disorder
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3:43Friends With Rare FOP Disease Reunite
Friends With Rare FOP Disease ReuniteFriends With Rare FOP Disease Reunite
It was a reunion of old friends, and they all have one of the rarest diseases on earth. Nancy Sando said, "My jaw is completely fused." Ashley Kurpiel said, "My leg is fused at the hip." Their condition causes their muscles, ligaments, and tendons to become bone, turning their bodies rock hard. "We are turning into human statues. We can't move," said Kurpiel. Three friends who suffer from a disease known as FOP (Fibrodysplasia Ossificans Progressiva). There are only 700 known cases in the world, and almost half of them are in the U.S. Kurpiel lives outside Atlanta, Georgia. As a toddler, her arm was amputated after doctors misdiagnosed her with cancer. They missed the tell-tale signature of FOP disease, a crooked big toe. Now, her muscles have started hardening into bone. "I cannot move this arm away from my body. It's like superglued to my side, my upper arm, because it does not move" said Kurpiel. Her neck and spine are now fused. Five years ago Kurpiel's leg got stuck in a bent position. Kurpiel said, "Its stuck and that thigh is rock-hard bone." A four-inch platform shoe enables her to walk. The 30-year-old showed INSIDE EDITION how she uses a drawer handle to take off her pants. A convenient closet door knob helps her get them back on. Patrick Doerr showed INSIDE EDITION his lack of movement and said, "This is it for movement in the shoulders." Doerr's jaw is nearly frozen shut. "Just enough to talk," said Patrick. His mom, Gretchen, a pediatric nurse, was heartbroken when he was diagnosed. "He was 17 and big and burley, and next thing you know he's in such severe pain," said Gretchen. She watched helplessly as his muscles and joints turned to solid bone. Patrick said the condition causes, "Very intense swelling, very intense pain." At 52, Sando is one of the oldest living people with FOP. As she inches her way toward the bed, it becomes obvious that her body is stiff as a board. "God has given me the ability to find the joy in the little things in life," said Sando. "It's a tremendous hardship. FOP is a devastating disease," said Dr. Frederick Kaplan. Dr. Kaplan of the University of Pennsylvania is the leader in the fight against the disease, and personally sees to every case. "We adore Nancy and Ashley and Patrick. They are all a testimony to human spirit. They're shining example what human beings can do when faced with such incredible adversity," said Dr. Kaplan. With the reunion set, getting there would prove quite an undertaking. Sando and her care giver left Michigan's Upper Peninsula, driving three hours in her minivan. Kurpiel gets a little help down the jet way in Atlanta, then walks on board her flight and takes her seat. Patrick boarded his plane in Philadelphia. When he found his seat, the 30-year-old accountant enjoyed a drink with his own ingenious invention, an extra-long straw. The three friends finally made it to Detroit and settled in at their hotel. They shared techniques for doing all the things we all take for granted. They gathered by the pool, and Kurpiel took a refreshing swim. Dinner proves the most challenging of all. Since Doerr and Sando's jaws are all but fused shut, they first use their lips to mash the food against their teeth, then push it through gaps. And everywhere they go they draw inspiration from each other. It helps to know that they are not alone. -
4:04Fibrodysplasia.wmv
Fibrodysplasia.wmvFibrodysplasia.wmv
A National Geographic video about Fibrodysplasia Ossificans Progressiva, Recorded by me. Used Software: Camtasia 7 (Video Recording) Audacity (Audio Recording) Sony Vegas 9.0 e (Editing) -
1:28:08Genetic Mysteries: FOP - When Bodies Turn to Bone
Genetic Mysteries: FOP - When Bodies Turn to BoneGenetic Mysteries: FOP - When Bodies Turn to Bone
(Visit: http://www.uctv.tv/) Dr. Joseph A. Kitterman, UCSF Professor Emeritus of Pediatrics, explores Fibrodysplasia Ossificans Progressiva (FOP), a rare genetic disease (incidence 1 in 2 million) and one of the most horrific conditions that affect humans. In FOP, skeletal muscle, tendons, and ligaments undergo endochondral ossification in episodes known as flare-ups that lead to progressive permanent loss of range motion in joints. Most people with FOP are initially given erroneous diagnoses, often leading to inappropriate treatment with permanent complications. Currently, there is no effective treatment, but recent research suggests there will be a clinical trial of treatment in the relatively near future. Series: "UCSF Osher Center for Integrative Medicine presents Mini Medical School for the Public" [1/2014] [Health and Medicine] [Show ID: 25799] -
3:08Inside edition FOP
Inside edition FOPInside edition FOP
via YouTube Capture -
12:56Lebendig Versteinert - BBC Exklusiv exklusiv Münchmeyer Syndrom FOP Teil 2
Lebendig Versteinert - BBC Exklusiv exklusiv Münchmeyer Syndrom FOP Teil 2Lebendig Versteinert - BBC Exklusiv exklusiv Münchmeyer Syndrom FOP Teil 2
Genauso trug es sich zu bei Jeannie Peeper, geboren in Michigan 1958. Kein Arzt wurde stutzig angesichts der verbogenen Zehen von Roger zum Felde, geboren 1965 bei Hamburg. Niemand schrie Alarm im bayerischen Kempten, als 1989 Matthias Sommer das Licht der Welt erblickte. Mit schiefen Zehen wurde am 11. September 1996 in New York Sophia Forshtay aus dem Mutterleib gezogen, ein munteres Baby von über 3500 Gramm Gewicht. Das mit den Zehen, sagten die Doktoren, das würde sich schon richten lassen. Sie irrten. Sie wussten nicht, was Fred Kaplan weiß. Kaplan, ein Mediziner am Uni-Krankenhaus in Philadelphia, hat seine Karriere und sein Leben dem Studium der bösen Botschaft gewidmet, die aus den verformten Gliedmaßen spricht. Kaplan, 51, hat in über zwölf Jahren mehr als 390 dieser Gezeichneten kennen gelernt, Kinder und Erwachsene, aus allen Erdteilen. Er hat ihnen oder ihren Eltern die Wahrheit gesagt: Die krummen Zehen sind die Ankündigung einer Katastrophe im Körper, das sichere Merkmal einer Horror-Krankheit, die so selten ist, dass kaum ein Arzt je von ihr gehört hat. -
11:52Fair use bears : fop
Fair use bears : fopFair use bears : fop
Or how to wish your favorite characters to the real world -
10:36Yorick is 11 jaar en heeft F.O.P. (English subtitled)| RebelTV Sluis
Yorick is 11 jaar en heeft F.O.P. (English subtitled)| RebelTV SluisYorick is 11 jaar en heeft F.O.P. (English subtitled)| RebelTV Sluis
Yorick uit Aardenburg heeft F.O.P. Volgend weekend staat hij met zijn ouders op de Struisvogelboerderij in Sluis om geld voor onderzoek in te zamelen. Wat F.O.P. is vroeg ik Yorick en zijn ouders in een gesprek. Een kleine reportage over Yorick. mensen kunnen ook storten op: IBAN: NL13RABO0171098412 t.n.v. Stichting Genees F.O.P. te Aardenburg hun website: www.geneesfop.nl
'Fop' is featured as a movie character in the following productions:
Scayrecrow (2008)
Actors: Jonas Hawkins (producer), James Harrod (editor), Ashley Thorpe (editor), Ashley Thorpe (actor), Ashley Thorpe (writer), Ashley Thorpe (director), Stuart Mitchell (producer), Mick Grierson (composer), Mick Grierson (editor), Ed Berry (actor), Sue Tilbrook (actress), Robert Thorpe (actor),
Plot: 1742 - and the daring robberies of Joshua Rookwood are the talk of all of England. No-one it seems is safe on the Kings highways from the notorious highwayman and his fearful alter-ego 'The Scayrecrow'. Though his name is whispered in the same breath as Turpin, Rookwood's motives are not mere brutality and greed. Every full moon, after robbing the gentry of their riches, Rookwood steals away to deliver the choicest of the booty to his love, the serving girl Eleanor Tawney. As the reward for his capture grows ever large, these moonlit rendezvous attract unwanted attention...and slowly and surely plans are drawn against them.
Keywords: ghost, hammer-films, highwayman, surrealismGenres: Animation, Horror, Short,
Taglines: A tale of old both dark yet sweet...of pistol, crow and earthen sheet.
The Phantom of the Opera (2004)
Actors: Miranda Richardson (actress), Andrew Lloyd Webber (writer), Kevin McNally (actor), Emmy Rossum (actress), Gaston Leroux (writer), Andrew Lloyd Webber (producer), Murray Melvin (actor), Simon Callow (actor), Paul Brooke (actor), Minnie Driver (actress), Ciarán Hinds (actor), Patrick Wilson (actor), Gerard Butler (actor), Joel Schumacher (writer), Andrew Lloyd Webber (writer),
Plot: Begins when an opera ghost terrorizes the cast and crew of the French Opera House while tutoring a chorus girl. He finally drives the lead soprano crazy so she and her friend leave. The girl is able to sing lead one night but the soprano doesn't want her show stolen so she comes back. The ghost demands they keep giving his protégé lead roles. Meanwhile, His pupil falls in love with the Vicomte de Chagny, but the Phantom is in love with Christine, his student. The Phantom is outraged by their love and kidnaps Christine to be his eternal bride. Will Raoul, the Vicomte, be able to stop this dastardly plan?
