- published: 11 Jul 2016
- views: 145
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Recently, we talked with Durhane Wong-Rieger, President and CEO of CORD (Canadian Organization for Rare Disorders) about the organization - its accomplishments, programs, and challenges.
For more information, visit www.raredisorders.ca
Published on May 25, 2015
3 million Canadians have a rare disease. Two-thirds of them are children. Many face enormous challenges like misdiagnosis, social isolation, financial hardship and early death. Canada's health care system is failing them. Canada’s Rare Disease Strategy will give them hope that they will get the same access to treatment and support that patients with more common illnesses receive.
Join our campaign at:
www.raredisorders.ca
www.facebook.com/RareDisorders
on twitter: @raredisorders
- published: 28 Jul 2015
- views: 139
Used with permission from the Canadian Fabry Association (CFA).
For more information on Fabry Disease, visit www.fabrycanada.com
For more information on rare disorders, contact the Canadian Organization for Rare Disorders (CORD) at www.raredisorders.ca
- published: 07 Apr 2011
- views: 6031
Used with permission from the Canadian Fabry Association (CFA).
For more information on Fabry Disease, visit www.fabrycanada.com
For more information on rare disorders, contact the Canadian Organization for Rare Disorders (CORD) at www.raredisorders.ca
- published: 07 Apr 2011
- views: 751
Durhane Wong-Rieger, president of the Canadian Organization for Rare Disorders (CORD) & MPP Michael Harris speak in the Queen's Park Media Studio about Rare Disease Day in Ontario.
- published: 01 Mar 2016
- views: 92
Recently we talked with Durhane Wong-Rieger, President and CEO of CORD (Canadian Organization for Rare Disorders) about the organization -- its accomplishments, programs, and challenges.
For more information, visit www.raredisorders.ca
- published: 11 Jul 2016
- views: 24
The Canadian Organization for Rare Disorders is holding a conference on February 29th here in Ottawa, their president explains what the organization does and what exactly rare disorders are.
- published: 28 Feb 2012
- views: 29
Used with permission from the Canadian Fabry Association (CFA).
For more information on Fabry Disease, visit www.fabrycanada.com
For more information on rare disorders, contact the Canadian Organization for Rare Disorders (CORD) at www.raredisorders.ca
- published: 07 Apr 2011
- views: 405
Canadian Organization for Rare Disorders
The Canadian Organization for Rare Disorders (CORD) is a Canadian registered charity that is a network of organizations who represent people affected by rare diseases. CORD's purpose is to provide a strong common voice advocating for a healthcare system and health policy for those with rare disorders.
Overview
CORD represents the orphan disorders community in the development of Canadian Orphan Drug Policy, including the proposed Expensive Drugs for Rare Disorders program within the National Pharmaceutical Strategy CORD is working to promote state-of-the-art Newborn Screening in all provinces and territories. CORD is working to ensure Canada's Clinical Trials Registry works effectively for those with rare disorders. CORD is committed to increasing access to genetic screening and genetic counseling for all rare disorders. Currently, Durhane Wong-Rieger is the President of CORD.
Their national offices are located in Toronto, Ontario, with an Alberta chapter located in Edmonton, Alberta.
This page contains text from Wikipedia, the Free Encyclopedia -
https://wn.com/Canadian_Organization_for_Rare_Disorders
This article is licensed under the Creative Commons Attribution-ShareAlike 3.0 Unported License, which means that you can copy and modify it as long as the entire work (including additions) remains under this license.
This article is licensed under the Creative Commons Attribution-ShareAlike 3.0 Unported License, which means that you can copy and modify it as long as the entire work (including additions) remains under this license.
Rare disease
A rare disease, also referred to as an orphan disease, is any disease that affects a small percentage of the population.
Most rare diseases are genetic, and thus are present throughout the person's entire life, even if symptoms do not immediately appear. Many rare diseases appear early in life, and about 30 percent of children with rare diseases will die before reaching their fifth birthday. With a single diagnosed patient only, ribose-5-phosphate isomerase deficiency is considered the rarest genetic disease.
No single cutoff number has been agreed upon for which a disease is considered rare. A disease may be considered rare in one part of the world, or in a particular group of people, but still be common in another.
Definition
There is no single, widely accepted definition for rare diseases. Some definitions rely solely on the number of people living with a disease, and other definitions include other factors, such as the existence of adequate treatments or the severity of the disease.
This page contains text from Wikipedia, the Free Encyclopedia -
https://wn.com/Rare_disease
This article is licensed under the Creative Commons Attribution-ShareAlike 3.0 Unported License, which means that you can copy and modify it as long as the entire work (including additions) remains under this license.
This article is licensed under the Creative Commons Attribution-ShareAlike 3.0 Unported License, which means that you can copy and modify it as long as the entire work (including additions) remains under this license.
Rare
Rare may refer to:
Organizations
Acronyms
Music
Albums
This page contains text from Wikipedia, the Free Encyclopedia -
https://wn.com/Rare
This article is licensed under the Creative Commons Attribution-ShareAlike 3.0 Unported License, which means that you can copy and modify it as long as the entire work (including additions) remains under this license.
This article is licensed under the Creative Commons Attribution-ShareAlike 3.0 Unported License, which means that you can copy and modify it as long as the entire work (including additions) remains under this license.
