Meet the Champions of the Albinism Cause
Discover inspirational stories told by persons with albinism, their supporters assisting them medically and those advocating for their human rights.
Discover inspirational stories told by persons with albinism, their supporters assisting them medically and those advocating for their human rights.
Albinism is a genetic condition inherited from both parents that occurs worldwide, regardless of ethnicity or gender.
The common lack of melanin pigment in the hair, skin and eyes of people with albinism causes vulnerability to sun exposure, which can lead to skin cancer and severe visual impairment.
As many as 1 in 5,000 people in Sub-Saharan Africa and 1 in 20,000 people in Europe and North America have albinism.
The term “person with albinism” is preferred to “albino”, which is often used in a derogatory way.
In some countries people with albinism suffer discrimination, poverty, stigma, violence and even killings.
Discrimination and violence against people with albinism mostly affect children, the elderly and women.
In 2000-2013 the UN Human Rights Office received over 200 reports of killings and dismembering of people with albinism for ritual purposes in 15 countries. Figures could be much higher.
In some countries, women who give birth to children with albinism are repudiated by their husbands, and their children abandoned or the victims of infanticide.
The physical appearance of people with albinism is often the object of erroneous beliefs and myths influenced by superstition, which foster marginalization and even violent attacks against them.
The movie industry has seldom portrayed people with albinism accurately, preferring to depict them as villains, demons or freaks of nature.
Prejudice impedes people with albinism from accessing adequate health care, social services, legal protection and redress for rights abuses.
People with albinism deserve to have their rights to life and security protected, as well as the right not to be subjected to torture and ill-treatment.
Violence against people with albinism is largely met by social silence and indifference, and is seldom followed by investigations or the prosecution of perpetrators.
Without effective and affordable access to justice, persons with albinism cannot claim their rights and challenge the human rights violations to which they are subjected.
The voice of people with albinism has been seldom heard, and efforts to protect and promote their human rights have been scattered and insufficient.
There are many ways you too can become a champion for the albinism cause.
Find out how you can learn more, help spread the word, and report human rights abuses against persons with albinism.