Keywords: 1870s, 1910s, 19th-century, auction, backstage, ballroom, based-on-novel, based-on-stage-musical, based-on-stage-musical-based-on-novel, black-and-whiteGenres: Drama, Musical, Romance, Thriller,
Taglines: Her voice became his passion. Her love became his obsession. Her refusal became his rage..... Listen to the Music of the Night The world's biggest musical! The waiting is over...let the fantasy begin. The classic musical comes to the big screen for the first time.
Quotes:
Raoul: I fought so hard to free you!Christine: Say you love me.::Raoul: You know I do.
Carlotta: Well, if my managers command. Mr. Reyer?::Reyer: If my diva commands.::Carlotta: Yes, I do.
The Phantom: [after Christine pulls off his mask and glimpses his face] Damn you! You little prying Pandora! You little demon - is this what you wanted to see? Curse you! You little lying Delilah! You little viper!
The Phantom: Can you even dare to look or bear to think of me?
The Phantom: Softly, deftly, music shall carress you. Hear it, feel it, Secretly possess you.
Raoul: There is no phantom of the opera.
The Phantom: [singing as he descends the staircase at the Masquerade Ball] Why so silent, good monsieurs? Did you think that I had left you for good? Have you missed me, good monsieurs? I have written you an opera! Here I bring the finished score - Don Juan Triumphant! Fondest greetings to you all. A few instructions now before rehearsals start: Carlotta must be taught to act, not her normal trick of strutting 'round the stage. Our Don Juan must lose some weight; it's not healthy in a man of Piangi's age. And my managers must learn that their place is in an office! not the arts. As for our star, Miss Christine Daae... no doubt she'll do her best. It's true her voice is good; she knows, though, should she wish to excel, she has much still to learn, if pride will let her return to me, her teacher... her teacher.
Crowd: [singing] Track down this murderer, he must be found! Hunt out this animal, who runs to ground! Too long he's preyed on us - but now we know: the Phantom of the Opera is there deep down below...
The Phantom: Did I NOT instruct that Box 5 was to be left empty?::Meg Giry: He's here, the phantom of the opera!::Christine: It's him!::Carlotta: Your part is silent, little toad!::The Phantom: A toad, madam? Perhaps it is you who are the toad...
Comrades (1986)
Actors: Alex Norton (actor), Alex Norton (actor), Alex Norton (actor), Alex Norton (actor), Philip Davis (actor), Alex Norton (actor), Murray Melvin (actor), Keith Allen (actor), James Fox (actor), Alex Norton (actor), John Hargreaves (actor), Michael Hordern (actor), Freddie Jones (actor), Alex Norton (actor), Alex Norton (actor),
Plot: The story of "The Tolpuddle Martyrs". A group of 19th century English farm labourers who formed one of the first trade unions and started a campaign to receive fair wages.
Keywords: deportation, independent-film, labor-union, left-wing-politics, unionistGenres: Drama,
The Great McGonagall (1974)
Actors: Valentine Dyall (actor), Valentine Dyall (actor), Valentine Dyall (actor), John Bluthal (actor), John Bluthal (actor), Valentine Dyall (actor), Valentine Dyall (actor), John Bluthal (actor), John Bluthal (actor), John Bluthal (actor), John Bluthal (actor), John Bluthal (actor), John Bluthal (actor), Spike Milligan (actor), Valentine Dyall (actor),
Plot: The tale of an unemployed Scotsman, William McGonagall whose ambition was to become England's Poet Laureate. One minor drawback is that his poetry is terrible.
Keywords: character-name-in-title, independent-film, poetGenres: Biography, Comedy,
Quotes:
William McGonagall: But for my age I too would have joined your army.::Queen Victoria: Oh come now, Mr McGonagall. You're only 45.::William McGonagall: Aye, that's my age but I do not...::Queen Victoria: Oh come now, join up. Join up and travel to distant and exotic places. Meet interesting and exciting people, and then kill them.William McGonagall: Is anything worn under the kilt?::John Brown: No, everything is in working order.
Queen Victoria: I am Queen Victoria, and I am very big in England!
The Great McGonagall (1974)
Actors: Valentine Dyall (actor), Valentine Dyall (actor), Valentine Dyall (actor), John Bluthal (actor), John Bluthal (actor), Valentine Dyall (actor), Valentine Dyall (actor), John Bluthal (actor), John Bluthal (actor), John Bluthal (actor), John Bluthal (actor), John Bluthal (actor), John Bluthal (actor), Spike Milligan (actor), Valentine Dyall (actor),
Plot: The tale of an unemployed Scotsman, William McGonagall whose ambition was to become England's Poet Laureate. One minor drawback is that his poetry is terrible.
Keywords: character-name-in-title, independent-film, poetGenres: Biography, Comedy,
Quotes:
William McGonagall: But for my age I too would have joined your army.::Queen Victoria: Oh come now, Mr McGonagall. You're only 45.::William McGonagall: Aye, that's my age but I do not...::Queen Victoria: Oh come now, join up. Join up and travel to distant and exotic places. Meet interesting and exciting people, and then kill them.William McGonagall: Is anything worn under the kilt?::John Brown: No, everything is in working order.
Queen Victoria: I am Queen Victoria, and I am very big in England!
De wiskunstenaars (1973)
Actors: Jef Burm (actor), Walter Cornelis (actor), Jeanine Schevernels (actress), Jacky Morel (actor), Bob Van der Veken (actor), Joris Collet (actor), Arnold Willems (actor), Emmy Leemans (actress), Marc Leemans (actor), Gerard Vermeersch (actor), Juul Claes (director), Hilde Sacré (actress), Johan De Meester (director), Pieter Langendijk (writer),
Genres: ,Forever Amber (1947)
Actors: Cyril Delevanti (actor), James Craven (actor), Jean De Briac (actor), Robert Adler (actor), Edmund Breon (actor), Ted Billings (actor), Robert Anderson (actor), Leonard Carey (actor), Leo G. Carroll (actor), Patrick Aherne (actor), Jimmy Ames (actor), Gordon B. Clarke (actor), Robert Coote (actor), Harry Cording (actor), Leslie Denison (actor),
Plot: Amber St Clair means to get on in life and despite a poor background knows she has the assets to do it. Husbands, lovers, prison and a liaison with King Charles II form a tapestry of apparently calculating ups and downs, although in fact the one love of her life, Bruce Carlton, is never far from Amber's thoughts.
Keywords: 1660s, 17th-century, ambition, based-on-novel, character-name-in-title, duel, england, fire, foundling, king-charles-iiGenres: Adventure, Drama, History,
Quotes:
King Charles II: [to his spaniels] Children, children, what distressing behavior.Lord Harry Almsbury: Amber, you've restored my vanished faith in gambling at long odds.
King Charles II: [at a royal ball] Look at them. My loving subjects. You'd never know that half of them danced in Puritan garb while my father went to the chopping block.::Amber St. Clair: [moved] No wonder you seek solace in amusement, sire. [slyly] Can a common trollop help you to forget?
The Foxes of Harrow (1947)
Actors: Ralph Faulkner (actor), Hugo Haas (actor), John Doucette (actor), Joseph Crehan (actor), Jean Del Val (actor), Jean De Briac (actor), Eugene Borden (actor), William Bailey (actor), Leonard Bremen (actor), Frederick Burton (actor), John Bagni (actor), André Charlot (actor), Gordon B. Clarke (actor), Frank Dae (actor), John Hamilton (actor),
Genres: Drama,Taglines: The Pages of a Best Seller Pour Their Excitement Onto the Screen! The fire that was in him -- would always kindle the flame in her heart!
Quotes:
Stephen Fox: [after nodding to a passing coach] That's the second time I've comprised you. Once more and your father would probably force me to marry you.::Odalie 'Lilli' D'Arceneaux: Me to Marry you? Why you're the most insufferable, insulting - !::Stephen Fox: Stop being so angry with yourself. Face up to it. All your pretty notions are going astray and you have little left to use against me except I'm no gentleman and you're wrong there too. Because I'm from as fine a flock of sheep that's ever grazed in Ireland. But I had the luck to be the odd one. And it carried me out into a good world, full of living. And it will carry me out wherever I want it to - even to you. [kisses her]Forever Amber (1947)
Actors: Cyril Delevanti (actor), James Craven (actor), Jean De Briac (actor), Robert Adler (actor), Edmund Breon (actor), Ted Billings (actor), Robert Anderson (actor), Leonard Carey (actor), Leo G. Carroll (actor), Patrick Aherne (actor), Jimmy Ames (actor), Gordon B. Clarke (actor), Robert Coote (actor), Harry Cording (actor), Leslie Denison (actor),
Plot: Amber St Clair means to get on in life and despite a poor background knows she has the assets to do it. Husbands, lovers, prison and a liaison with King Charles II form a tapestry of apparently calculating ups and downs, although in fact the one love of her life, Bruce Carlton, is never far from Amber's thoughts.
Keywords: 1660s, 17th-century, ambition, based-on-novel, character-name-in-title, duel, england, fire, foundling, king-charles-iiGenres: Adventure, Drama, History,
Quotes:
King Charles II: [to his spaniels] Children, children, what distressing behavior.Lord Harry Almsbury: Amber, you've restored my vanished faith in gambling at long odds.
King Charles II: [at a royal ball] Look at them. My loving subjects. You'd never know that half of them danced in Puritan garb while my father went to the chopping block.::Amber St. Clair: [moved] No wonder you seek solace in amusement, sire. [slyly] Can a common trollop help you to forget?
