Hyperacusis

My Hyperacusis Success Story Part 1

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• published: 12 Jan 2015
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Watch Part 2 here: https://www.youtube.com/watch?v=9GpyBFh-jSs DISCLAIMER: I am not a medical professional. The purpose of this video is not to give medical advice - it is to share my experience with hyperacusis and tinnitus and how I personally recovered. If you have hyperacusis, I recommend you contact a neuro-otologist and audiologist in your area. Instructions from my audiologist: 1. Don’t wear hearing protection (earplugs) in regular listening environments (i.e. those where volume level stays below 85 dB), even if being in those environments causes discomfort. 2. Avoid completely silent environments for long periods; instead, listen to white or pink noise—either through speakers or a white noise masker machine. 3. Just because you have hyperacusis, your ears are no more susceptible to damage from sound exposure than those of someone who does not have hyperacusis! - THIS IS CRUCIAL! Instructions from rehab psychologist: 1. Reduce hypervigilant behavior ex. Don't tease up/brace yourself for sound - take a deep breath if you're about to be exposed to a sudden abrupt noise. Learn to relax your body in normal sound environments below 85db 2. Modify your lifestyle in order to get back to the things you did before you got hyperacusis. Ex. finding ways around doing certain things such as listening to music at a low volume, exercising outside or from home, going to restaurants during non-busy times, being seated in quieter areas, and educating loved ones about your condition 3. Stop researching and spending all your time browsing through hyperacusis forums and support groups. There is a lot of incorrect information floating around and the majority of the information is negative. Remember that the population of hyperacusis sufferers online only represent a small population of all the everyone who has hyperacusis/had hyperacusis and recovered. Hyperacusis Research: http://hyperacusisresearch.org/ American Tinnitus Association: http://www.ata.org/ Recent ear therapies coming down the pipeline: http://www.nytimes.com/2015/01/10/business/ear-disorders-long-neglected-attract-drug-makers-attention-.html?ref=business&_r=1 Other success stories: 1) https://www.youtube.com/watch?v=WLMf_eyQsdE 2) http://www.hyperacusis.net/hyperacusis/success+stories/default.asp Pink noise: http://www.hyperacusis.net/hyperacusis/pink+noise+cd+or+ipod+shuffle/default.asp My sound machine: http://www.amazon.com/Ecotones-Sound-Sleep-Machine-ASM1002/dp/B002SMJQT4/ref=sr_1_1?ie=UTF8&qid;=1421070109&sr;=8-1&keywords;=sound+and+sleep TRT Information: http://www.tinnitus-pjj.com/ Hearing chart I strictly abided to and will continue to do the rest of my life to prevent relapse: http://64.78.30.80/wp-content/uploads/2010/04/decibel_exposure_chart.gif Transcript of the video for those having trouble listening online: https://docs.google.com/document/d/1Xr5SJDL1RYtKDEiTQrlmVd5RdUr4J73LiAADxHtfBt8/edit?usp=sharing