- published: 05 Feb 2021
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Augusto Odone (March 6, 1933 – October 24, 2013) and Michaela Teresa Murphy Odone (January 10, 1939 – June 10, 2000) were the parents of Lorenzo Odone (May 29, 1978 – May 30, 2008), a child afflicted with the illness adrenoleukodystrophy (ALD). They became famous for discovering a treatment using Lorenzo's oil, for their son's incurable illness, and this quest was recounted in the film Lorenzo's Oil (1992). Augusto had previously been an economist for the World Bank.
In recognition of the parents' work, Augusto Odone received an honorary doctorate from the University of Stirling. He continued to raise funds and drive the scientific task force known as The Myelin Project until his death. Michaela Odone battled cancer for some time and died of lung cancer on June 10, 2000, at the age of 61.
Lorenzo died the day after his 30th birthday. He was almost totally paralyzed but was, according to his father Augusto, "holding his own". He was unable to speak or move on his own. He communicated by wiggling his fingers and blinking his eyes. His mind was intact and he enjoyed music and having people read to him. "Certainly, he has good days and bad days, he is bedridden and he cannot eat more than through a tube… but his mind is still there. He likes that we read to him, that we play music for him and he knows who is around him". He lived with his father in Virginia and was cared for by nurses and his family friend, Oumouri Hassane.
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Lucia Ascione racconta la storia di tanti natali, circa 25. E' la storia di un padre e una madre e di loro figlio: Lorenzo. La loro storia ha ispirato un film "L'Olio di Lorenzo" interpretato da Susan Sarandon e Nick Nolte. Marco Bergamaschi è andato a casa di Augusto Odone di cui questo Natale uscirà il nuovo libro dedicato alla sua indimenticabile storia.
#leggere #scrivere #imparaconyoutube #libri Grazie mille per la visione 🙏 I miei libri per l'esame di maturità e per il III e IV anno su Amazon (GRATIS con Kindle Unlimited) 🎓😀: https://amzn.to/3GShKq0 Questo, invece, è il mio ultimo romanzo: “I Tecnocrati Di Cristo – Scacco matto alla ragione”. Il libro perfetto se vuoi avere la prova definitiva dell'esistenza di Dio 😉 https://www.amazon.it/dp/B094YY583R GRATIS con Kindle Unlimited. Puoi ascoltare il primo capitolo, qui: https://youtu.be/kC3h1nyHqjM
"Mysteries at the Museum - Lorenzo's Oil"
Subscribe to TRAILERS: http://bit.ly/sxaw6h Subscribe to COMING SOON: http://bit.ly/H2vZUn Subscribe to CLASSIC TRAILERS: http://bit.ly/1u43jDe Like us on FACEBOOK: http://goo.gl/dHs73 Follow us on TWITTER: http://bit.ly/1ghOWmt Lorenzo's Oil Trailer - Directed by George Miller and starring Nick Nolte, Peter Ustinov, Gerry Bamman, James Rebhorn, Maduka Steady. Lorenzo Odone was a normal child until the age of 7. After then, strange things began to happen to him: he would have blackouts, memory lapses, and other strange mental phemonenons. He is eventually diagnosed as suffering from ALD: an extremely rare incurable degenerative brain disorder. Frustrated at the failings of doctors and medicine in this area, the Odones begin to educate themselves Universal - 1992
Augusto and Michaela Odone Top # 8 Facts
Subscribe to TRAILERS: http://bit.ly/sxaw6h Subscribe to COMING SOON: http://bit.ly/H2vZUn Subscribe to CLASSIC TRAILERS: http://bit.ly/1u43jDe Like us on FACEBOOK: http://goo.gl/dHs73 Follow us on TWITTER: http://bit.ly/1ghOWmt Lorenzo's Oil (1992) Official Trailer #1 - Susan Sarandon Movie HD A boy develops a disease so rare that nobody is working on a cure, so his father decides to learn all about it and tackle the problem himself. Cast: Nick Nolte: http://j.mp/SUc6bx Susan Sarandon: http://j.mp/X2CQqr Peter Ustinov: http://j.mp/14pRs6K Gerry Bamman: http://j.mp/XjPiEY James Rebhorn: http://j.mp/WZ7uRf Laura Linney: http://j.mp/PEJvGu Director: George Miller Producer: Doug Mitchell: http://j.mp/StOXe1 Lynn O'Hare George Miller: http://j.mp/StOYyz Arnold Burk Daphne Paris: http://j.m...
Augusto Odone (March 6, 1933 – October 24, 2013) and Michaela Teresa Murphy Odone (January 10, 1939 – June 10, 2000) were the parents of Lorenzo Odone (May 29, 1978 – May 30, 2008), a child afflicted with the illness adrenoleukodystrophy (ALD). They became famous for discovering a treatment using Lorenzo's oil, for their son's incurable illness, and this quest was recounted in the film Lorenzo's Oil (1992). Augusto had previously been an economist for the World Bank.
In recognition of the parents' work, Augusto Odone received an honorary doctorate from the University of Stirling. He continued to raise funds and drive the scientific task force known as The Myelin Project until his death. Michaela Odone battled cancer for some time and died of lung cancer on June 10, 2000, at the age of 61.
Lorenzo died the day after his 30th birthday. He was almost totally paralyzed but was, according to his father Augusto, "holding his own". He was unable to speak or move on his own. He communicated by wiggling his fingers and blinking his eyes. His mind was intact and he enjoyed music and having people read to him. "Certainly, he has good days and bad days, he is bedridden and he cannot eat more than through a tube… but his mind is still there. He likes that we read to him, that we play music for him and he knows who is around him". He lived with his father in Virginia and was cared for by nurses and his family friend, Oumouri Hassane.
I've never known, what life could bring,
You never told me, everything,
I'm so afraid, of losing what's not mine to loose,
And you don't have to proove,
A thing,
I keep trying, but it's not the same,
I keep cryin, cause you touht me everything,
Or so you say,
Don't come my Way,
Don't go a day,
Withought looking back,
My life aint right,
It's a disaster,
My hart, is under so tight,
Cause I'm shattered,
And I'm on my own,
Come home,
Didn't see, all I should have,
Didn't think, you would have,
Left me out in the cold,
And you never did let me know,
I keep trying, but it's not the same,
I keep cryin, cause you touht me everything,
Or so you say,
Don't come my Way,
Don't go a day,
Withought looking back,
My life aint right,
It's a disaster,
My hart, is under so tight,
Cause I'm shattered,
And I'm on my own,
Come home,
I don't have anywhere to go,(2x)
I'm let out, waiting in the cold,
Don't fight out, my chance to show,
I'm still standin,
My life aint right,
It's a disaster,
My hart, is under so tight,
Cause I'm shattered,
And I'm on my own,
Come home,