Forever Amber (1947)
Actors: Cyril Delevanti (actor), James Craven (actor), Jean De Briac (actor), Robert Adler (actor), Edmund Breon (actor), Ted Billings (actor), Robert Anderson (actor), Leonard Carey (actor), Leo G. Carroll (actor), Patrick Aherne (actor), Jimmy Ames (actor), Gordon B. Clarke (actor), Robert Coote (actor), Harry Cording (actor), Leslie Denison (actor),
Plot: Amber St Clair means to get on in life and despite a poor background knows she has the assets to do it. Husbands, lovers, prison and a liaison with King Charles II form a tapestry of apparently calculating ups and downs, although in fact the one love of her life, Bruce Carlton, is never far from Amber's thoughts.
Keywords: 1660s, 17th-century, ambition, based-on-novel, character-name-in-title, duel, england, fire, foundling, king-charles-iiGenres: Adventure, Drama, History,
Quotes:
King Charles II: [to his spaniels] Children, children, what distressing behavior.Lord Harry Almsbury: Amber, you've restored my vanished faith in gambling at long odds.
King Charles II: [at a royal ball] Look at them. My loving subjects. You'd never know that half of them danced in Puritan garb while my father went to the chopping block.::Amber St. Clair: [moved] No wonder you seek solace in amusement, sire. [slyly] Can a common trollop help you to forget?
developed with YouTube
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This is FOP
Erin is one of 800 known cases of Fibrodysplasia Ossificans Progressiva. F.O.P. is one of the rarest, most disabling genetic conditions known to medicine, it causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another. Crowdfunding: https://www.youcaring.com/erin-mccloskey-581885 Blog: http://www.friendswithfop.com http://www.ifopa.org (USA) http://www.cfopn.org (CAN) http://www.fopfriends.org (UK) Music: bensound.com/acousticbreeze http://www.bensound.com/royalty-free-music/track/acoustic-breeze
published: 06 Jun 2016 -
DOCS: The Girl Whose Muscles Are Turning To Bone
SUBSCRIBE to Barcroft TV: http://bit.ly/Oc61Hj Luciana Wulkan is a seven year old girl who lives a happy life in Bolton, England. Like other seven-year-olds she is a member of the Rainbows, loves going to school and seeing her friends and really, really wants to go horse riding. However unlike most young girls she understands the meaning of the words Fibrodysplasia Ossificans Progressiva, an extremely rare genetic condition that affects just 450 people worldwide. FOP is a degenerative disease that slowly paralyses the body. The faulty gene triggers muscles, tendons, ligaments, and other connective tissues to turn into bone. CREDIT: ZIgZag Barcroft TV: https://www.youtube.com/user/barcroftmedia/featured Barcroft Animals: https://www.youtube.com/barcroftanimals/featured Barcroft Cars: ht...
published: 25 Apr 2017 -
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PAW Patrol Rubble is fun playing - Coloring Pages fop Kids
Coloring Book with Paw Patrol, Kids! We paint with colored Markers. New video here: https://www.youtube.com/channel/UCXycbZqxJ4HpcSpVcprIsaQ
published: 27 Apr 2017 -
Human Statue: Teenager's Muscles Turn To BONE Due To Rare Condition
Luciana Wulkan, 17, suffers Fibrodysplasia Ossificans Progressiva (FOP) - an extremely rare connective tissue disease which affects just 800 people worldwide. Also known as Stone Man Syndrome, it slowly turns muscles, tendons, ligaments into solid bone, and is currently incurable. She was born with a stiff neck, and began struggling to move her joints as she grew. Now studying for her A-levels, her jaw has also locked and she has lost the use of her right hand after her wrist muscles fused into bone. But while the disease can leave sufferers completely immobilised, she is determined to remain positive, and even does her own make up every day with her left hand. Miss Wulkan said: 'The condition is slowly calcifying my muscles and other soft tissues into bone.' 'It eventually leaves...
published: 16 Feb 2016 -
Boy Turning Into Stone: Ep. 01 "Fear & Strength"
Join the #SoochCrew Hi. Joey Sooch here! Follow me everywhere. Donate here: https://fundly.com/stop-fop-1 Twitter: http://twitter.com/JoeySooch1 Instagram: http://instagram.com/JoeySooch Snapchat: JoeySooch Myspace: lol Website: http://JoeySooch.com Shirts will be available soon for purchase if you want to show your support in other ways! Business Inquiries: JSuchanek11@gmail.com
published: 03 Mar 2015 -
Tyra Banks Show - Ashley Kurpiel - FOP
http://www.facebook.com/1armbandit Ashley Kurpiel has been featured on Mystery Diagnosis, 20/20 and the BBC. This video is from the Tyra Banks Show originally aired 2/25/10. Keep up with Ashley on Facebook or Twitter. http://www.twitter.com/1armbandit As a point of reference, Ashley did not know what questions Tyra was going to ask beforehand.
published: 13 Mar 2010 -
FOP Hugo i Outsiders Kanal 5 2007
www.fopsverige.se Hugo 8år träffar tre kronor, inspelat i december 2006 sändes i feb 2007. FOP Fibrodysplasia Ossificans Progressiva är en genetisk mutation och en av världens mest sällsynta diagnoser som omvandlar muskler, senor, ligament och annan sammanbindande vävnad till skelett.
published: 31 Jan 2012 -
FOP - Fibrodisplasia Ossificante Progressiva
Martinha Brito portadora de uma doença rara
published: 21 May 2013 -
Mystery Diagnosis: Girl Who Couldnt Move
A show about one of the most devastating medical disorders known to man: Fibrodisplasia Ossificans Progressiva (FOP). My daughter has this and some of her photos were used in this documentary. Read more about Erin (and her friend Miranda) at www.friendswithfop.com
published: 03 Mar 2009 -
FOP
published: 13 May 2013 -
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FOP disorder
published: 03 Jun 2016 -
Friends With Rare FOP Disease Reunite
It was a reunion of old friends, and they all have one of the rarest diseases on earth. Nancy Sando said, "My jaw is completely fused." Ashley Kurpiel said, "My leg is fused at the hip." Their condition causes their muscles, ligaments, and tendons to become bone, turning their bodies rock hard. "We are turning into human statues. We can't move," said Kurpiel. Three friends who suffer from a disease known as FOP (Fibrodysplasia Ossificans Progressiva). There are only 700 known cases in the world, and almost half of them are in the U.S. Kurpiel lives outside Atlanta, Georgia. As a toddler, her arm was amputated after doctors misdiagnosed her with cancer. They missed the tell-tale signature of FOP disease, a crooked big toe. Now, her muscles have started hardening into bone. "I canno...
published: 18 Sep 2013 -
Fibrodysplasia.wmv
A National Geographic video about Fibrodysplasia Ossificans Progressiva, Recorded by me. Used Software: Camtasia 7 (Video Recording) Audacity (Audio Recording) Sony Vegas 9.0 e (Editing)
published: 08 Oct 2010 -
Genetic Mysteries: FOP - When Bodies Turn to Bone
(Visit: http://www.uctv.tv/) Dr. Joseph A. Kitterman, UCSF Professor Emeritus of Pediatrics, explores Fibrodysplasia Ossificans Progressiva (FOP), a rare genetic disease (incidence 1 in 2 million) and one of the most horrific conditions that affect humans. In FOP, skeletal muscle, tendons, and ligaments undergo endochondral ossification in episodes known as flare-ups that lead to progressive permanent loss of range motion in joints. Most people with FOP are initially given erroneous diagnoses, often leading to inappropriate treatment with permanent complications. Currently, there is no effective treatment, but recent research suggests there will be a clinical trial of treatment in the relatively near future. Series: "UCSF Osher Center for Integrative Medicine presents Mini Medical Schoo...
published: 30 Dec 2013 -
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Lebendig Versteinert - BBC Exklusiv exklusiv Münchmeyer Syndrom FOP Teil 2
Genauso trug es sich zu bei Jeannie Peeper, geboren in Michigan 1958. Kein Arzt wurde stutzig angesichts der verbogenen Zehen von Roger zum Felde, geboren 1965 bei Hamburg. Niemand schrie Alarm im bayerischen Kempten, als 1989 Matthias Sommer das Licht der Welt erblickte. Mit schiefen Zehen wurde am 11. September 1996 in New York Sophia Forshtay aus dem Mutterleib gezogen, ein munteres Baby von über 3500 Gramm Gewicht. Das mit den Zehen, sagten die Doktoren, das würde sich schon richten lassen. Sie irrten. Sie wussten nicht, was Fred Kaplan weiß. Kaplan, ein Mediziner am Uni-Krankenhaus in Philadelphia, hat seine Karriere und sein Leben dem Studium der bösen Botschaft gewidmet, die aus den verformten Gliedmaßen spricht. Kaplan, 51, hat in über zwölf Jahren mehr als 390 dieser Gezeichneten ...
published: 31 Jul 2013 -
Fair use bears : fop
Or how to wish your favorite characters to the real world
published: 07 Mar 2016 -
Yorick is 11 jaar en heeft F.O.P. (English subtitled)| RebelTV Sluis
Yorick uit Aardenburg heeft F.O.P. Volgend weekend staat hij met zijn ouders op de Struisvogelboerderij in Sluis om geld voor onderzoek in te zamelen. Wat F.O.P. is vroeg ik Yorick en zijn ouders in een gesprek. Een kleine reportage over Yorick. mensen kunnen ook storten op: IBAN: NL13RABO0171098412 t.n.v. Stichting Genees F.O.P. te Aardenburg hun website: www.geneesfop.nl
published: 16 May 2015
developed with YouTube
This is FOP
- Order: Reorder
- Duration: 5:17
- Updated: 06 Jun 2016
- views: 36246
Erin is one of 800 known cases of Fibrodysplasia Ossificans Progressiva. F.O.P. is one of the rarest, most disabling genetic conditions known to medicine, it c...