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8:34CORD (Canadian Organization for Rare Disorders)
CORD (Canadian Organization for Rare Disorders)CORD (Canadian Organization for Rare Disorders)
Recently, we talked with Durhane Wong-Rieger, President and CEO of CORD (Canadian Organization for Rare Disorders) about the organization - its accomplishments, programs, and challenges. For more information, visit www.raredisorders.ca -
1:01:56Canadian Organization for Rare Disorders
Canadian Organization for Rare DisordersCanadian Organization for Rare Disorders
-
11:37Now is the time - Canada Rare Disease Strategy
Now is the time - Canada Rare Disease StrategyNow is the time - Canada Rare Disease Strategy
Published on May 25, 2015 3 million Canadians have a rare disease. Two-thirds of them are children. Many face enormous challenges like misdiagnosis, social isolation, financial hardship and early death. Canada's health care system is failing them. Canada’s Rare Disease Strategy will give them hope that they will get the same access to treatment and support that patients with more common illnesses receive. Join our campaign at: www.raredisorders.ca www.facebook.com/RareDisorders on twitter: @raredisorders -
1:55Living Well With Fabry Disease - 1. Introduction
Living Well With Fabry Disease - 1. IntroductionLiving Well With Fabry Disease - 1. Introduction
Used with permission from the Canadian Fabry Association (CFA). For more information on Fabry Disease, visit www.fabrycanada.com For more information on rare disorders, contact the Canadian Organization for Rare Disorders (CORD) at www.raredisorders.ca -
2:50Rare Disease Advocates Urge Health Minister's to Implement a National Rare Disease Strategy
Rare Disease Advocates Urge Health Minister's to Implement a National Rare Disease StrategyRare Disease Advocates Urge Health Minister's to Implement a National Rare Disease Strategy
-
2:33Living Well With Fabry Disease - 4. Canadian Fabry Association
Living Well With Fabry Disease - 4. Canadian Fabry AssociationLiving Well With Fabry Disease - 4. Canadian Fabry Association
Used with permission from the Canadian Fabry Association (CFA). For more information on Fabry Disease, visit www.fabrycanada.com For more information on rare disorders, contact the Canadian Organization for Rare Disorders (CORD) at www.raredisorders.ca -
5:36Rare Disease Day: CORD & MPP Michael Harris
Rare Disease Day: CORD & MPP Michael HarrisRare Disease Day: CORD & MPP Michael Harris
Durhane Wong-Rieger, president of the Canadian Organization for Rare Disorders (CORD) & MPP Michael Harris speak in the Queen's Park Media Studio about Rare Disease Day in Ontario. -
8:34Conversation with President of CORD
Conversation with President of CORDConversation with President of CORD
Recently we talked with Durhane Wong-Rieger, President and CEO of CORD (Canadian Organization for Rare Disorders) about the organization -- its accomplishments, programs, and challenges. For more information, visit www.raredisorders.ca -
4:26Rare Disorders
Rare DisordersRare Disorders
The Canadian Organization for Rare Disorders is holding a conference on February 29th here in Ottawa, their president explains what the organization does and what exactly rare disorders are. -
1:47Living Well With Fabry Disease - 8. Be brave
Living Well With Fabry Disease - 8. Be braveLiving Well With Fabry Disease - 8. Be brave
Used with permission from the Canadian Fabry Association (CFA). For more information on Fabry Disease, visit www.fabrycanada.com For more information on rare disorders, contact the Canadian Organization for Rare Disorders (CORD) at www.raredisorders.ca
-
CORD (Canadian Organization for Rare Disorders)
Recently, we talked with Durhane Wong-Rieger, President and CEO of CORD (Canadian Organization for Rare Disorders) about the organization - its accomplishments, programs, and challenges. For more information, visit www.raredisorders.ca
published: 11 Jul 2016 -
Canadian Organization for Rare Disorders
published: 08 May 2016 -
Now is the time - Canada Rare Disease Strategy
Published on May 25, 2015 3 million Canadians have a rare disease. Two-thirds of them are children. Many face enormous challenges like misdiagnosis, social isolation, financial hardship and early death. Canada's health care system is failing them. Canada’s Rare Disease Strategy will give them hope that they will get the same access to treatment and support that patients with more common illnesses receive. Join our campaign at: www.raredisorders.ca www.facebook.com/RareDisorders on twitter: @raredisorders
published: 28 Jul 2015 -
Living Well With Fabry Disease - 1. Introduction
Used with permission from the Canadian Fabry Association (CFA). For more information on Fabry Disease, visit www.fabrycanada.com For more information on rare disorders, contact the Canadian Organization for Rare Disorders (CORD) at www.raredisorders.ca
published: 07 Apr 2011 -
Rare Disease Advocates Urge Health Minister's to Implement a National Rare Disease Strategy
published: 20 Jan 2016 -
Living Well With Fabry Disease - 4. Canadian Fabry Association
Used with permission from the Canadian Fabry Association (CFA). For more information on Fabry Disease, visit www.fabrycanada.com For more information on rare disorders, contact the Canadian Organization for Rare Disorders (CORD) at www.raredisorders.ca
published: 07 Apr 2011 -
Rare Disease Day: CORD & MPP Michael Harris
Durhane Wong-Rieger, president of the Canadian Organization for Rare Disorders (CORD) & MPP Michael Harris speak in the Queen's Park Media Studio about Rare Disease Day in Ontario.
published: 01 Mar 2016 -
Conversation with President of CORD
Recently we talked with Durhane Wong-Rieger, President and CEO of CORD (Canadian Organization for Rare Disorders) about the organization -- its accomplishments, programs, and challenges. For more information, visit www.raredisorders.ca
published: 11 Jul 2016 -
Rare Disorders
The Canadian Organization for Rare Disorders is holding a conference on February 29th here in Ottawa, their president explains what the organization does and what exactly rare disorders are.
published: 28 Feb 2012 -
Living Well With Fabry Disease - 8. Be brave
Used with permission from the Canadian Fabry Association (CFA). For more information on Fabry Disease, visit www.fabrycanada.com For more information on rare disorders, contact the Canadian Organization for Rare Disorders (CORD) at www.raredisorders.ca
published: 07 Apr 2011
CORD (Canadian Organization for Rare Disorders)
- Order: Reorder
- Duration: 8:34
- Updated: 11 Jul 2016
- views: 145
Recently, we talked with Durhane Wong-Rieger, President and CEO of CORD (Canadian Organization for Rare Disorders) about the organization - its accomplishments,...
Recently, we talked with Durhane Wong-Rieger, President and CEO of CORD (Canadian Organization for Rare Disorders) about the organization - its accomplishments, programs, and challenges.
For more information, visit www.raredisorders.ca
https://wn.com/Cord_(Canadian_Organization_For_Rare_Disorders)
Recently, we talked with Durhane Wong-Rieger, President and CEO of CORD (Canadian Organization for Rare Disorders) about the organization - its accomplishments, programs, and challenges.
For more information, visit www.raredisorders.ca
- published: 11 Jul 2016
- views: 145
Canadian Organization for Rare Disorders
- Order: Reorder
- Duration: 1:01:56
- Updated: 08 May 2016
- views: 13
- published: 08 May 2016
- views: 13
Now is the time - Canada Rare Disease Strategy
- Order: Reorder
- Duration: 11:37
- Updated: 28 Jul 2015
- views: 139
Published on May 25, 2015
3 million Canadians have a rare disease. Two-thirds of them are children. Many face enormous challenges like misdiagnosis, social iso...
Published on May 25, 2015
3 million Canadians have a rare disease. Two-thirds of them are children. Many face enormous challenges like misdiagnosis, social isolation, financial hardship and early death. Canada's health care system is failing them. Canada’s Rare Disease Strategy will give them hope that they will get the same access to treatment and support that patients with more common illnesses receive.
