Miss Universe's Tahlia Giumelli battled a life-changing disease in private

Soraiya Fuda,The Daily Telegraph bodyandsoul.com.au

The Australian model says her partner, NRL player Tom Burgess, "was really understanding" and has supported her through a chronic disease that 1 in 250 Australians live with. 

Photos: Instagram @tahliagiumelli

This article initially appeared on The Daily Telegraph and news.com.au, and was republished here with permission.

Miss Universe Australia finalist Tahlia Giumelli had to reveal her private battle to her new boyfriend, Rabbitohs star Tom Burgess, before they began dating.

Giumelli, who will compete for the prestigious crown in Bali in June, lives with Crohn’s disease, which she has battling since 2013.

The 24-year-old has been dating Burgess for six months and revealed she told him about her life-changing condition before they hit off their romance.

The Cronulla beauty said it was not hard to tell Burgess and that her entire family also suffers from the condition.

“I’m pretty honest and this is something I wouldn’t hide. Tom was really understanding,” she said.

“He’s been a good support through and through from the beginning — he’s always encouraging me.

“He’s amazing.”

Giumelli has had to make huge life changes including completely revamping her diet.

“No onion, no garlic, no mushrooms — the hardest is no red meat or avocado. I love avocado.”

“I can’t have anything high in fibre or fructose,” she said.

Crohn’s disease and ulcerative colitis is known as Inflammatory Bowel Disease. According to Crohn’s & Colitis Australia, inflammation in the colon, rectum and gastrointestinal tract can become so severe that sufferers need to be hospitalised and can require surgery.

Giumelli said she was grateful because her illness could have been “so much worse”.

“I have little unexpected bouts here and there — it does worry me — but I want to show people there is no good excuse to stop you to do what you want to do. Not just Crohn’s but with anything,” she said.

Giumelli fell sick during a trip to Germany when she was 20 years old.

“I got quite ill. I couldn’t walk and I couldn’t eat,” she said.

Today, Giumelli has shrugged off the stigmatised condition after she was announced as the ambassador and face of Crohn’s & Colitis Australia.

“Crohn’s disease doesn’t stop me. In fact, it motivates me to achieve anything,” she said.

“I hope to raise awareness and educate people about IBD and encourage those who suffer from this illness to live fearless and don’t let anything stop you from doing or achieving what you want.

“Maybe one day we can find a solution to this awful disease. In the meantime I hope to encourage everyone of all ages to live their life to their fullest. I’m incredibly lucky to have an amazing team of specialists who have allowed me to live my life and have worked with me on this journey.”

Crohn’s & Colitis Australia chief executive officer Francesca Manglaviti said one in 250 Australians live with the disease.

“With IBD patients (are) stigmatised and often misunderstood by others, they can be embarrassed to discuss their illness with family and friends,” she said.

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World IBD Day is on Friday May 19. It will see famous landmarks illuminated in purple to raise awareness about Crohn’s disease and Ulcerative Colitis.