Erin is one of 800 known cases of Fibrodysplasia Ossificans Progressiva. F.O.P. is one of the rarest, most disabling genetic conditions known to medicine, it causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another.
Crowdfunding:
https://www.youcaring.com/erin-mccloskey-581885
Blog:
http://www.friendswithfop.com
http://www.ifopa.org (USA)
http://www.cfopn.org (CAN)
http://www.fopfriends.org (UK)
Music:
bensound.com/acousticbreeze
http://www.bensound.com/royalty-free-music/track/acoustic-breeze
https://wn.com/This_Is_Fop
Erin is one of 800 known cases of Fibrodysplasia Ossificans Progressiva. F.O.P. is one of the rarest, most disabling genetic conditions known to medicine, it causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another.
Crowdfunding:
https://www.youcaring.com/erin-mccloskey-581885
Blog:
http://www.friendswithfop.com
http://www.ifopa.org (USA)
http://www.cfopn.org (CAN)
http://www.fopfriends.org (UK)
Music:
bensound.com/acousticbreeze
http://www.bensound.com/royalty-free-music/track/acoustic-breeze
- published: 06 Jun 2016
- views: 36246
DOCS: The Girl Whose Muscles Are Turning To Bone
- Order: Reorder
- Duration: 47:16
- Updated: 25 Apr 2017
- views: 2791894
SUBSCRIBE to Barcroft TV: http://bit.ly/Oc61Hj
Luciana Wulkan is a seven year old girl who lives a happy life in Bolton, England. Like other seven-year-olds sh...
SUBSCRIBE to Barcroft TV: http://bit.ly/Oc61Hj
Luciana Wulkan is a seven year old girl who lives a happy life in Bolton, England. Like other seven-year-olds she is a member of the Rainbows, loves going to school and seeing her friends and really, really wants to go horse riding. However unlike most young girls she understands the meaning of the words Fibrodysplasia Ossificans Progressiva, an extremely rare genetic condition that affects just 450 people worldwide. FOP is a degenerative disease that slowly paralyses the body. The faulty gene triggers muscles, tendons, ligaments, and other connective tissues to turn into bone.
CREDIT: ZIgZag
Barcroft TV: https://www.youtube.com/user/barcroftmedia/featured
Barcroft Animals: https://www.youtube.com/barcroftanimals/featured
Barcroft Cars: https://www.youtube.com/user/BarcroftCars/featured
Bear Grylls Adventure: https://www.youtube.com/channel/UCzcUNwS7mypzPhW4gsjO7og/featured
For more of the amazing side of life:
For the full story, visit BARCROFT.TV: http://www.barcroft.tv/
Like @BarcroftTV on Facebook: https://www.facebook.com/BarcroftTV
Follow @Barcroft_TV on Twitter: https://www.Twitter.com/Barcroft_TV
Check out more videos: https://www.youtube.com/user/barcroftmedia/videos
https://wn.com/Docs_The_Girl_Whose_Muscles_Are_Turning_To_Bone
SUBSCRIBE to Barcroft TV: http://bit.ly/Oc61Hj
Luciana Wulkan is a seven year old girl who lives a happy life in Bolton, England. Like other seven-year-olds she is a member of the Rainbows, loves going to school and seeing her friends and really, really wants to go horse riding. However unlike most young girls she understands the meaning of the words Fibrodysplasia Ossificans Progressiva, an extremely rare genetic condition that affects just 450 people worldwide. FOP is a degenerative disease that slowly paralyses the body. The faulty gene triggers muscles, tendons, ligaments, and other connective tissues to turn into bone.
CREDIT: ZIgZag
Barcroft TV: https://www.youtube.com/user/barcroftmedia/featured
Barcroft Animals: https://www.youtube.com/barcroftanimals/featured
Barcroft Cars: https://www.youtube.com/user/BarcroftCars/featured
Bear Grylls Adventure: https://www.youtube.com/channel/UCzcUNwS7mypzPhW4gsjO7og/featured
For more of the amazing side of life:
For the full story, visit BARCROFT.TV: http://www.barcroft.tv/
Like @BarcroftTV on Facebook: https://www.facebook.com/BarcroftTV
Follow @Barcroft_TV on Twitter: https://www.Twitter.com/Barcroft_TV
Check out more videos: https://www.youtube.com/user/barcroftmedia/videos
- published: 25 Apr 2017
- views: 2791894
Her muscles and ligaments are turning to bone
- Order: Reorder
- Duration: 2:26
- Updated: 26 Dec 2016
- views: 221109
Jasmin Floyd has fibrodysplasia ossificans progressiva, or FOP, a rare disease that's trapping her inside her own body.
Jasmin Floyd has fibrodysplasia ossificans progressiva, or FOP, a rare disease that's trapping her inside her own body.
https://wn.com/Her_Muscles_And_Ligaments_Are_Turning_To_Bone
PAW Patrol Rubble is fun playing - Coloring Pages fop Kids
- Order: Reorder
- Duration: 5:03
- Updated: 27 Apr 2017
- views: 81252
Coloring Book with Paw Patrol, Kids! We paint with colored Markers.
New video here: https://www.youtube.com/channel/UCXycbZqxJ4HpcSpVcprIsaQ
Coloring Book with Paw Patrol, Kids! We paint with colored Markers.
New video here: https://www.youtube.com/channel/UCXycbZqxJ4HpcSpVcprIsaQ
https://wn.com/Paw_Patrol_Rubble_Is_Fun_Playing_Coloring_Pages_Fop_Kids
Coloring Book with Paw Patrol, Kids! We paint with colored Markers.
New video here: https://www.youtube.com/channel/UCXycbZqxJ4HpcSpVcprIsaQ
- published: 27 Apr 2017
- views: 81252
Human Statue: Teenager's Muscles Turn To BONE Due To Rare Condition
- Order: Reorder
- Duration: 3:15
- Updated: 16 Feb 2016
- views: 83128
Luciana Wulkan, 17, suffers Fibrodysplasia Ossificans Progressiva (FOP) - an extremely rare connective tissue disease which affects just 800 people worldwide.
...
Luciana Wulkan, 17, suffers Fibrodysplasia Ossificans Progressiva (FOP) - an extremely rare connective tissue disease which affects just 800 people worldwide.
Also known as Stone Man Syndrome, it slowly turns muscles, tendons, ligaments into solid bone, and is currently incurable.
She was born with a stiff neck, and began struggling to move her joints as she grew.
Now studying for her A-levels, her jaw has also locked and she has lost the use of her right hand after her wrist muscles fused into bone.
But while the disease can leave sufferers completely immobilised, she is determined to remain positive, and even does her own make up every day with her left hand.
Miss Wulkan said:
'The condition is slowly calcifying my muscles and other soft tissues into bone.'
'It eventually leaves people with very limited movement but I'm not focusing on that, I won't let it control my life.'
'Both of my arms have limited movement so I can't put my arms over my head and my right wrist is also fused.
'But I still manage to do all my make-up myself and I've not allowed the condition to affect my studying.'
'I enjoy being sociable and going shopping and dining out with my friends and family.'
FOP is a genetic condition, but can be triggered by episodes of trauma, including knocks and falls, biopsies and surgery.
Miss Wulkan's mother, Mrs Di-Falco believes her daughter's condition was triggered when she fell down the stairs and bumped her head.
Mrs Di-Falco said:
'For Luciana living with FOP, bumps and falls can result in a flare-up which then often leads to further muscles turning into bone.'
'Both myself and Sandro are so proud of how she has dealt with the condition, it's extremely rare so not many doctors even know much about it.'
'It wasn't until we watched a documentary on TV that we realised Luciana had FOP.'
'Thankfully although the condition causes her muscles to turn into bone it is not painful all the time.'
FOP is so rare it affects just 800 people worldwide.
Fibrodysplasia Ossificans Progressiva (FOP) is one of the rarest, most disabling genetic conditions known to medicine.
It causes bone to form in muscles, tendons, ligaments and other connective tissues.
Ridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone.
There are no other known examples in medicine of one normal organ system turning into another.
Music by Kevin MacLeod /Easy Lemon/
http://incompetech.com/music/royalty-free/
Licensed under Creative Commons: By Attribution 4.0
http://creativecommons.org/licenses/by/4.0/
Blog: http://amazingworldnewsnow.blogspot.com
https://wn.com/Human_Statue_Teenager's_Muscles_Turn_To_Bone_Due_To_Rare_Condition
Luciana Wulkan, 17, suffers Fibrodysplasia Ossificans Progressiva (FOP) - an extremely rare connective tissue disease which affects just 800 people worldwide.
Also known as Stone Man Syndrome, it slowly turns muscles, tendons, ligaments into solid bone, and is currently incurable.
She was born with a stiff neck, and began struggling to move her joints as she grew.
Now studying for her A-levels, her jaw has also locked and she has lost the use of her right hand after her wrist muscles fused into bone.
But while the disease can leave sufferers completely immobilised, she is determined to remain positive, and even does her own make up every day with her left hand.
Miss Wulkan said:
'The condition is slowly calcifying my muscles and other soft tissues into bone.'
'It eventually leaves people with very limited movement but I'm not focusing on that, I won't let it control my life.'
'Both of my arms have limited movement so I can't put my arms over my head and my right wrist is also fused.
'But I still manage to do all my make-up myself and I've not allowed the condition to affect my studying.'
'I enjoy being sociable and going shopping and dining out with my friends and family.'