Join our campaign at:
www.raredisorders.ca
www.facebook.com/RareDisorders
on twitter: @raredisorders
https://wn.com/Now_Is_The_Time_Canada_Rare_Disease_Strategy
Published on May 25, 2015
3 million Canadians have a rare disease. Two-thirds of them are children. Many face enormous challenges like misdiagnosis, social isolation, financial hardship and early death. Canada's health care system is failing them. Canada’s Rare Disease Strategy will give them hope that they will get the same access to treatment and support that patients with more common illnesses receive.
Join our campaign at:
www.raredisorders.ca
www.facebook.com/RareDisorders
on twitter: @raredisorders
- published: 28 Jul 2015
- views: 139
Living Well With Fabry Disease - 1. Introduction
- Order: Reorder
- Duration: 1:55
- Updated: 07 Apr 2011
- views: 6031
Used with permission from the Canadian Fabry Association (CFA).
For more information on Fabry Disease, visit www.fabrycanada.com
For more information on rar...
Used with permission from the Canadian Fabry Association (CFA).
For more information on Fabry Disease, visit www.fabrycanada.com
For more information on rare disorders, contact the Canadian Organization for Rare Disorders (CORD) at www.raredisorders.ca
https://wn.com/Living_Well_With_Fabry_Disease_1._Introduction
Used with permission from the Canadian Fabry Association (CFA).
For more information on Fabry Disease, visit www.fabrycanada.com
For more information on rare disorders, contact the Canadian Organization for Rare Disorders (CORD) at www.raredisorders.ca
- published: 07 Apr 2011
- views: 6031
Rare Disease Advocates Urge Health Minister's to Implement a National Rare Disease Strategy
- Order: Reorder
- Duration: 2:50
- Updated: 20 Jan 2016
- views: 609
- published: 20 Jan 2016
- views: 609
Living Well With Fabry Disease - 4. Canadian Fabry Association
- Order: Reorder
- Duration: 2:33
- Updated: 07 Apr 2011
- views: 751
Used with permission from the Canadian Fabry Association (CFA).
For more information on Fabry Disease, visit www.fabrycanada.com
For more information on rar...
Used with permission from the Canadian Fabry Association (CFA).
For more information on Fabry Disease, visit www.fabrycanada.com
For more information on rare disorders, contact the Canadian Organization for Rare Disorders (CORD) at www.raredisorders.ca
https://wn.com/Living_Well_With_Fabry_Disease_4._Canadian_Fabry_Association
Used with permission from the Canadian Fabry Association (CFA).
For more information on Fabry Disease, visit www.fabrycanada.com
For more information on rare disorders, contact the Canadian Organization for Rare Disorders (CORD) at www.raredisorders.ca
- published: 07 Apr 2011
- views: 751
Rare Disease Day: CORD & MPP Michael Harris
- Order: Reorder
- Duration: 5:36
- Updated: 01 Mar 2016
- views: 92
Durhane Wong-Rieger, president of the Canadian Organization for Rare Disorders (CORD) & MPP Michael Harris speak in the Queen's Park Media Studio about Rare Di...
Durhane Wong-Rieger, president of the Canadian Organization for Rare Disorders (CORD) & MPP Michael Harris speak in the Queen's Park Media Studio about Rare Disease Day in Ontario.
https://wn.com/Rare_Disease_Day_Cord_Mpp_Michael_Harris
Durhane Wong-Rieger, president of the Canadian Organization for Rare Disorders (CORD) & MPP Michael Harris speak in the Queen's Park Media Studio about Rare Disease Day in Ontario.
- published: 01 Mar 2016
- views: 92
Conversation with President of CORD
- Order: Reorder
- Duration: 8:34
- Updated: 11 Jul 2016
- views: 24
Recently we talked with Durhane Wong-Rieger, President and CEO of CORD (Canadian Organization for Rare Disorders) about the organization -- its accomplishments,...
Recently we talked with Durhane Wong-Rieger, President and CEO of CORD (Canadian Organization for Rare Disorders) about the organization -- its accomplishments, programs, and challenges.
For more information, visit www.raredisorders.ca
https://wn.com/Conversation_With_President_Of_Cord
Recently we talked with Durhane Wong-Rieger, President and CEO of CORD (Canadian Organization for Rare Disorders) about the organization -- its accomplishments, programs, and challenges.
For more information, visit www.raredisorders.ca
- published: 11 Jul 2016
- views: 24
Rare Disorders
- Order: Reorder
- Duration: 4:26
- Updated: 28 Feb 2012
- views: 29
The Canadian Organization for Rare Disorders is holding a conference on February 29th here in Ottawa, their president explains what the organization does and wh...
The Canadian Organization for Rare Disorders is holding a conference on February 29th here in Ottawa, their president explains what the organization does and what exactly rare disorders are.
https://wn.com/Rare_Disorders
The Canadian Organization for Rare Disorders is holding a conference on February 29th here in Ottawa, their president explains what the organization does and what exactly rare disorders are.
- published: 28 Feb 2012
- views: 29
Living Well With Fabry Disease - 8. Be brave
- Order: Reorder
- Duration: 1:47
- Updated: 07 Apr 2011
- views: 405
Used with permission from the Canadian Fabry Association (CFA).
For more information on Fabry Disease, visit www.fabrycanada.com
For more information on rare d...
Used with permission from the Canadian Fabry Association (CFA).
For more information on Fabry Disease, visit www.fabrycanada.com
For more information on rare disorders, contact the Canadian Organization for Rare Disorders (CORD) at www.raredisorders.ca
https://wn.com/Living_Well_With_Fabry_Disease_8._Be_Brave
Used with permission from the Canadian Fabry Association (CFA).
For more information on Fabry Disease, visit www.fabrycanada.com
For more information on rare disorders, contact the Canadian Organization for Rare Disorders (CORD) at www.raredisorders.ca
- published: 07 Apr 2011
- views: 405
-
CORD (Canadian Organization for Rare Disorders)
Recently, we talked with Durhane Wong-Rieger, President and CEO of CORD (Canadian Organization for Rare Disorders) about the organization - its accomplishments, programs, and challenges. For more information, visit www.raredisorders.ca
published: 11 Jul 2016 -
Canadian Organization for Rare Disorders
published: 08 May 2016 -
Now is the time - Canada Rare Disease Strategy
Published on May 25, 2015 3 million Canadians have a rare disease. Two-thirds of them are children. Many face enormous challenges like misdiagnosis, social isolation, financial hardship and early death. Canada's health care system is failing them. Canada’s Rare Disease Strategy will give them hope that they will get the same access to treatment and support that patients with more common illnesses receive. Join our campaign at: www.raredisorders.ca www.facebook.com/RareDisorders on twitter: @raredisorders
published: 28 Jul 2015 -
Living Well With Fabry Disease - 1. Introduction
Used with permission from the Canadian Fabry Association (CFA). For more information on Fabry Disease, visit www.fabrycanada.com For more information on rare disorders, contact the Canadian Organization for Rare Disorders (CORD) at www.raredisorders.ca
published: 07 Apr 2011 -
Rare Disease Advocates Urge Health Minister's to Implement a National Rare Disease Strategy
published: 20 Jan 2016 -
Living Well With Fabry Disease - 4. Canadian Fabry Association
Used with permission from the Canadian Fabry Association (CFA). For more information on Fabry Disease, visit www.fabrycanada.com For more information on rare disorders, contact the Canadian Organization for Rare Disorders (CORD) at www.raredisorders.ca
published: 07 Apr 2011 -
Rare Disease Day: CORD & MPP Michael Harris
Durhane Wong-Rieger, president of the Canadian Organization for Rare Disorders (CORD) & MPP Michael Harris speak in the Queen's Park Media Studio about Rare Disease Day in Ontario.
