- published: 31 May 2016
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Stephanie Keene (October 13, 1992 – April 5, 1995), better known by the pseudonym Baby K, was an anencephalic baby who became the center of a major U.S. court case and a debate among bioethicists.
Stephanie Keene was born at Fairfax Hospital in Virginia, the United States. At the time of her birth, she was missing most of her brain, including the cortex; only the brainstem, the portion of the brain responsible for autonomic and regulatory functions, such as the control of respiration, the heartbeat and blood pressure, had developed during pregnancy.
Keene's mother had been notified of her condition following ultrasonography, and was advised to terminate the pregnancy by her obstetrician and neonatologist but chose to carry the child to term because of "a firm Christian faith that all life should be protected." The hospital believed that care provided to the baby would be futile, while the mother believed mechanical breathing support must be provided during the baby's periodic respiratory crises. Fairfax Hospital doctors strongly advised a Do Not Resuscitate order for the child, which the mother refused. Stephanie remained on ventilator support for 6 weeks while Fairfax searched for another hospital to transfer her to, but no other hospital would accept her. After the baby was weaned off constant ventilator support, the mother agreed to move the child to a nursing facility, but the baby returned to the hospital many times for respiratory problems.
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