FOP is a genetic condition, but can be triggered by episodes of trauma, including knocks and falls, biopsies and surgery.
Miss Wulkan's mother, Mrs Di-Falco believes her daughter's condition was triggered when she fell down the stairs and bumped her head.
Mrs Di-Falco said:
'For Luciana living with FOP, bumps and falls can result in a flare-up which then often leads to further muscles turning into bone.'
'Both myself and Sandro are so proud of how she has dealt with the condition, it's extremely rare so not many doctors even know much about it.'
'It wasn't until we watched a documentary on TV that we realised Luciana had FOP.'
'Thankfully although the condition causes her muscles to turn into bone it is not painful all the time.'
FOP is so rare it affects just 800 people worldwide.
Fibrodysplasia Ossificans Progressiva (FOP) is one of the rarest, most disabling genetic conditions known to medicine.
It causes bone to form in muscles, tendons, ligaments and other connective tissues.
Ridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone.
There are no other known examples in medicine of one normal organ system turning into another.
Music by Kevin MacLeod /Easy Lemon/
http://incompetech.com/music/royalty-free/
Licensed under Creative Commons: By Attribution 4.0
http://creativecommons.org/licenses/by/4.0/
Blog: http://amazingworldnewsnow.blogspot.com
- published: 16 Feb 2016
- views: 83128
Boy Turning Into Stone: Ep. 01 "Fear & Strength"
- Order: Reorder
- Duration: 4:30
- Updated: 03 Mar 2015
- views: 301221
Join the #SoochCrew
Hi. Joey Sooch here! Follow me everywhere.
Donate here: https://fundly.com/stop-fop-1
Twitter: http://twitter.com/JoeySooch1
Instagram: ht...
Join the #SoochCrew
Hi. Joey Sooch here! Follow me everywhere.
Donate here: https://fundly.com/stop-fop-1
Twitter: http://twitter.com/JoeySooch1
Instagram: http://instagram.com/JoeySooch
Snapchat: JoeySooch
Myspace: lol
Website: http://JoeySooch.com
Shirts will be available soon for purchase if you want to show your support in other ways!
Business Inquiries: JSuchanek11@gmail.com
https://wn.com/Boy_Turning_Into_Stone_Ep._01_Fear_Strength
Join the #SoochCrew
Hi. Joey Sooch here! Follow me everywhere.
Donate here: https://fundly.com/stop-fop-1
Twitter: http://twitter.com/JoeySooch1
Instagram: http://instagram.com/JoeySooch
Snapchat: JoeySooch
Myspace: lol
Website: http://JoeySooch.com
Shirts will be available soon for purchase if you want to show your support in other ways!
Business Inquiries: JSuchanek11@gmail.com
- published: 03 Mar 2015
- views: 301221
Tyra Banks Show - Ashley Kurpiel - FOP
- Order: Reorder
- Duration: 9:19
- Updated: 13 Mar 2010
- views: 601310
http://www.facebook.com/1armbandit
Ashley Kurpiel has been featured on Mystery Diagnosis, 20/20 and the BBC. This video is from the Tyra Banks Show originally a...
http://www.facebook.com/1armbandit
Ashley Kurpiel has been featured on Mystery Diagnosis, 20/20 and the BBC. This video is from the Tyra Banks Show originally aired 2/25/10. Keep up with Ashley on Facebook or Twitter. http://www.twitter.com/1armbandit
As a point of reference, Ashley did not know what questions Tyra was going to ask beforehand.
https://wn.com/Tyra_Banks_Show_Ashley_Kurpiel_Fop
http://www.facebook.com/1armbandit
Ashley Kurpiel has been featured on Mystery Diagnosis, 20/20 and the BBC. This video is from the Tyra Banks Show originally aired 2/25/10. Keep up with Ashley on Facebook or Twitter. http://www.twitter.com/1armbandit
As a point of reference, Ashley did not know what questions Tyra was going to ask beforehand.
- published: 13 Mar 2010
- views: 601310
FOP Hugo i Outsiders Kanal 5 2007
- Order: Reorder
- Duration: 9:25
- Updated: 31 Jan 2012
- views: 151969
www.fopsverige.se Hugo 8år träffar tre kronor, inspelat i december 2006 sändes i feb 2007. FOP Fibrodysplasia Ossificans Progressiva är en genetisk mutation och...
www.fopsverige.se Hugo 8år träffar tre kronor, inspelat i december 2006 sändes i feb 2007. FOP Fibrodysplasia Ossificans Progressiva är en genetisk mutation och en av världens mest sällsynta diagnoser som omvandlar muskler, senor, ligament och annan sammanbindande vävnad till skelett.
https://wn.com/Fop_Hugo_I_Outsiders_Kanal_5_2007
www.fopsverige.se Hugo 8år träffar tre kronor, inspelat i december 2006 sändes i feb 2007. FOP Fibrodysplasia Ossificans Progressiva är en genetisk mutation och en av världens mest sällsynta diagnoser som omvandlar muskler, senor, ligament och annan sammanbindande vävnad till skelett.
- published: 31 Jan 2012
- views: 151969
FOP - Fibrodisplasia Ossificante Progressiva
- Order: Reorder
- Duration: 3:59
- Updated: 21 May 2013
- views: 9868
Martinha Brito portadora de uma doença rara
Martinha Brito portadora de uma doença rara
https://wn.com/Fop_Fibrodisplasia_Ossificante_Progressiva
Mystery Diagnosis: Girl Who Couldnt Move
- Order: Reorder
- Duration: 26:14
- Updated: 03 Mar 2009
- views: 3223535
A show about one of the most devastating medical disorders known to man: Fibrodisplasia Ossificans Progressiva (FOP).
My daughter has this and some of her phot...
A show about one of the most devastating medical disorders known to man: Fibrodisplasia Ossificans Progressiva (FOP).
My daughter has this and some of her photos were used in this documentary. Read more about Erin (and her friend Miranda) at www.friendswithfop.com
https://wn.com/Mystery_Diagnosis_Girl_Who_Couldnt_Move
A show about one of the most devastating medical disorders known to man: Fibrodisplasia Ossificans Progressiva (FOP).
My daughter has this and some of her photos were used in this documentary. Read more about Erin (and her friend Miranda) at www.friendswithfop.com
- published: 03 Mar 2009
- views: 3223535
FOP
- Order: Reorder
- Duration: 9:39
- Updated: 13 May 2013
- views: 464
- published: 13 May 2013
- views: 464
Mystery Diagnosis - FOP Part 4
- Order: Reorder
- Duration: 3:54
- Updated: 03 Mar 2009
- views: 63822
Mystery Diagnosis - FOP Part 4
Mystery Diagnosis - FOP Part 4
https://wn.com/Mystery_Diagnosis_Fop_Part_4
FOP disorder
- Order: Reorder
- Duration: 4:37
- Updated: 03 Jun 2016
- views: 1438
- published: 03 Jun 2016
- views: 1438
Friends With Rare FOP Disease Reunite
- Order: Reorder
- Duration: 3:43
- Updated: 18 Sep 2013
- views: 38451
It was a reunion of old friends, and they all have one of the rarest diseases on earth.
Nancy Sando said, "My jaw is completely fused."
Ashley Kurpiel said, "...
It was a reunion of old friends, and they all have one of the rarest diseases on earth.
Nancy Sando said, "My jaw is completely fused."
Ashley Kurpiel said, "My leg is fused at the hip."
Their condition causes their muscles, ligaments, and tendons to become bone, turning their bodies rock hard.
"We are turning into human statues. We can't move," said Kurpiel.
Three friends who suffer from a disease known as FOP (Fibrodysplasia Ossificans Progressiva). There are only 700 known cases in the world, and almost half of them are in the U.S.
Kurpiel lives outside Atlanta, Georgia. As a toddler, her arm was amputated after doctors misdiagnosed her with cancer. They missed the tell-tale signature of FOP disease, a crooked big toe. Now, her muscles have started hardening into bone.
"I cannot move this arm away from my body. It's like superglued to my side, my upper arm, because it does not move" said Kurpiel. Her neck and spine are now fused. Five years ago Kurpiel's leg got stuck in a bent position.
Kurpiel said, "Its stuck and that thigh is rock-hard bone."
A four-inch platform shoe enables her to walk. The 30-year-old showed INSIDE EDITION how she uses a drawer handle to take off her pants. A convenient closet door knob helps her get them back on.
Patrick Doerr showed INSIDE EDITION his lack of movement and said, "This is it for movement in the shoulders."
Doerr's jaw is nearly frozen shut. "Just enough to talk," said Patrick.
His mom, Gretchen, a pediatric nurse, was heartbroken when he was diagnosed.
"He was 17 and big and burley, and next thing you know he's in such severe pain," said Gretchen. She watched helplessly as his muscles and joints turned to solid bone.
Patrick said the condition causes, "Very intense swelling, very intense pain."
At 52, Sando is one of the oldest living people with FOP. As she inches her way toward the bed, it becomes obvious that her body is stiff as a board.
"God has given me the ability to find the joy in the little things in life," said Sando.
"It's a tremendous hardship. FOP is a devastating disease," said Dr. Frederick Kaplan.
Dr. Kaplan of the University of Pennsylvania is the leader in the fight against the disease, and personally sees to every case.
"We adore Nancy and Ashley and Patrick. They are all a testimony to human spirit. They're shining example what human beings can do when faced with such incredible adversity," said Dr. Kaplan.
With the reunion set, getting there would prove quite an undertaking.