published: 01 Mar 2016 -
Conversation with President of CORD
Recently we talked with Durhane Wong-Rieger, President and CEO of CORD (Canadian Organization for Rare Disorders) about the organization -- its accomplishments, programs, and challenges. For more information, visit www.raredisorders.ca
published: 11 Jul 2016 -
Rare Disorders
The Canadian Organization for Rare Disorders is holding a conference on February 29th here in Ottawa, their president explains what the organization does and what exactly rare disorders are.
published: 28 Feb 2012 -
Living Well With Fabry Disease - 8. Be brave
Used with permission from the Canadian Fabry Association (CFA). For more information on Fabry Disease, visit www.fabrycanada.com For more information on rare disorders, contact the Canadian Organization for Rare Disorders (CORD) at www.raredisorders.ca
published: 07 Apr 2011
CORD (Canadian Organization for Rare Disorders)
- Order: Reorder
- Duration: 8:34
- Updated: 11 Jul 2016
- views: 145
Recently, we talked with Durhane Wong-Rieger, President and CEO of CORD (Canadian Organization for Rare Disorders) about the organization - its accomplishments,...
Recently, we talked with Durhane Wong-Rieger, President and CEO of CORD (Canadian Organization for Rare Disorders) about the organization - its accomplishments, programs, and challenges.
For more information, visit www.raredisorders.ca
https://wn.com/Cord_(Canadian_Organization_For_Rare_Disorders)
Recently, we talked with Durhane Wong-Rieger, President and CEO of CORD (Canadian Organization for Rare Disorders) about the organization - its accomplishments, programs, and challenges.
For more information, visit www.raredisorders.ca
- published: 11 Jul 2016
- views: 145
Canadian Organization for Rare Disorders
- Order: Reorder
- Duration: 1:01:56
- Updated: 08 May 2016
- views: 13
- published: 08 May 2016
- views: 13
Now is the time - Canada Rare Disease Strategy
- Order: Reorder
- Duration: 11:37
- Updated: 28 Jul 2015
- views: 139
Published on May 25, 2015
3 million Canadians have a rare disease. Two-thirds of them are children. Many face enormous challenges like misdiagnosis, social iso...
Published on May 25, 2015
3 million Canadians have a rare disease. Two-thirds of them are children. Many face enormous challenges like misdiagnosis, social isolation, financial hardship and early death. Canada's health care system is failing them. Canada’s Rare Disease Strategy will give them hope that they will get the same access to treatment and support that patients with more common illnesses receive.
Join our campaign at:
www.raredisorders.ca
www.facebook.com/RareDisorders
on twitter: @raredisorders
https://wn.com/Now_Is_The_Time_Canada_Rare_Disease_Strategy
Published on May 25, 2015
3 million Canadians have a rare disease. Two-thirds of them are children. Many face enormous challenges like misdiagnosis, social isolation, financial hardship and early death. Canada's health care system is failing them. Canada’s Rare Disease Strategy will give them hope that they will get the same access to treatment and support that patients with more common illnesses receive.
Join our campaign at:
www.raredisorders.ca
www.facebook.com/RareDisorders
on twitter: @raredisorders
- published: 28 Jul 2015
- views: 139
Living Well With Fabry Disease - 1. Introduction
- Order: Reorder
- Duration: 1:55
- Updated: 07 Apr 2011
- views: 6031
Used with permission from the Canadian Fabry Association (CFA).
For more information on Fabry Disease, visit www.fabrycanada.com
For more information on rar...
Used with permission from the Canadian Fabry Association (CFA).
For more information on Fabry Disease, visit www.fabrycanada.com
For more information on rare disorders, contact the Canadian Organization for Rare Disorders (CORD) at www.raredisorders.ca
https://wn.com/Living_Well_With_Fabry_Disease_1._Introduction
Used with permission from the Canadian Fabry Association (CFA).
For more information on Fabry Disease, visit www.fabrycanada.com
For more information on rare disorders, contact the Canadian Organization for Rare Disorders (CORD) at www.raredisorders.ca
- published: 07 Apr 2011
- views: 6031
Rare Disease Advocates Urge Health Minister's to Implement a National Rare Disease Strategy
- Order: Reorder
- Duration: 2:50
- Updated: 20 Jan 2016
- views: 609
- published: 20 Jan 2016
- views: 609
Living Well With Fabry Disease - 4. Canadian Fabry Association
- Order: Reorder
- Duration: 2:33
- Updated: 07 Apr 2011
- views: 751
Used with permission from the Canadian Fabry Association (CFA).
For more information on Fabry Disease, visit www.fabrycanada.com
For more information on rar...
Used with permission from the Canadian Fabry Association (CFA).
For more information on Fabry Disease, visit www.fabrycanada.com
For more information on rare disorders, contact the Canadian Organization for Rare Disorders (CORD) at www.raredisorders.ca
https://wn.com/Living_Well_With_Fabry_Disease_4._Canadian_Fabry_Association
Used with permission from the Canadian Fabry Association (CFA).
For more information on Fabry Disease, visit www.fabrycanada.com
For more information on rare disorders, contact the Canadian Organization for Rare Disorders (CORD) at www.raredisorders.ca
- published: 07 Apr 2011
- views: 751
Rare Disease Day: CORD & MPP Michael Harris
- Order: Reorder
- Duration: 5:36
- Updated: 01 Mar 2016
- views: 92
Durhane Wong-Rieger, president of the Canadian Organization for Rare Disorders (CORD) & MPP Michael Harris speak in the Queen's Park Media Studio about Rare Di...
