- published: 20 Nov 2015
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A rare disease, also referred to as an orphan disease, is any disease that affects a small percentage of the population.
Most rare diseases are genetic, and thus are present throughout the person's entire life, even if symptoms do not immediately appear. Many rare diseases appear early in life, and about 30 percent of children with rare diseases will die before reaching their fifth birthday. With a single diagnosed patient only, ribose-5-phosphate isomerase deficiency is considered the rarest genetic disease.
No single cutoff number has been agreed upon for which a disease is considered rare. A disease may be considered rare in one part of the world, or in a particular group of people, but still be common in another.
There is no single, widely accepted definition for rare diseases. Some definitions rely solely on the number of people living with a disease, and other definitions include other factors, such as the existence of adequate treatments or the severity of the disease.
Wikimedia Commons (or simply Commons) is an online repository of free-use images, sound, and other media files. It is a project of the Wikimedia Foundation.
Files from Wikimedia Commons can be used across all Wikimedia projects in all languages, including Wikipedia, Wikibooks, Wikivoyage, Wikispecies, Wikisource, and Wikinews, or downloaded for offsite use. The repository contains over 30 million media files. In July 2013, the number of edits on Commons reached 100,000,000.
The project was proposed by Erik Möller in March 2004 and launched on September 7, 2004. A key motivation behind the setup of a central repository was the desire to reduce duplication of effort across the Wikimedia projects and languages, as the same file had to be uploaded to many different wikis separately before Commons was created.
Several sister projects (e.g. Dutch, Swedish, Danish, Norwegian, Spanish, Basque, Polish, Czech and Slovak Wikipedias) moved all their media content to Commons and stopped allowing local uploading. Some projects, such as the English Wikipedia, have more compliant copyright policy and allow to upload and keep files which are not acceptable at Commons, e.g. fair use images.
Rare may refer to:
Top Five is a 2014 American comedy film written and directed by Chris Rock. The film, which stars Rock, Rosario Dawson, and Gabrielle Union, was screened in the Special Presentations section of the 2014 Toronto International Film Festival. The movie follows New York City comedian and film star Andre Allen (Rock), who has to confront his past and comedic career while doing an interview with journalist Chelsea Brown (Dawson). The film was released on December 12, 2014, by Paramount Pictures.
New York Times reporter Chelsea Brown is spending a day interviewing comedian and recovering alcoholic Andre Allen, star of the hit film franchise Hammy The Bear, about a cop in a bear suit. He is attempting a foray into serious films with Uprize, in which he portrays Haitian Revolution figure Dutty Boukman, and sensitive to criticism, particularly by Times critic James Nielson, whose previous reviews of Andre's work have been negative and insulting. As the interview begins in his limousine, Andre recalls his lowest point, when he was in Houston in 2003 and met Jazzy Dee, who supplied him with drugs, alcohol and women. Yet after Jazzy refused to pay the women, they contended they were raped, leading to Andre's arrest.
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Human history and hospitals have seen some bizarre and rare diseases throughout time. This is our top 10 list of the deadliest, scariest, creepiest and fatal diseases that WILL kill you! Feeling a bit feverish or sick maybe? Subscribe for new videos: http://goo.gl/SaufF4 Watch the “Leprosy” video here: https://www.youtube.com/watch?v=7O6qT7kFmrw&index;=35&list;=PLdSen-GVHIgj3bhoMIUGBDhaz9tZZyo95 Watch the “Loa Loa Worm” video here: https://www.youtube.com/watch?v=x8Ne1brAPDc&index;=14&list;=PLdSen-GVHIgi7lPIJm9FpFOC8WVbCSnvm Watch the “Lesch-Nyhan Syndrome” video here: https://www.youtube.com/watch?v=7WjM3xRyqhc&index;=37&list;=PLdSen-GVHIgj3bhoMIUGBDhaz9tZZyo95 Watch the “MRSA” video here: https://www.youtube.com/watch?v=keS0MQ9mgTo&list;=PLdSen-GVHIgj3bhoMIUGBDhaz9tZZyo95&index;=36 Watch the ...
Parents in California are speaking out about their baby daughter’s rare genetic disorder called dystrophic epidermolysis bullosa. It causes skin to be so fragile that it can blister or even tear from the slightest touch or bit of friction. ------------------------------------ iO 2 Channel: http://bit.ly/1DX899D iO Uncut Channel:http://bit.ly/1v7Q1cs ------------------------------------ STORY LINK: http://yhoo.it/1vhre28 ------------------------------------ MAIL US SOMETHING: P.O BOX # 14015 2408 Lakeshore Blvd W. Etobicoke, On M8V4A2 ------------------------------------ CONNECT WITH US: Website: http://www.informoverload.com Twitter: https://twitter.com/InformOverload Instagram: http://instagram.com/informoverload Facebook: https://www.facebook.com/InformOverload iO T-Shirts: ht...