Sando and her care giver left Michigan's Upper Peninsula, driving three hours in her minivan. Kurpiel gets a little help down the jet way in Atlanta, then walks on board her flight and takes her seat. Patrick boarded his plane in Philadelphia. When he found his seat, the 30-year-old accountant enjoyed a drink with his own ingenious invention, an extra-long straw.
The three friends finally made it to Detroit and settled in at their hotel. They shared techniques for doing all the things we all take for granted. They gathered by the pool, and Kurpiel took a refreshing swim.
Dinner proves the most challenging of all. Since Doerr and Sando's jaws are all but fused shut, they first use their lips to mash the food against their teeth, then push it through gaps.
And everywhere they go they draw inspiration from each other. It helps to know that they are not alone.
https://wn.com/Friends_With_Rare_Fop_Disease_Reunite
It was a reunion of old friends, and they all have one of the rarest diseases on earth.
Nancy Sando said, "My jaw is completely fused."
Ashley Kurpiel said, "My leg is fused at the hip."
Their condition causes their muscles, ligaments, and tendons to become bone, turning their bodies rock hard.
"We are turning into human statues. We can't move," said Kurpiel.
Three friends who suffer from a disease known as FOP (Fibrodysplasia Ossificans Progressiva). There are only 700 known cases in the world, and almost half of them are in the U.S.
Kurpiel lives outside Atlanta, Georgia. As a toddler, her arm was amputated after doctors misdiagnosed her with cancer. They missed the tell-tale signature of FOP disease, a crooked big toe. Now, her muscles have started hardening into bone.
"I cannot move this arm away from my body. It's like superglued to my side, my upper arm, because it does not move" said Kurpiel. Her neck and spine are now fused. Five years ago Kurpiel's leg got stuck in a bent position.
Kurpiel said, "Its stuck and that thigh is rock-hard bone."
A four-inch platform shoe enables her to walk. The 30-year-old showed INSIDE EDITION how she uses a drawer handle to take off her pants. A convenient closet door knob helps her get them back on.
Patrick Doerr showed INSIDE EDITION his lack of movement and said, "This is it for movement in the shoulders."
Doerr's jaw is nearly frozen shut. "Just enough to talk," said Patrick.
His mom, Gretchen, a pediatric nurse, was heartbroken when he was diagnosed.
"He was 17 and big and burley, and next thing you know he's in such severe pain," said Gretchen. She watched helplessly as his muscles and joints turned to solid bone.
Patrick said the condition causes, "Very intense swelling, very intense pain."
At 52, Sando is one of the oldest living people with FOP. As she inches her way toward the bed, it becomes obvious that her body is stiff as a board.
"God has given me the ability to find the joy in the little things in life," said Sando.
"It's a tremendous hardship. FOP is a devastating disease," said Dr. Frederick Kaplan.
Dr. Kaplan of the University of Pennsylvania is the leader in the fight against the disease, and personally sees to every case.
"We adore Nancy and Ashley and Patrick. They are all a testimony to human spirit. They're shining example what human beings can do when faced with such incredible adversity," said Dr. Kaplan.
With the reunion set, getting there would prove quite an undertaking.
Sando and her care giver left Michigan's Upper Peninsula, driving three hours in her minivan. Kurpiel gets a little help down the jet way in Atlanta, then walks on board her flight and takes her seat. Patrick boarded his plane in Philadelphia. When he found his seat, the 30-year-old accountant enjoyed a drink with his own ingenious invention, an extra-long straw.
The three friends finally made it to Detroit and settled in at their hotel. They shared techniques for doing all the things we all take for granted. They gathered by the pool, and Kurpiel took a refreshing swim.
Dinner proves the most challenging of all. Since Doerr and Sando's jaws are all but fused shut, they first use their lips to mash the food against their teeth, then push it through gaps.
And everywhere they go they draw inspiration from each other. It helps to know that they are not alone.
- published: 18 Sep 2013
- views: 38451
Fibrodysplasia.wmv
- Order: Reorder
- Duration: 4:04
- Updated: 08 Oct 2010
- views: 138175
A National Geographic video about Fibrodysplasia Ossificans Progressiva, Recorded by me.
Used Software:
Camtasia 7 (Video Recording)
Audacity (Audio Recording...
A National Geographic video about Fibrodysplasia Ossificans Progressiva, Recorded by me.
Used Software:
Camtasia 7 (Video Recording)
Audacity (Audio Recording)
Sony Vegas 9.0 e (Editing)
https://wn.com/Fibrodysplasia.Wmv
A National Geographic video about Fibrodysplasia Ossificans Progressiva, Recorded by me.
Used Software:
Camtasia 7 (Video Recording)
Audacity (Audio Recording)
Sony Vegas 9.0 e (Editing)
- published: 08 Oct 2010
- views: 138175
Genetic Mysteries: FOP - When Bodies Turn to Bone
- Order: Reorder
- Duration: 1:28:08
- Updated: 30 Dec 2013
- views: 13522
(Visit: http://www.uctv.tv/) Dr. Joseph A. Kitterman, UCSF Professor Emeritus of Pediatrics, explores Fibrodysplasia Ossificans Progressiva (FOP), a rare geneti...
(Visit: http://www.uctv.tv/) Dr. Joseph A. Kitterman, UCSF Professor Emeritus of Pediatrics, explores Fibrodysplasia Ossificans Progressiva (FOP), a rare genetic disease (incidence 1 in 2 million) and one of the most horrific conditions that affect humans. In FOP, skeletal muscle, tendons, and ligaments undergo endochondral ossification in episodes known as flare-ups that lead to progressive permanent loss of range motion in joints. Most people with FOP are initially given erroneous diagnoses, often leading to inappropriate treatment with permanent complications. Currently, there is no effective treatment, but recent research suggests there will be a clinical trial of treatment in the relatively near future.
Series: "UCSF Osher Center for Integrative Medicine presents Mini Medical School for the Public" [1/2014] [Health and Medicine] [Show ID: 25799]
https://wn.com/Genetic_Mysteries_Fop_When_Bodies_Turn_To_Bone
(Visit: http://www.uctv.tv/) Dr. Joseph A. Kitterman, UCSF Professor Emeritus of Pediatrics, explores Fibrodysplasia Ossificans Progressiva (FOP), a rare genetic disease (incidence 1 in 2 million) and one of the most horrific conditions that affect humans. In FOP, skeletal muscle, tendons, and ligaments undergo endochondral ossification in episodes known as flare-ups that lead to progressive permanent loss of range motion in joints. Most people with FOP are initially given erroneous diagnoses, often leading to inappropriate treatment with permanent complications. Currently, there is no effective treatment, but recent research suggests there will be a clinical trial of treatment in the relatively near future.
Series: "UCSF Osher Center for Integrative Medicine presents Mini Medical School for the Public" [1/2014] [Health and Medicine] [Show ID: 25799]
- published: 30 Dec 2013
- views: 13522
Inside edition FOP
- Order: Reorder
- Duration: 3:08
- Updated: 16 Nov 2013
- views: 6237
via YouTube Capture
via YouTube Capture
https://wn.com/Inside_Edition_Fop
Lebendig Versteinert - BBC Exklusiv exklusiv Münchmeyer Syndrom FOP Teil 2
- Order: Reorder
- Duration: 12:56
- Updated: 31 Jul 2013
- views: 10943
Genauso trug es sich zu bei Jeannie Peeper, geboren in Michigan 1958. Kein Arzt wurde stutzig angesichts der verbogenen Zehen von Roger zum Felde, geboren 1965 ...
Genauso trug es sich zu bei Jeannie Peeper, geboren in Michigan 1958. Kein Arzt wurde stutzig angesichts der verbogenen Zehen von Roger zum Felde, geboren 1965 bei Hamburg. Niemand schrie Alarm im bayerischen Kempten, als 1989 Matthias Sommer das Licht der Welt erblickte. Mit schiefen Zehen wurde am 11. September 1996 in New York Sophia Forshtay aus dem Mutterleib gezogen, ein munteres Baby von über 3500 Gramm Gewicht. Das mit den Zehen, sagten die Doktoren, das würde sich schon richten lassen.
Sie irrten.
Sie wussten nicht, was Fred Kaplan weiß. Kaplan, ein Mediziner am Uni-Krankenhaus in Philadelphia, hat seine Karriere und sein Leben dem Studium der bösen Botschaft gewidmet, die aus den verformten Gliedmaßen spricht. Kaplan, 51, hat in über zwölf Jahren mehr als 390 dieser Gezeichneten kennen gelernt, Kinder und Erwachsene, aus allen Erdteilen.
Er hat ihnen oder ihren Eltern die Wahrheit gesagt: Die krummen Zehen sind die Ankündigung einer Katastrophe im Körper, das sichere Merkmal einer Horror-Krankheit, die so selten ist, dass kaum ein Arzt je von ihr gehört hat.
https://wn.com/Lebendig_Versteinert_BBC_Exklusiv_Exklusiv_Münchmeyer_Syndrom_Fop_Teil_2
Genauso trug es sich zu bei Jeannie Peeper, geboren in Michigan 1958. Kein Arzt wurde stutzig angesichts der verbogenen Zehen von Roger zum Felde, geboren 1965 bei Hamburg. Niemand schrie Alarm im bayerischen Kempten, als 1989 Matthias Sommer das Licht der Welt erblickte. Mit schiefen Zehen wurde am 11. September 1996 in New York Sophia Forshtay aus dem Mutterleib gezogen, ein munteres Baby von über 3500 Gramm Gewicht. Das mit den Zehen, sagten die Doktoren, das würde sich schon richten lassen.
Sie irrten.