Durhane Wong-Rieger, president of the Canadian Organization for Rare Disorders (CORD) & MPP Michael Harris speak in the Queen's Park Media Studio about Rare Disease Day in Ontario.
https://wn.com/Rare_Disease_Day_Cord_Mpp_Michael_Harris
Durhane Wong-Rieger, president of the Canadian Organization for Rare Disorders (CORD) & MPP Michael Harris speak in the Queen's Park Media Studio about Rare Disease Day in Ontario.
- published: 01 Mar 2016
- views: 92
Conversation with President of CORD
- Order: Reorder
- Duration: 8:34
- Updated: 11 Jul 2016
- views: 24
Recently we talked with Durhane Wong-Rieger, President and CEO of CORD (Canadian Organization for Rare Disorders) about the organization -- its accomplishments,...
Recently we talked with Durhane Wong-Rieger, President and CEO of CORD (Canadian Organization for Rare Disorders) about the organization -- its accomplishments, programs, and challenges.
For more information, visit www.raredisorders.ca
https://wn.com/Conversation_With_President_Of_Cord
Recently we talked with Durhane Wong-Rieger, President and CEO of CORD (Canadian Organization for Rare Disorders) about the organization -- its accomplishments, programs, and challenges.
For more information, visit www.raredisorders.ca
- published: 11 Jul 2016
- views: 24
Rare Disorders
- Order: Reorder
- Duration: 4:26
- Updated: 28 Feb 2012
- views: 29
The Canadian Organization for Rare Disorders is holding a conference on February 29th here in Ottawa, their president explains what the organization does and wh...
The Canadian Organization for Rare Disorders is holding a conference on February 29th here in Ottawa, their president explains what the organization does and what exactly rare disorders are.
https://wn.com/Rare_Disorders
The Canadian Organization for Rare Disorders is holding a conference on February 29th here in Ottawa, their president explains what the organization does and what exactly rare disorders are.
- published: 28 Feb 2012
- views: 29
Living Well With Fabry Disease - 8. Be brave
- Order: Reorder
- Duration: 1:47
- Updated: 07 Apr 2011
- views: 405
Used with permission from the Canadian Fabry Association (CFA).
For more information on Fabry Disease, visit www.fabrycanada.com
For more information on rare d...
Used with permission from the Canadian Fabry Association (CFA).
For more information on Fabry Disease, visit www.fabrycanada.com
For more information on rare disorders, contact the Canadian Organization for Rare Disorders (CORD) at www.raredisorders.ca
https://wn.com/Living_Well_With_Fabry_Disease_8._Be_Brave
Used with permission from the Canadian Fabry Association (CFA).
For more information on Fabry Disease, visit www.fabrycanada.com
For more information on rare disorders, contact the Canadian Organization for Rare Disorders (CORD) at www.raredisorders.ca
- published: 07 Apr 2011
- views: 405
-
Canadian Organization for Rare Disorders
published: 08 May 2016 -
Teens with Rare Diseases: Helping Them Transition to Adulthood
Living with a rare condition is challenging, and living well with a chronic condition is a continuous challenge. Life as a teen with a chronic rare condition transitioning to adulthood is a challenging journey that no child should take alone. Which is exactly why the innovative Comprehensive Transition Program in Hemoglobinopathies at the Hospital for Sick Kids was developed. A pilot project that has been in place for two years, it provides an innovative model of care based on other transition programs but also designed for the unique needs of young people with rare blood disorders. This webinar starts with a discussion of the rationale and framework for Canada's Rare Disease Strategy presented by the president of the Canadian Organization for Rare Disorders. It is paired with a repo...
published: 11 Aug 2016 -
WEBINAR: Pharma Funding of Patient Groups
In this webinar, our panelists explored ethics, transparency, resources, alignment and conflicts in the important relationships between companies and patient groups. This webinar presented perspectives from subject matter experts from the innovative medicines industry, governance experts, and patient advocates. Panelists: Hugh Scott, Executive Director, Strategic Alliances at Innovative Medicines Canada. Rosy Sasso, acting Director, Ethics and Compliance at Innovative Medicines Canada. Brian Huskins, the Senior Fellow of Not-For-Profit Governance at the Institute on Governance. Martine Elias, Director of Access, Advocacy & Community Relations with Myeloma Canada. Dr. Durhane Wong-Rieger, PhD, President and CEO of the Canadian Organization for Rare Disorders. Moderator: Bill...
published: 16 Jun 2016 -
WEBINAR: Rare Cancers - How to Empower Patients & Advocacy Organizations through Collaboration
Please share this webinar with anyone who may be interested! Watch all our webinars: https://www.youtube.com/playlist?list=PL4dDQscmFYu_ezxuxnAE61hx4JlqAKXpR Webinar Information: The cancer survivor community knows the statistics about cancer all too well: that nearly half of all Canadians will develop cancer over the course of their lives, and that a quarter of them are forecasted to die from the disease. There are dozens of less prevalent cancer types that face significant and different challenges in terms of organization, research and support. The prognosis for many rare cancers is improving as new treatments are developed, however, in Canada, getting access to new therapies and clinical trials is one of many challenges faced by small communities often struggling with the disease ...
published: 12 Dec 2016
Canadian Organization for Rare Disorders
- Order: Reorder
- Duration: 1:01:56
- Updated: 08 May 2016
- views: 12
- published: 08 May 2016
- views: 12
Teens with Rare Diseases: Helping Them Transition to Adulthood
- Order: Reorder
- Duration: 1:22:27
- Updated: 11 Aug 2016
- views: 71
Living with a rare condition is challenging, and living well with a chronic condition is a continuous challenge. Life as a teen with a chronic rare condition ...
Living with a rare condition is challenging, and living well with a chronic condition is a continuous challenge. Life as a teen with a chronic rare condition transitioning to adulthood is a challenging journey that no child should take alone. Which is exactly why the innovative Comprehensive Transition Program in Hemoglobinopathies at the Hospital for Sick Kids was developed. A pilot project that has been in place for two years, it provides an innovative model of care based on other transition programs but also designed for the unique needs of young people with rare blood disorders. This webinar starts with a discussion of the rationale and framework for Canada's Rare Disease Strategy presented by the president of the Canadian Organization for Rare Disorders. It is paired with a report on the first two years of the pilot Transition Hemoglobinopathies Program presented by Sick Kids UHN Transition Navigator.
https://wn.com/Teens_With_Rare_Diseases_Helping_Them_Transition_To_Adulthood
Living with a rare condition is challenging, and living well with a chronic condition is a continuous challenge. Life as a teen with a chronic rare condition transitioning to adulthood is a challenging journey that no child should take alone. Which is exactly why the innovative Comprehensive Transition Program in Hemoglobinopathies at the Hospital for Sick Kids was developed. A pilot project that has been in place for two years, it provides an innovative model of care based on other transition programs but also designed for the unique needs of young people with rare blood disorders. This webinar starts with a discussion of the rationale and framework for Canada's Rare Disease Strategy presented by the president of the Canadian Organization for Rare Disorders. It is paired with a report on the first two years of the pilot Transition Hemoglobinopathies Program presented by Sick Kids UHN Transition Navigator.
