Cfs

Stanford's Dr. Jose Montoya on Chronic Fatigue Syndrome

Order: Reorder
Duration: 73:01
Updated: 08 Feb 2013

Chronic Fatigue Syndrome (CFS) is a disorder that causes extreme fatigue that is unchanged with rest and which interferes with one's ability to attend to daily activities. Dr. Montoya discusses CFS and current research regarding diagnosis and treatment and the possible CFS-infection connection.

http://wn.com/Stanford's_Dr_Jose_Montoya_on_Chronic_Fatigue_Syndrome

A short CFS documentary

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Duration: 7:48
Updated: 09 Feb 2013

A short documentary piece about a girl who lives with severe CFS/ME (chronic fatigue syndrome/myalgic encephalomyelitis) confined to her bed. Found on the Invest in ME website (I think). Note that in the worst cases CFS/ME can get so severe that the person is essentially paralyzed, has to be tube-fed, cannot speak and cannot even tolerate any light or sounds. I have written a book about CFS/ME/FM treatments titled "Reviving the Broken Marionette: Treatments for CFS/ME and Fibromyalgia". It features over 250 medications that can be used to treat these illnesses. For more information see www.brokenmarionettebook.com

http://wn.com/A_short_CFS_documentary

6. What is it like to have ME? (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome CFS)

Order: Reorder
Duration: 6:48
Updated: 08 Feb 2013

What is it really like to have this debilitating neurological illness Myalgic Encephalomyelitis, which is thought to affect 250000 people in the UK and millions throughout the world? You can read a transcript of what I've said, and links to other helpful websites, at www.getwellfromme.com Find my other videos and subscribe at http For more information about ME, please see: The ME Association www.meassociation.org.uk Invest in ME (UK) http Quoted in the video: www.foggyfriends.org http

http://wn.com/6_What_is_it_like_to_have_ME?_Myalgic_Encephalomyelitis_Chronic_Fatigue_Syndrome_CFS

ME / Chronic Fatigue Syndrome - Sleepydust Video

Order: Reorder
Duration: 9:18
Updated: 09 Feb 2013

The video aims to help the friends and family of ME/CFS (including Myalgic Encephalomyelitis (ME), Chronic Fatigue Syndrome (CFS), and Post Viral Fatigue Syndrome) sufferers understand the illness and what their loved ones are going through. To view a clearer, larger version of the video, visit: www.sleepydust.net

http://wn.com/ME_Chronic_Fatigue_Syndrome_Sleepydust_Video

Chronic Fatigue Syndrome CFS

Order: Reorder
Duration: 12:50
Updated: 07 Feb 2013

I explain in more depth what is Chronic fatigue Syndrome and how it impacts my life

http://wn.com/Chronic_Fatigue_Syndrome_CFS

Chronic Fatigue Syndrome - Clinical Nutrition

Order: Reorder
Duration: 8:15
Updated: 02 Feb 2013

Be My Friend - www.myspace.com Chronic Fatigue Syndrome - Clinical Nutrition An overview of Chronic Fatigue Syndrome and how clinical nutrition can be used to address the problem. symptoms: difficulty with sleeping, muscle and/or joint pain at multiple sites without evidence of inflammation, headaches, painful lymph nodes that are not pathologically enlarged, sore throat, cognitive dysfunction, worsening of symptoms by physical or mental exertion, general malaise, dizziness and/or nausea and palpitations with no identifiable heart problem. Dr. Vincent Bellonzi BS,DC,CCN, CSCS, ACSM H/FI Dr.Vincent Bellonzi is a chiropractor and a Certified Clinical Nutritionist. He has been in practice for over 12 years. He received his Doctorate from Los Angeles College of Chiropractic in 1991. Since 1998, Dr. Bellonzi has practiced in the Austin area. He works with athletes at every level to provide sports conditioning and rehabilitation. Visit Dr. Bellonzi's website at www.austinwellnessclinic.com This video was produced by Psychetruth www.myspace.com www.youtube.com © Copyright 2007 Austin Wellness Institute. All Rights Reserved.

http://wn.com/Chronic_Fatigue_Syndrome_Clinical_Nutrition

Laurel's October 2009 ME/CFS Testimony to the CFSAC

Order: Reorder
Duration: 5:14
Updated: 06 Feb 2013

This is a video testimony of my experiences living with severe ME/CFS. It was presented to the CFS Advisory Committee's meeting in Washington DC in October 2009. I am unable to speak more than a few words above a whisper, so my sister-in-law very graciously reads my testimony for me. It is her voice that you hear. Many thanks to her (and all others) who helped me put this together. Thanks also to PANDORA, who helped make it possible for my video to be viewed at the meeting. Please visit the PANDORA website at: www.pandoranet.info To view my blog where I write about my experiences with severe ME/CFS, visit: www.dreamsatstake.com For those asking about what treatments I've tried, please see my partial list here www.dreamsatstake.com **PLEASE NOTE: I am generally unable to respond to comments or to email messages.** Thank you for your understanding.