Sie wussten nicht, was Fred Kaplan weiß. Kaplan, ein Mediziner am Uni-Krankenhaus in Philadelphia, hat seine Karriere und sein Leben dem Studium der bösen Botschaft gewidmet, die aus den verformten Gliedmaßen spricht. Kaplan, 51, hat in über zwölf Jahren mehr als 390 dieser Gezeichneten kennen gelernt, Kinder und Erwachsene, aus allen Erdteilen.
Er hat ihnen oder ihren Eltern die Wahrheit gesagt: Die krummen Zehen sind die Ankündigung einer Katastrophe im Körper, das sichere Merkmal einer Horror-Krankheit, die so selten ist, dass kaum ein Arzt je von ihr gehört hat.
- published: 31 Jul 2013
- views: 10943
Fair use bears : fop
- Order: Reorder
- Duration: 11:52
- Updated: 07 Mar 2016
- views: 145292
Or how to wish your favorite characters to the real world
Or how to wish your favorite characters to the real world
https://wn.com/Fair_Use_Bears_Fop
Or how to wish your favorite characters to the real world
- published: 07 Mar 2016
- views: 145292
Yorick is 11 jaar en heeft F.O.P. (English subtitled)| RebelTV Sluis
- Order: Reorder
- Duration: 10:36
- Updated: 16 May 2015
- views: 1393
Yorick uit Aardenburg heeft F.O.P. Volgend weekend staat hij met zijn ouders op de Struisvogelboerderij in Sluis om geld voor onderzoek in te zamelen. Wat F.O.P...
Yorick uit Aardenburg heeft F.O.P. Volgend weekend staat hij met zijn ouders op de Struisvogelboerderij in Sluis om geld voor onderzoek in te zamelen. Wat F.O.P. is vroeg ik Yorick en zijn ouders in een gesprek. Een kleine reportage over Yorick. mensen kunnen ook storten op: IBAN: NL13RABO0171098412
t.n.v. Stichting Genees F.O.P. te Aardenburg
hun website: www.geneesfop.nl
https://wn.com/Yorick_Is_11_Jaar_En_Heeft_F.O.P._(English_Subtitled)|_Rebeltv_Sluis
Yorick uit Aardenburg heeft F.O.P. Volgend weekend staat hij met zijn ouders op de Struisvogelboerderij in Sluis om geld voor onderzoek in te zamelen. Wat F.O.P. is vroeg ik Yorick en zijn ouders in een gesprek. Een kleine reportage over Yorick. mensen kunnen ook storten op: IBAN: NL13RABO0171098412
t.n.v. Stichting Genees F.O.P. te Aardenburg
hun website: www.geneesfop.nl
- published: 16 May 2015
- views: 1393
- Playlist
- Chat
- Playlist
- Chat
5:17
This is FOP
Erin is one of 800 known cases of Fibrodysplasia Ossificans Progressiva. F.O.P. is one of...
published: 06 Jun 2016
This is FOP
This is FOP
- Report rights infringement
- published: 06 Jun 2016
- views: 36246
47:16
DOCS: The Girl Whose Muscles Are Turning To Bone
SUBSCRIBE to Barcroft TV: http://bit.ly/Oc61Hj
Luciana Wulkan is a seven year old girl wh...
published: 25 Apr 2017
DOCS: The Girl Whose Muscles Are Turning To Bone
DOCS: The Girl Whose Muscles Are Turning To Bone
- Report rights infringement
- published: 25 Apr 2017
- views: 2791894
2:26
Her muscles and ligaments are turning to bone
Jasmin Floyd has fibrodysplasia ossificans progressiva, or FOP, a rare disease that's trap...
published: 26 Dec 2016
Her muscles and ligaments are turning to bone
Her muscles and ligaments are turning to bone
- Report rights infringement
- published: 26 Dec 2016
- views: 221109
5:03
PAW Patrol Rubble is fun playing - Coloring Pages fop Kids
Coloring Book with Paw Patrol, Kids! We paint with colored Markers.
New video here: https...
published: 27 Apr 2017
PAW Patrol Rubble is fun playing - Coloring Pages fop Kids
PAW Patrol Rubble is fun playing - Coloring Pages fop Kids
- Report rights infringement
- published: 27 Apr 2017
- views: 81252
3:15
Human Statue: Teenager's Muscles Turn To BONE Due To Rare Condition
Luciana Wulkan, 17, suffers Fibrodysplasia Ossificans Progressiva (FOP) - an extremely ra...
published: 16 Feb 2016
Human Statue: Teenager's Muscles Turn To BONE Due To Rare Condition
Human Statue: Teenager's Muscles Turn To BONE Due To Rare Condition
- Report rights infringement
- published: 16 Feb 2016
- views: 83128
4:30
Boy Turning Into Stone: Ep. 01 "Fear & Strength"
Join the #SoochCrew
Hi. Joey Sooch here! Follow me everywhere.
Donate here: https://fund...
published: 03 Mar 2015
Boy Turning Into Stone: Ep. 01 "Fear & Strength"
Boy Turning Into Stone: Ep. 01 "Fear & Strength"
- Report rights infringement
- published: 03 Mar 2015
- views: 301221
9:19
Tyra Banks Show - Ashley Kurpiel - FOP
http://www.facebook.com/1armbandit
Ashley Kurpiel has been featured on Mystery Diagnosis, ...
published: 13 Mar 2010
Tyra Banks Show - Ashley Kurpiel - FOP
Tyra Banks Show - Ashley Kurpiel - FOP
- Report rights infringement
- published: 13 Mar 2010
- views: 601310
9:25
FOP Hugo i Outsiders Kanal 5 2007
www.fopsverige.se Hugo 8år träffar tre kronor, inspelat i december 2006 sändes i feb 2007....
published: 31 Jan 2012
FOP Hugo i Outsiders Kanal 5 2007
FOP Hugo i Outsiders Kanal 5 2007
- Report rights infringement
- published: 31 Jan 2012
- views: 151969
3:59
FOP - Fibrodisplasia Ossificante Progressiva
Martinha Brito portadora de uma doença rara
published: 21 May 2013
FOP - Fibrodisplasia Ossificante Progressiva
FOP - Fibrodisplasia Ossificante Progressiva
- Report rights infringement
- published: 21 May 2013
- views: 9868
26:14
Mystery Diagnosis: Girl Who Couldnt Move
A show about one of the most devastating medical disorders known to man: Fibrodisplasia Os...
published: 03 Mar 2009
Mystery Diagnosis: Girl Who Couldnt Move
Mystery Diagnosis: Girl Who Couldnt Move
- Report rights infringement
- published: 03 Mar 2009
- views: 3223535
9:39
FOP
published: 13 May 2013
FOP
FOP
- Report rights infringement
- published: 13 May 2013
- views: 464
3:54
Mystery Diagnosis - FOP Part 4
Mystery Diagnosis - FOP Part 4
published: 03 Mar 2009
Mystery Diagnosis - FOP Part 4
Mystery Diagnosis - FOP Part 4
- Report rights infringement
- published: 03 Mar 2009
- views: 63822
4:37
FOP disorder
published: 03 Jun 2016
FOP disorder
FOP disorder
- Report rights infringement
- published: 03 Jun 2016
- views: 1438
3:43
Friends With Rare FOP Disease Reunite
It was a reunion of old friends, and they all have one of the rarest diseases on earth.
N...
published: 18 Sep 2013
Friends With Rare FOP Disease Reunite
Friends With Rare FOP Disease Reunite
- Report rights infringement
- published: 18 Sep 2013
- views: 38451
This is FOP...
DOCS: The Girl Whose Muscles Are Turning To Bone...
Her muscles and ligaments are turning to bone...
PAW Patrol Rubble is fun playing - Coloring Pages ...
Human Statue: Teenager's Muscles Turn To BONE Due ...
Boy Turning Into Stone: Ep. 01 "Fear & Strength"...
Tyra Banks Show - Ashley Kurpiel - FOP...
FOP Hugo i Outsiders Kanal 5 2007...
FOP - Fibrodisplasia Ossificante Progressiva...
Mystery Diagnosis: Girl Who Couldnt Move...
FOP...
Mystery Diagnosis - FOP Part 4...
FOP disorder...
Friends With Rare FOP Disease Reunite...
Fibrodysplasia.wmv...
Genetic Mysteries: FOP - When Bodies Turn to Bone...
Inside edition FOP...
Lebendig Versteinert - BBC Exklusiv exklusiv Münch...
Fair use bears : fop...
Yorick is 11 jaar en heeft F.O.P. (English subtitl...