- published: 11 Aug 2016
- views: 71
WEBINAR: Pharma Funding of Patient Groups
- Order: Reorder
- Duration: 54:18
- Updated: 16 Jun 2016
- views: 72
In this webinar, our panelists explored ethics, transparency, resources, alignment and conflicts in the important relationships between companies and patient gr...
In this webinar, our panelists explored ethics, transparency, resources, alignment and conflicts in the important relationships between companies and patient groups.
This webinar presented perspectives from subject matter experts from the innovative medicines industry, governance experts, and patient advocates.
Panelists:
Hugh Scott, Executive Director, Strategic Alliances at Innovative Medicines Canada.
Rosy Sasso, acting Director, Ethics and Compliance at Innovative Medicines Canada.
Brian Huskins, the Senior Fellow of Not-For-Profit Governance at the Institute on Governance.
Martine Elias, Director of Access, Advocacy & Community Relations with Myeloma Canada.
Dr. Durhane Wong-Rieger, PhD, President and CEO of the Canadian Organization for Rare Disorders.
Moderator: Bill Dempster, 3Sixty Public Affairs
https://wn.com/Webinar_Pharma_Funding_Of_Patient_Groups
In this webinar, our panelists explored ethics, transparency, resources, alignment and conflicts in the important relationships between companies and patient groups.
This webinar presented perspectives from subject matter experts from the innovative medicines industry, governance experts, and patient advocates.
Panelists:
Hugh Scott, Executive Director, Strategic Alliances at Innovative Medicines Canada.
Rosy Sasso, acting Director, Ethics and Compliance at Innovative Medicines Canada.
Brian Huskins, the Senior Fellow of Not-For-Profit Governance at the Institute on Governance.
Martine Elias, Director of Access, Advocacy & Community Relations with Myeloma Canada.
Dr. Durhane Wong-Rieger, PhD, President and CEO of the Canadian Organization for Rare Disorders.
Moderator: Bill Dempster, 3Sixty Public Affairs
- published: 16 Jun 2016
- views: 72
WEBINAR: Rare Cancers - How to Empower Patients & Advocacy Organizations through Collaboration
- Order: Reorder
- Duration: 1:04:13
- Updated: 12 Dec 2016
- views: 33
Please share this webinar with anyone who may be interested!
Watch all our webinars: https://www.youtube.com/playlist?list=PL4dDQscmFYu_ezxuxnAE61hx4JlqAKXpR ...
Please share this webinar with anyone who may be interested!
Watch all our webinars: https://www.youtube.com/playlist?list=PL4dDQscmFYu_ezxuxnAE61hx4JlqAKXpR
Webinar Information:
The cancer survivor community knows the statistics about cancer all too well: that nearly half of all Canadians will develop cancer over the course of their lives, and that a quarter of them are forecasted to die from the disease. There are dozens of less prevalent cancer types that face significant and different challenges in terms of organization, research and support. The prognosis for many rare cancers is improving as new treatments are developed, however, in Canada, getting access to new therapies and clinical trials is one of many challenges faced by small communities often struggling with the disease and dealing with life’s myriad other challenges.
This webinar will explore what individual caregivers can do, how groups can work together to pool resources and share best practices and information, and provide concrete recommendations for the broader cancer community in Canada. You will learn more about how patients are working with each other, and with the clinical and research community and health systems, to improve the lives of Canadians affected by rare cancers!
Presenters:
• David Josephy, President of GIST Sarcoma Life Raft Group Canada
• Martine Elias, Director of Access, Advocacy & Community Relations with Myeloma Canada
• Durhane Wong-Rieger, President & CEO of the Canadian Organization for Rare Disorders (CORD)
• Bill Dempster, 3Sixty Public Affairs
View the slides: https://www.slideshare.net/jackiemanthorne/rare-cancers-how-to-empower-patients-advocacy-org00anizations-through-collaboration/edit?src=slideview
Follow our social media accounts:
Twitter - https://twitter.com/survivornetca
Facebook - https://www.facebook.com/CanadianSurvivorNet
Pinterest - https://www.pinterest.com/survivornetwork
YouTube - https://www.youtube.com/user/Survivornetca
https://wn.com/Webinar_Rare_Cancers_How_To_Empower_Patients_Advocacy_Organizations_Through_Collaboration
Please share this webinar with anyone who may be interested!
Watch all our webinars: https://www.youtube.com/playlist?list=PL4dDQscmFYu_ezxuxnAE61hx4JlqAKXpR
Webinar Information:
The cancer survivor community knows the statistics about cancer all too well: that nearly half of all Canadians will develop cancer over the course of their lives, and that a quarter of them are forecasted to die from the disease. There are dozens of less prevalent cancer types that face significant and different challenges in terms of organization, research and support. The prognosis for many rare cancers is improving as new treatments are developed, however, in Canada, getting access to new therapies and clinical trials is one of many challenges faced by small communities often struggling with the disease and dealing with life’s myriad other challenges.
This webinar will explore what individual caregivers can do, how groups can work together to pool resources and share best practices and information, and provide concrete recommendations for the broader cancer community in Canada. You will learn more about how patients are working with each other, and with the clinical and research community and health systems, to improve the lives of Canadians affected by rare cancers!
Presenters:
• David Josephy, President of GIST Sarcoma Life Raft Group Canada
• Martine Elias, Director of Access, Advocacy & Community Relations with Myeloma Canada
• Durhane Wong-Rieger, President & CEO of the Canadian Organization for Rare Disorders (CORD)
• Bill Dempster, 3Sixty Public Affairs
View the slides: https://www.slideshare.net/jackiemanthorne/rare-cancers-how-to-empower-patients-advocacy-org00anizations-through-collaboration/edit?src=slideview
Follow our social media accounts:
Twitter - https://twitter.com/survivornetca
Facebook - https://www.facebook.com/CanadianSurvivorNet
Pinterest - https://www.pinterest.com/survivornetwork
YouTube - https://www.youtube.com/user/Survivornetca
- published: 12 Dec 2016
- views: 33
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CORD (Canadian Organization for Rare Disorders)
Recently, we talked with Durhane Wong-Rieger, President and CEO of CORD (Canadian Organiza...
