Latest News for: crouzon syndrome

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Valley family gives back to community to honor legacy of patriarch

The Vindicator 23 Dec 2024
Crouzon syndrome is a rare genetic condition that causes malformations to the skull.
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Hendersonville Charity Relieves Suffering in Moldova and Ukraine

The Tribune Papers 27 Jan 2024
Over 100,000 refugees have poured over its borders seeking asylum ... Map of Moldova, by Flat Rock resident, St ... Only 5% are Russian ... Adriana Verejan with Crouzon’s Syndrome, an impounded brain condition, was flown to Winston-Salem for surgery ... .
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Face Of Pre-Columbian Person With Rare Skull Deformity Recreated

IFL Science 05 Dec 2023
An umbrella term that covers numerous related syndromes, craniosynostosis includes conditions such as Crouzon syndrome, which occurs when the seams of the skull fuse in an abnormal manner and affects one in every 25,000 to 60,000 people.
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FACES Camp To Welcome Kids With Craniofacial Anomalies

The Pulse 28 Apr 2023
...It’s important for kids to know that they can do anything they set their mind to regardless of their facial difference," Camp director Ashley Rhodes, born with Crouzon syndrome, says ... FACES ... ... Back to Search Results ....
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Amina Luqman-Dawson's 'Freewater' wins Newbery, more books honored at 2023 Youth Media Awards

The Lexington Dispatch 31 Jan 2023
The power of the written word is more than mere child's play. The American Library Association (ALA) announced the winners of the 2023 Youth Media Awards at its LibLearnX ... F ... Coming of Age with Crouzon Syndrome,” by Ariel Henley“Unequal ... J ... .
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Facial reconstruction: Teen with rare disorder gets new lease of life

Hindustan Times 27 Jan 2023
This seemingly small change in the life of the Ali family came after a surgery that corrected Yusuf’s facial structure, which was irregular due to a genetic disorder known as Crouzon syndrome that affects one in 60,000 children in the world.
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Special Cat in Pennsylvania Helps Kids Learn to Feel Confident Wearing Glasses

The Capital Journal 24 Jan 2023
Truffles is such an inspiration! ... They often feel nervous and insecure about this change ... In the Instagram photo, we meet Mina, a young girl with Crouzon Syndrome, a condition where the seams of the skull fuse in abnormally ... Thanks for the feedback ... ....
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Books in Brief: A Face for Picasso, Walrus Song, Cat Kid Comic Club Perspectives

The Buffalo News 10 Dec 2021
Coming of Age With Crouzon Syndrome by Ariel Henley; Farrar Straus Giroux, 320 pages ($18.99) Ages 12 to 18. Ariel Henley has written a stunning, poignant memoir of growing up with Crouzon Syndrome, a ...
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Who Are We If Not Our Faces?

Wired 06 Dec 2021
Undergoing dozens of operations to treat Crouzon syndrome made me look more “normal.” It also made me question my identity ... .
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