http://wn.com/Laurel's_October_2009_ME_CFS_Testimony_to_the_CFSAC

ME/CFS Phoenix Rising Video

Order: Reorder
Duration: 6:49
Updated: 02 Feb 2013

This Phoenix Rising video shows people who are living with ME/CFS. The song was written by the keyboardist and lead singer of Cinder Bridge for a friend of hers who has ME/CFS. www.myspace.com ME stands for Myalgic Encephalomyelitis which is another name for CFS (Chronic Fatigue Syndrome). To find out more about the newly discovered retrovirus XMRV which is being found in patients with ME/CFS and/or to donate to biomedical research for ME/CFS go to the Whittemore Peterson Institute: www.wpinstitute.org Copyright November 3, 2010

http://wn.com/ME_CFS_Phoenix_Rising_Video

Geese Surf Glenwood Wave @ 25500 cfs!! (Original)

Order: Reorder
Duration: 0:50
Updated: 03 Feb 2013

This is the original video of the infamous surfing geese. I was filming some kayakers surfing at the Glenwood Springs Whitewater Park when I saw this group of geese floating toward the wave. Their technique is actually pretty good; beginning surfers could learn a lot. This was taken 6/7/11 at a 27-year high flow of 25500 cfs. Since so many have expressed concern over the geese, it seemed to me like they were all okay when they washed out at the bottom. For those still concerned about the geese's safety, check out this Discovery Channel analysis: www.youtube.com For more pics and info from the Colorado outdoors, checkout: www.coloradomountaineering.com PS For those that have been asking where this is, it's in Glenwood Springs, Colorado, USA, on the Colorado River. The Glenwood Whitewater Park was designed by http You can get more information about events going on at the wave on the website: www.glenwoodwhitewaterevents.com A NOTE ABOUT REPRODUCTION If you want to use it it some way, please ask me. I am reasonable and will probably work with you.

http://wn.com/Geese_Surf_Glenwood_Wave_@_25500_cfs!!_Original

CFS/ME CDC "Missing My Life"

Order: Reorder
Duration: 0:30
Updated: 06 Feb 2013

Video by the American Centre for Disease Control and Prevention about the condition Chronic Fatigue Syndrome/Myalgic Encephalopathy, titled "Missing My Life".

http://wn.com/CFS_ME_CDC_Missing_My_Life

ME/CFS patient takes antivirals for HGRV (Dutch with English Subtitles)

Order: Reorder
Duration: 7:05
Updated: 07 Nov 2012

English Subtitles. August 2010: Report of XMRV retrovirus in persons with ME CFS in Holland. Interviews with Professor in Immunolgy Kenny De Meirleir, ME/CFS patient who has had disease for 21 years and moved to Belgium to try immune therapy treatment, comments on blood safety etc Gezaghebbende Amerikaanse overheidsinstanties hebben opnieuw bij ME-patiënten een virus aangetroffen. Al eerder berichtte EenVandaag over de ontdekking van het XMRV-virus maar daar was bij andere wetenschappers nog veel twijfel over. Betekent dit nieuwe bewijs nu een doorbraak voor de behandeling van de vermoeidheidsziekte? En houdt dat ook in dat ME-patiënten geen bloeddonor meer mogen zijn? EenVandaag spreekt met de Belgische professor Kenny de Meirleir die er al jaren van overtuigd is dat er een virus aan de ziekte ME ten grondslag ligt, en met professor Jos van der Meer, internist van het Radboudziekenhuis in Nijmegen, die deze virus-theorie altijd heeft ontkend. Verder nemen we een kijkje in een Brusselse laboratorium, de enige plek in Europa waar sinds kort op het virus getest kan worden. Wij spreken met een Nederlandse patiënte die zich daar heeft laten testen en in wiens bloed het virus is aangetroffen. Voor meer informatie: Prof. dr. K. de Meirleir Vzw Himmunitas Tyraslaan 111 1120 Neder-over-Heembeek, Brussel 0032 2 266 87 40 info@ehmb.be TEL: +32-2-481-5310 RED Laboratories NV/SAZ1 Researchpark 100 B-1731 Zellik Belgium www.redlabs.be

http://wn.com/ME_CFS_patient_takes_antivirals_for_HGRV_Dutch_with_English_Subtitles

May 2008: Chronic Fatigue Syndrome Advisory Committee Testimony

Order: Reorder
Duration: 6:15
Updated: 01 Feb 2013

This is my personal testimony before the Chronic Fatigue Syndrome Advisory Committee (CFSAC) in May 2008. The CFSAC is a federally chartered committee, which provides advice and recommendations to the Secretary of Health and Human Services on issues related to Chronic Fatigue Syndrome (CFS). These include: 1) factors affecting access and care for persons with CFS; 2) the science and definition of CFS; 3) and broader public health, clinical, research and educational issues related to CFS. The committee meets twice yearly, and consists of clinicians who specialize in the treatment of CFS/ME, as well as federal government entities, such as the Centers for Disease Control and Prevention (CDC), the National Institutes of Health (NIH), the Social Security Administration (SSA), the Food and Drug Administration (FDA), etc. My testimony detailed the impact that CFS/ME has had on my life since I first became ill with mononucleosis at the age of 15, the difficulties of living with the illness for over 13 years, as well as the ongoing struggles that I continue to experience as a result of the disease. Although my "story" is quite personal, my intent was to put a young, healthy-looking, male face to CFS.