published: 11 Jul 2016
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CORD (Canadian Organization for Rare Disorders)
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Canadian Organization for Rare Disorders
published: 08 May 2016
Canadian Organization for Rare Disorders
Canadian Organization for Rare Disorders
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Now is the time - Canada Rare Disease Strategy
Published on May 25, 2015
3 million Canadians have a rare disease. Two-thirds of them are...
published: 28 Jul 2015
Now is the time - Canada Rare Disease Strategy
Now is the time - Canada Rare Disease Strategy
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1:55
Living Well With Fabry Disease - 1. Introduction
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published: 07 Apr 2011
Living Well With Fabry Disease - 1. Introduction
Living Well With Fabry Disease - 1. Introduction
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2:50
Rare Disease Advocates Urge Health Minister's to Implement a National Rare Disease Strategy
published: 20 Jan 2016
Rare Disease Advocates Urge Health Minister's to Implement a National Rare Disease Strategy
Rare Disease Advocates Urge Health Minister's to Implement a National Rare Disease Strategy
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- published: 20 Jan 2016
- views: 609
2:33
Living Well With Fabry Disease - 4. Canadian Fabry Association
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published: 07 Apr 2011
Living Well With Fabry Disease - 4. Canadian Fabry Association
Living Well With Fabry Disease - 4. Canadian Fabry Association
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5:36
Rare Disease Day: CORD & MPP Michael Harris
Durhane Wong-Rieger, president of the Canadian Organization for Rare Disorders (CORD) & MP...
published: 01 Mar 2016
Rare Disease Day: CORD & MPP Michael Harris
Rare Disease Day: CORD & MPP Michael Harris
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- published: 01 Mar 2016
- views: 92
8:34
Conversation with President of CORD
Recently we talked with Durhane Wong-Rieger, President and CEO of CORD (Canadian Organizat...
published: 11 Jul 2016
Conversation with President of CORD
Conversation with President of CORD
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- views: 24
4:26
Rare Disorders
The Canadian Organization for Rare Disorders is holding a conference on February 29th here...
published: 28 Feb 2012
Rare Disorders
Rare Disorders
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- published: 28 Feb 2012
- views: 29
1:47
Living Well With Fabry Disease - 8. Be brave
Used with permission from the Canadian Fabry Association (CFA).
For more information on Fa...
published: 07 Apr 2011
Living Well With Fabry Disease - 8. Be brave
Living Well With Fabry Disease - 8. Be brave
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CORD (Canadian Organization for Rare Disorders)
Recently, we talked with Durhane Wong-Rieger, President and CEO of CORD (Canadian Organiza...
published: 11 Jul 2016
CORD (Canadian Organization for Rare Disorders)
CORD (Canadian Organization for Rare Disorders)
- Report rights infringement
- published: 11 Jul 2016
- views: 145
1:01:56
Canadian Organization for Rare Disorders
published: 08 May 2016
Canadian Organization for Rare Disorders
Canadian Organization for Rare Disorders
- Report rights infringement
- published: 08 May 2016
- views: 13
11:37
Now is the time - Canada Rare Disease Strategy
Published on May 25, 2015
3 million Canadians have a rare disease. Two-thirds of them are...
published: 28 Jul 2015
Now is the time - Canada Rare Disease Strategy
Now is the time - Canada Rare Disease Strategy
- Report rights infringement
- published: 28 Jul 2015
- views: 139
1:55
Living Well With Fabry Disease - 1. Introduction
Used with permission from the Canadian Fabry Association (CFA).
For more information on F...
published: 07 Apr 2011
Living Well With Fabry Disease - 1. Introduction
Living Well With Fabry Disease - 1. Introduction
- Report rights infringement
- published: 07 Apr 2011
- views: 6031
2:50
Rare Disease Advocates Urge Health Minister's to Implement a National Rare Disease Strategy
published: 20 Jan 2016
Rare Disease Advocates Urge Health Minister's to Implement a National Rare Disease Strategy
Rare Disease Advocates Urge Health Minister's to Implement a National Rare Disease Strategy
- Report rights infringement
- published: 20 Jan 2016
- views: 609
2:33
Living Well With Fabry Disease - 4. Canadian Fabry Association
Used with permission from the Canadian Fabry Association (CFA).
For more information on F...
published: 07 Apr 2011
Living Well With Fabry Disease - 4. Canadian Fabry Association
Living Well With Fabry Disease - 4. Canadian Fabry Association
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- published: 07 Apr 2011
- views: 751
5:36
Rare Disease Day: CORD & MPP Michael Harris
Durhane Wong-Rieger, president of the Canadian Organization for Rare Disorders (CORD) & MP...
published: 01 Mar 2016
Rare Disease Day: CORD & MPP Michael Harris
Rare Disease Day: CORD & MPP Michael Harris
- Report rights infringement
- published: 01 Mar 2016
- views: 92
8:34
Conversation with President of CORD
Recently we talked with Durhane Wong-Rieger, President and CEO of CORD (Canadian Organizat...
published: 11 Jul 2016
Conversation with President of CORD
Conversation with President of CORD
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- published: 11 Jul 2016
- views: 24
4:26
Rare Disorders
The Canadian Organization for Rare Disorders is holding a conference on February 29th here...
published: 28 Feb 2012
Rare Disorders
Rare Disorders
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- published: 28 Feb 2012
- views: 29
1:47
Living Well With Fabry Disease - 8. Be brave
Used with permission from the Canadian Fabry Association (CFA).
For more information on Fa...
published: 07 Apr 2011
Living Well With Fabry Disease - 8. Be brave
Living Well With Fabry Disease - 8. Be brave
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Canadian Organization for Rare Disorders
published: 08 May 2016
Canadian Organization for Rare Disorders
Canadian Organization for Rare Disorders
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1:22:27
Teens with Rare Diseases: Helping Them Transition to Adulthood
Living with a rare condition is challenging, and living well with a chronic condition is a...
published: 11 Aug 2016
Teens with Rare Diseases: Helping Them Transition to Adulthood
Teens with Rare Diseases: Helping Them Transition to Adulthood
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- published: 11 Aug 2016
- views: 71
54:18
WEBINAR: Pharma Funding of Patient Groups
In this webinar, our panelists explored ethics, transparency, resources, alignment and con...
published: 16 Jun 2016
WEBINAR: Pharma Funding of Patient Groups
WEBINAR: Pharma Funding of Patient Groups
- Report rights infringement
- published: 16 Jun 2016
- views: 72
1:04:13
WEBINAR: Rare Cancers - How to Empower Patients & Advocacy Organizations through Collaboration
Please share this webinar with anyone who may be interested!