Hey everyone. So today's video is something that is very personal and close to me. From the outside, I may look like just another normal 15-year old girl. Something that I've learned through all of this is that what you see on the outside may not always be the same on the inside. From 19 days in the hospital to seeing over 10 doctors who ordered endless amounts of tests, I am definitely far from "normal" at the moment. Even though this disease will become a big part of my life, I will not let it overpower me and take away opportunities. If you have any questions or things you would like to add about my condition, don't be afraid to put them in the comments. I will try my best to reply as best I can. Thank you so much for taking the time to watch this video, and have an amazing day. Psalm...
rare diseases|rare disorders|rare strange diseases|list of rare diseases|rare genetic diseases We'll look at the top 10 rare diseases and rare disorders, some of which you may never have heard of and rare diseases others which you hope you never will again. Top 10 Rarest Diseases in the World...rare diseases is the infrequency of their occurrence in the human population. Often rare diseases lifelong disease or disorder condition with a prevalence of 1 or less, per 1000 population is defined rare diseases by the World Health Organization (WHO) as a rare disease A rare disease, also referred to as an rare disorders, is any disease that affects a small percentage of the population. A disease or disorder is defined as rare in US when it affects less than 1 in 2000. One rare disease may affect...
http://melanoidnation.org/a-mysterious-disease-in-philadelphia-is-targeting-white-people/
Little Boy Looks Like a 100 Year Old Man ! Rare Disease Progeria. Sam Berns was a little boy. He fought with a rare disease called Progeria , which will rapid increase the aging process. But Sam Berns fought against the condition, it didn't affect his confidence. He did schooling, gaming everything as like us. Sam's family was a great support for him. At the age of 17, Sam Berns went from this world. But he still lives in our Hearts. RIP Sam.
Minecraft | I HAVE A RARE DISEASE?! ► Subscribe and join TeamTDM! :: http://bit.ly/TxtGm8 ► Previous video :: https://youtu.be/oMFF63DKWJI ► Follow Me on Twitter :: http://www.twitter.com/DiamondMinecart Today in another Minecraft Custom Map, we are back in the weirdest town ever in THE VALLEY 2!! I go from wanting to make the greatest soup ever to ending up in BIG trouble.. ► Play this Minecraft Map - The Valley 2 :: http://www.minecraftmaps.com/adventure-maps/the-valley-2 ► Second Channel :: http://www.youtube.com/MoreTDM ► Powered by Chillblast :: http://www.chillblast.com ► Merchandise! US: http://thediamondminecart.spreadshirt.com UK: http://thediamondminecartuk.spreadshirt.co.uk EU: http://thediamondminecart.spreadshirt.net Enjoy & remember to like, favourite and subscribe to s...
The world of medical disorders is seemingly infinite - just when you think you’ve heard it all, along comes something you never thought was possible. Here are 10 Rare Medical Disorders You Didn’t Know About: http://bit.ly/TOPTruthsEP13 10. Stone Man’s Disease 9. Tree Man Syndrome 8. Progressive Lipodystrophy 7. Geographic Tongue 6. Gastroschisis 5. Xeroderma Pigmentosum 4. Alopecia Areata 3. Nail-Patella Syndrome 2. Alen Hand Syndrome 1. Hereditary Sensory Neuropathy Top 10 Rare Medical Disorders You Didn't Know About: http://bit.ly/TOPTruthsEP13 See our previous episode here: http://bit.ly/TOPTruthsEP12 Watch more videos here: http://bit.ly/TOPTruthsYT Watch our playlists here: TOP Truths - Educational: http://bit.ly/TTEducational TOP Truths - Top 10: http://bit.ly/TOPTruthsTo...
Top 5 Rare and Extremely Horrific Diseases! Subscribe to see more List / Fact videos: http://goo.gl/7GvKSK Follow me on one of my social media accounts to be the first to see my videos! Facebook: www.facebook.com/wowsoamaze Twitter: www.twitter.com/wowsoamaze My personal Instagram Account : https://instagram.com/matt.r.c_ Music by Kevin Macleod (Incompotech.com) Images and videos are used under YouTube's fair usage policy. Licensed Under Creative Commons http://creativecommons.org/licenses/by/3.0/ This Countdown Includes : Number 5 - Fish Odour Syndrome Number 4 - Werewolf Syndrome Number 3 - Blue Skin Syndrome - Blue Fugates Number 2 - Madura Foot - Fungal Infection Number 1 - Cancrum Oris ( Noma ) - Gangrene to the face. Thank you for watching Top 5 Rare and Extremely Horrific ...
Unfortunately some of life is not pleasant and one of lifes most unpleasant experiences is disease, these are the top 10 rarest conditions. Subscribe To Most Amazing Top 10 Channel: http://bit.ly/1IPtQdq FOLLOW ME ON SOCIAL MEDIA FACEBOOK- https://www.facebook.com/pages/Landonproduction/268626033166262?ref=hl INSTAGRAM- http://instagram.com/landonproductions TWITTER- https://twitter.com/LandonYoutube VIDEO EDITED BY: Alan Smithee
health informatics
Most rare rare disease in the world
Alastair Kent, the Chair of Rare Disease UK and Director of Genetic Alliance UK talked about the UK Strategy for Rare Diseases.
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