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Lyrics list:lyrics
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We In This Bitch, Webbie
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Ya'll Ain't Makin' No Money, Webbie
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Momma, Webbie
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Wipe Me Down Remix, Webbie
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Rubber Tonight, Webbie
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Selfish Minds, Phobia
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Revolutionary's Hell, Phobia
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Restraint And Riot, Phobia
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Mental Insurrection, Phobia
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Kill Off, Phobia
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developed with YouTube
We In This Bitch
We up in this bitch
We up in this bitch
We up in this bitch
Oh we up in this bitch
We up in this bitch
We up in this bitch
We up in this bitch
We up in this bitch
We up in this bitch
We up in this bitch
We up in this bitch
We up in this bitch
My house stupid
My car crazy
Pissy drunk throwin money
Fuck it
We made it
A street nigga
I'm not a star
My friends killas
My bitches straight Nicki Minaj
A crime boss
I'll cut ya time short
Find me on top chillin
Nigga my mind lost
You like to run off at the mouth
Like one of them hoes
Don't make me fuck around and show up
At one of them shows
My money long
Your money gone
Somebody told you wrong bitch boo coming home
Go ahead and leave me alone
I'll go straight bananas
I can barely see my dogs
Too much smoke in the phantom
Popping bottles of that Rose
Opposed for the cameras
The hoes tryna tear the doors to the floor to look at me
Anticipating something crazy
To the happen I'm ready
I ain't have to show a cat what was happenin in a minute
Savage Life
Trill Fam
Better check the records
Better respect this
Or you can get it nigga
We'll shut this mother fucker down
We up in this bitch
We up in this bitch
We'll shut this mother fucker down
We up in this bitch
We up in this bitch
We'll shut this mother fucker down
We up in this bitch
We up in this bitch
We'll shut this mother fucker down
We up in this bitch
We up in this bitch
We'll make this bitch close
And leave with some thick hoes
Pull up to a five star suite
Buy ten rooms
Get put out the Hilton
Go and buy ten more
In the middle of down town threw a party on the tenth floor
Get off the elevator
Hallway full of indo
Big blunts California kush
Got my eyes closed
Head back to the club
With the thugs
And the fine hoes
Ducked off VIPed up
Trying to get my dick sucked
Still here hell yea
Don't you get it mixed up
A hundred twenty five thousand dollars lit my wrist up
Pussy niggas feel me
Real niggas acknowledge me
Last night old crazy ass girl tried to swallow me
Fuck ass lawyer
He trying to get it out of me
Look I got ya bread hoe
You ain't gotta lie to me
Man I'm just been chilling bro
Just being who they trying to be
Stackin all my paper up
Hood nigga mentality
Ready for whatever man
Webbie Trill Family
We ain't going nowhere bitch
We here to stay
We'll shut this mother fucker down
We up in this bitch
We up in this bitch
We'll shut this mother fucker down
We up in this bitch
We up in this bitch
We'll shut this fucker down
We up in this bitch
We up in this bitch
We'll shut this fucker down
We up in this bitch
We up in this bitch
And we don't give a fuck
And we don't give a fuck
Today might be my last sp
I'm living it up
Straight face and some ass
So I'm chilling with her
Ready to spend more dollars
So send more bottles
Bitch you trying to kiss me on the mouth
That's a violation
All Black Masseratti
All white diamonds
Parked like a lion
Hoes like horses
I just love y'all voices
Car was so long
I couldn't even
Must park it
Left in the streets
Told them to leave it there and watch it
I'm in this bitch
I love to side it bitch
Man I got the kind of funny
I can buy this bitch
Got this celebrity cheese
Smoking celebrity weed
Bout as gansta as it get
Bitch you better believe
Trill Fam Webbie
Young SAV
Turn it up
You still ain't ready to leave
We'll shut this mother fucker down
We up in this bitch
We up in this bitch
We'll shut this mother fucker down
We up in this bitch
We up in this bitch
We'll shut this mother fucker down
We up in this bitch
We up in this bitch
We'll shut this mother fucker down
We up in this bitch
back
Over 9,000 people died in Mosul battle with IS militants
Edit Dawn 20 Dec 2017
Dying at home, on the front Digging into death. The price Mosul's residents paid in blood to see their city freed was between 9,000 and 11,000 dead ─ a civilian casualty rate nearly 10 times higher than what has been previously reported ... But Mosul's gravediggers, its morgue workers and the volunteers who retrieve bodies from the city's rubble are keeping count ... — AP ... —AP ... The US-led coalition has not offered an overall figure....
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Turkey Wants 4-Year Prison Term For NBA Star Enes Kanter After Erdogan Criticisms
Edit WorldNews.com 20 Dec 2017
Turkey's state-run news agency reported that prosecutors are asking for a lengthy prison term for New York Knicks center Enes Kanter after he insulted Turkish President Recep Tayyip Erdogan on Wednesday, according to The Washington Post. The indictment asks that the NBA star and Turkish national serve a prison term of longer than four years after he posted several tweets in May and June 2016 that were critical of Erdogan ... ....
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US Government Lifts Federal Ban On Making Lethal Viruses
Edit WorldNews.com 20 Dec 2017
The United States government lifted a three-year ban on altering germs to make them more lethal, saying that the potential benefits of disease preparedness outweigh the risks on Wednesday, according to BBC News. The labs will now be able to manufacture strains of influenza, Sars, and Middle East Respiratory Syndrome (Mers) after the ban was first implemented over safety breaches at federal institutions involving avian flu and anthrax....
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Centuries After First Native American Bioterrorism Attack, Homeland Security Plans Another
Edit WorldNews.com 20 Dec 2017
Article by WN.Com Correspondent Dallas Darling One man’s terrorist is not always another man’s freedom fighter. To be sure, there’s indisputable evidence not only did Anglo-Europeans exterminate Native Americans with the conviction there were classes of biological distinction, but did so with germ warfare ... Consequently, the Oklahoma-based Council of Confederated Chilocco Tribes are again fighting bioterrorism ... Lies Across America ... 416 ... ....
Police put wraps on Shop With a Cop program
Edit Rome News-Tribune 20 Dec 2017
“This is huge, we’ve had a hard year,” Battle said while helping her two year old daughter Sanayah Battle pick out a new doll Tuesday night ... This year, a special T-shirt sale, which is still going on, was the biggest fund raiser for the FOP ... “This is definitely the bright spot of the year.” ... Poole, who currently serves as treasurer of the FOP, said he’s been involved with the Shop With a Cop program from the outset ... ....
Local FOP, Crime Stoppers offer $5,000 reward in ambush shooting at officer
Edit The Columbus Dispatch 20 Dec 2017
Central Ohio Crime Stoppers and the Fraternal Order of Police Capital City Lodge No. 9 are offering a $5,000 reward for information leading to the arrest and indictment of an unknown suspect who fired nine to 10 shots at a Columbus Police officer Nov. 22 in South Linden.FOP No. 9 president Jason Pappas said Tuesday that the reward will be available for 30 days — through Jan ... ....
Delaware FOP deliver toys to A.I. duPont Hospital for Children
Edit The News Journal 19 Dec 2017
Delaware FOP and members of the New Castle County Police Department deliver toys to children at Nemours/Alfred I. duPont Hospital for Children in Rockland on Friday, Dec. 15, 2017 ... ....
Santa’s sleigh had sirens and emergency lights as Duval County students celebrated with the FOP
Edit The Florida Times Union 19 Dec 2017
The tension was palpable as J.C ... “I have an update on Santa,” he said ... “Will he give me a present?” he asked ... Sgt ... The FOP Lodge state trustee and his wife got an early holiday gift in the form of a week-old child, yet both were at the fairgrounds Monday to help set up the party ... “… We have some very dedicated individuals with FOP membership and our JSO family, and even some surrounding counties help out. The energy comes from these kids....
Caroline Optimist Club hosts Shop with a Cop
Edit The Star Democrat 19 Dec 2017
The Caroline County Optimist Club raised the money with help from businesses and local organizations, including Walmart, Pizza Empire, Sweet Caroline, Denton Volunteer Fire Company, Ridgely Volunteer Fire Department, Tu Voz LLC, Caroline Law Enforcement Officers FOP Lodge 118, American Legion Post 29, Chesapeake Hydro-Wash, Towers Concrete, Denton ......
HBO Revisits the Baltimore Uprising
Edit CityLab 19 Dec 2017
As the Baltimore police department contends with back-to-back years of record-high homicide rates, it’s also dealing with its own internal strife ... It’s quite a bit to unravel ... Adam Jackson ... The main thing is that the FOP [Fraternal Order of Police] union here in Baltimore do not want any residents on those trial boards. In fact the city has failed at negotiating a new contract with the FOP because that’s the one thing they don’t want ... ....
St. Clair County’s Christmas with a Cop helps nearly 100 area children
Edit The Voice 17 Dec 2017
Local law enforcement officers recently accompanied nearly 100 area children as they shopped for holiday gifts for their families. The St. Clair County Sheriff’s Office took part in the annual Christmas with a Cop event at the Fort Gratiot Township Meijer Dec ... “I am thankful for Meijer, Moran, the FOP Lodge and many members in our community who helped make this event possible,” Wendling noted ... ....
10 years after iPS, discovery of medicines speeding up
Edit The Japan News 15 Dec 2017
The trial is being carried out on persons suffering from fibrodysplasia ossificans progressiva (FOP), an incurable disease in which muscle tissue turns into bone ... First, iPS cells made from the cells of FOP sufferers were used to recreate the disease in vitro, and then roughly 6,800 types of compounds were sprinkled over the FOP cells individually....
More Chicago officers opt to grieve punishment
Edit The Telegraph Macon 15 Dec 2017
Chicago police officers have opted to grieve their punishments more often in recent years in a lengthy process that can delay not only punishment for officers, but information getting to the public about police wrongdoing, according to a newspaper investigation ... Never miss a local story ... SUBSCRIBE NOW ... "For them to deflect to us is a bit unfair but not untypical," said Dean Angelo Sr., who heads the local FOP chapter ... Comments. Videos. ....
Blueprint Medicines: Buy The Secondary
Edit Seeking Alpha 15 Dec 2017
Shares of Blueprint Medicines (BPMC) have risen by well over 200% since last December when I called the company "nascent leader in targeted oncology" ... BPMC data by YCharts ... Keep in mind additional upside is possible from BLU-554 in hepatocellular carcinoma, BLU-667 in RET-altered solid tumors (both in phase 1 studies), preclinical program BLU-782 for treating FOP (the main focus of ROTY holding Clementia Pharmaceuticals (NASDAQ.CMTA))....
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