Watch all our webinars: htt...
published: 12 Dec 2016
WEBINAR: Rare Cancers - How to Empower Patients & Advocacy Organizations through Collaboration
WEBINAR: Rare Cancers - How to Empower Patients & Advocacy Organizations through Collaboration
- Report rights infringement
- published: 12 Dec 2016
- views: 33
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United CEO Apologizes For 'Horrific Event,' Promises Full Review Of Policies
Edit WorldNews.com 11 Apr 2017
The firestorm swirling around the violent dragging of a man from his seat on a United Airlines flight Sunday night continued Tuesday as the carrier’s chief executive announced an internal investigation would be launched and the airline went into full spin mode as conflicting corporate statements, falling stocks and swelling outrage struck the airline, The Washington Post reported ... I’m not getting off the flight,’” Bridges said....
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North Korea Tells Foreign Journalists To Prepare For 'Big, Important' Event Thursday
Edit WorldNews.com 12 Apr 2017
North Korea’s government cancelled scheduled events for a national holiday Thursday and instead told foreign journalists visiting the reclusive country to prepare for a “big and important event” on that day, although there were no indications it was linked to the current tensions in the region over the isolated state’s nuclear weapons program, Reuters reported....
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United passenger forcefully removed takes legal action
Edit Review Journal 13 Apr 2017
Lawyers for the passenger dragged from a United Airlines plane in Chicago filed an emergency request with an Illinois state court on Wednesday to require the carrier to preserve video recordings and other evidence related to the incident ... ....
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First Female Muslim Judge In US Found Dead in Hudson River
Edit WorldNews.com 13 Apr 2017
A judge who was the first Muslim woman in United States history to serve on the bench was found dead on Wednesday near the Manhattan side of the Hudson River, according to The New York Post ... Cuomo wrote in a statement Wednesday night. "I was proud to appoint her to the state’s highest court and am deeply saddened by her passing.” ... -WN.com, Maureen Foody....
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North Korea preparing for sixth nuclear test, satellite images show
Edit Hindustan Times 13 Apr 2017
North Korea is ready to launch a nuclear test at its Punggye-ri Nuclear Test Site, the 38 North monitoring group reported. The 38 North analysis group described the test site as “primed and ready.” ... Read more. North Korea’s Kim Jong Un oversees special forces op as tensions soar. Trump offers trade deal with China to confront North Korea threat ... “We are sending an armada. Very powerful,” Trump had said ... Envoy ... ....
Boy battled rare disorder with enthusiasm before being gunned down in his San Bernardino classroom
Edit The Los Angeles Times 13 Apr 2017
The 8-year-old was born with Williams syndrome, a rare ......
Fat-shamed Madhya Pradesh cop raring to 'chase criminals'
Edit Mid Day 13 Apr 2017
A recent photo of Daulatram Jogawat ... But, a bariatric surgery later, Police Inspector Daulatram Jogawat is not only 15 kg lighter, but is raring to "chase criminals". The 58-year-old underwent Gastric Bypass surgery on March 2 at Saifee Hospital ... 'Outlook has changed' ... I weighed around 165 kgs on March 31 ... Jogawat, who joined the police force in 1979 as a police constable, resumed work from Monday and says he's raring to chase criminals ... ....
Over �2000 raised for charity in support of brave Renton girl with rare condition
Edit Daily Record 13 Apr 2017Selfie stampede: Destroying rare desert blooms for the Likes
Edit Mashable 13 Apr 2017
There’s an old saying among people who cherish the outdoors. “Take only pictures, leave only footprints.” ... ....
White Sox 2, Indians 1 | Salazar gets K's, Holland the 'W'
Edit The Columbus Dispatch 13 Apr 2017
CLEVELAND — When it comes to Danny Salazar, he has rarely met a Chicago White Sox batter he couldn't strike out. When it comes to Derek Holland, he has rarely faced an Cleveland Indians team he couldn't beat.Those two trends collided on Wednesday night at Progressive Field and the status quo held firm ... ....
Deadpool vs. Punisher #1 Review
Edit IGN Insider 13 Apr 2017
Whether he's battling Gambit, Thanos or the entire Marvel Universe, Marvel's publishing lineup is rarely without at least one crossover-focused Deadpool comic ... Fred Van Lente's name crops up too rarely in the Marvel U....
Le Clos Celebrates Sale of Vintage The Macallan 18-Year-Old Vertical Collection
Edit Market Watch 13 Apr 2017
Purchase follows Le Clos' record USD $500,000 sale of The Macallan Fine and Rare in ... The purchase of 29 bottles of The Macallan 18-Year-Old Vertical comes just three months after a world record-breaking, USD $500,000 sale of a Macallan Fine and Rare collection in December 2016 at the same store....
15 injured on Qantas flight following "stick shaker" stall alert: Aussie safety bureau
Edit China Daily 13 Apr 2017
CANBERRA - Fifteen passengers on a Qantas flight from Melbourne to Hong Kong were injured after a "stick shaker" incident occurred on a Boeing 747 jet last week, the Australian Transport Safety Bureau (ATSB) confirmed on Thursday ... It's a phenomenon one aviation expert described as "extremely rare" but "very serious." ... Fifteen passengers received minor injuries ... He said they were both "extremely rare" and "very, very serious." ... ....
Fast and Furious facts: Things you may not know about the successful franchise
Edit WPXI 13 Apr 2017
Another installment of the Fast and the Furious series is coming out. >> Read more trending news. Here are seven facts fans might want to know before seeing “The Fate of the Furious.”. Source. Fast and Furious Facts . Rare People by Rare on Rumble Paul Walker wasn’t the first choice to play Brian O’Conner ... . © 2017 Cox Media Group. Twtter. ....
Positive Inciarte enjoys rare 2-HR game
Edit Public Technologies 13 Apr 2017
'I ended up having a great day just because I came with the right attitude,' said Inciarte, who entered the finale of an eight-game road trip batting .152 (5-for-33), with a double standing as his lone extra-base hit ... 'I know he's been working hard ... Original documenthttp.//mlb.mlb.com/news/article/atl/braves-ender-inciarte-enjoys-rare-2-homer-game?ymd=20170413&content_id=224005558&vkey=news_atl ... (noodl. 38406544) ....
A chat with Shubha Mudgal ahead of her performance in Mumbai
Edit Mid Day 13 Apr 2017
She has been performing in Mumbai for more than three decades, and has seen the city's cultural scene evolve ... Today, the building houses the National Gallery of Modern Art and is rarely used as a performance space ... My training is in Hindustani Classical music, and therefore, on the rare occasions that I have sung for films, it has been for situations in a film or for composers who have wanted to work with a classically trained voice....
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