Tuesday April 8 and Wednesday April 9,
2015.
Life rolls on doesn't it? In recent news here in
Julie's world,
Daniel has started going back to a rehabilitation therapy program, they focus on neurological rehab, and they have great equipment. The owner is a great guy, and a good friend, and one of the most knowledgeable guys I know in regards to therapy and the brain.
Why? Why bring Daniel here? Because they are incredible, and they are helping him develop strength in order "re learn" how to take steps. Daniel "used" to walk in a very specialized walker. Then he had two hip surgeries, a femur break, and spinal surgery. Along with that were numerous hospital admissions for illnesses. So his "gait" ability is poor now. His right leg has developed a contracture and its a big concern.
As you will see in the video, they aggressively stretch him, and help him facilitate standing on his own. Then he goes up into a
Light Gait, which is a harness that securely lifts him up and holds him in place so he can go to a treadmill and work on weight bearing and stretching.
We would never have stopped this therapy, but our insurance isn't covered there. So as a private pay it was just way too expensive.
Recently, a private local foundation agreed to fund 3 months of therapy for Daniel. Which is totally amazing.
I have found along this journey, that the best programs, the best equipment, and the most hope for your child come from things that ARE NOT covered by insurance. The costs are astronomical. But you have to keep fighting.
THANK YOU for being a part of our journey. I love your comments and questions, and I'm so grateful for the thumbs up on the videos!!! Have an awesome day
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Scroll down for an explanation in detail about my channel
About my channel.......
My middle son,
Daniel John Hasselberger was born on
November 22,
1997, with a rare brain deformity called Polymicrogyria. The deformity happened due to a virus called
CMV, or cytomegalovirus. He has seizures, respiratory problems, can only eat by g tube, is in a wheelchair, can not speak, and has had countless surgeries and hospitalizations over his 17 years.
We are a family of 5 from
Sandy Hook, CT and this is our journey.
Every day is full of new things that we don’t expect. I am Julie, Daniel’s Mom. I left my full time career as an HR
Director 11 years ago because Daniel needed me. The struggle, the sacrifices, the sibling love, and miracle after miracle.
Why did I create this channel? For support, to help other families dealing with the same diagnosis, to help me cope with depression and isolation, etc.
Please leave comments and help us grow and develop this channel. Life is incredible, and I want to share our story.
Julie Hasselberger
Subscirbe to this channel
https://www.youtube.com/channel/UCQr7Ot0J0o6_gRnG_fJvzDg
My blog site about life with Daniel
http://www.raisingdanielhasselberger.blogspot.com
twitter @jhasselberger
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- published: 10 Apr 2015
- views: 3981