http://wn.com/May_2008_Chronic_Fatigue_Syndrome_Advisory_Committee_Testimony

CFS Patients Address the CDC

Order: Reorder
Duration: 8:19
Updated: 01 Feb 2013

Chronic Fatigue Syndrome (CFS) is a serious debilitating neuro immune disease, that is known to affect 4 million Americans, and 17 million people worldwide. CFS has been ignored and dismissed for decades, by both the medical community, and by the government agencies entrusted with our health. Because of the widespread ignorance regarding CFS, patients with this condition are often reduced to psychiatric cases, mis-treated by doctors, and not given the appropriate treatments that they need and deserve. The October 2009 discovery of the XMRV virus, in the blood of 68 of 101 CFS patients tested by researchers at the Whittemore Peterson Institute, is a revolutionary finding. It is giving many CFS patients hope for better treatments for this devastating disease, and possibly even a cure. The recent confirmation of XMRV in CFS subjects tested by researchers at the NIH and FDA needs to be taken seriously by the CDC, which has had a history of failing those who are ill with CFS far too predictably, and for far too long.

http://wn.com/CFS_Patients_Address_the_CDC

Inge Lindseth: Recovery from CFS

Order: Reorder
Duration: 14:08
Updated: 01 Jan 2013

At the 2012 International Congress on Autoimmunity, in Granada, Spain, Inge Lindseth, from Oslo, Norway, presented a case series of 63 Chronic Fatigue Syndrome ( CFS/ME ) patients from Canada and Norway, who, in general, are responding well to the immunostimulatory therapy called "The Marshall Protocol." A PDF transcript of this presentation can be found at autoimmunityresearch.org

http://wn.com/Inge_Lindseth_Recovery_from_CFS

CFS 2006 awaresnes Campaign CDC

Order: Reorder
Duration: 7:33
Updated: 08 May 2012

Awareness Campaign for Chronic Fatigue Syndrome 4million$ spent by US officials on research for treatment and causes...

http://wn.com/CFS_2006_awaresnes_Campaign_CDC

The Realities of ME/CFS

Order: Reorder
Duration: 3:49
Updated: 27 Jan 2013

The facts about ME/CFS in this video were taken from many different ME/CFS organizations that are on the Web. ME/CFS can range from mild to severe in patients. It is estimated that 25% of ME/CFS patients suffer from a severe form of the illness and are completely disabled by it. This is a physical illness and is not psychological. Associations and Foundations: The Natl. CFIDS Foundation, The DANA Foundation, The Wisconsin CFS Assoc. Inc ME International, Co-Cure.org, The ME Assoc. Copyright Nov. 3, 2010

http://wn.com/The_Realities_of_ME_CFS

Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting, Day 2, June 14, 2012. 1:15pm to 2:15pm

Order: Reorder
Duration: 61:41
Updated: 11 Nov 2012

ME/CFS Organizations. Panel Discussion. Committee Members

http://wn.com/Chronic_Fatigue_Syndrome_Advisory_Committee_CFSAC_Meeting,_Day_2,_June_14,_2012_115pm_to_215pm

Caring for someone with severe ME/CFS

Order: Reorder
Duration: 7:08
Updated: 05 Feb 2013

A video diary raising awareness about the physical reality of severe ME

http://wn.com/Caring_for_someone_with_severe_ME_CFS

CFS/ME - Questions

Order: Reorder
Duration: 8:58
Updated: 11 Dec 2012

I suffer from severe CFS/ME and had health people ask me uestions about it - things they didn't know. I have answered them here.

http://wn.com/CFS_ME_Questions

"Immer erschöpft" , ME/ CFS, schwere schlimme unsichtbare Erkrankung

Order: Reorder
Duration: 10:00
Updated: 07 Feb 2013

http://wn.com/Immer_erschöpft_,_ME_CFS,_schwere_schlimme_unsichtbare_Erkrankung

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Dr Franky Dolan: Powerful plea, CFS Chronic Fatigue Syndrome and other Invisible Diseases - help!

Order: Reorder
Duration: 6:41
Updated: 21 Jan 2013

faefactory.com - Awareness Art by Dr Dolan http - Helpful site ... Dr Franky Dolan is honest, blunt and passionate as he speaks about Chronic Fatigue Syndrome, Fibromyalgia, POTS and Lyme Disease. Please watch and HELP to raise awareness... Dr Dolan now creates art to promote awareness, and to promote HOPE. See his website here: faefactory.com Chronic Fatigue Syndrome is called myalgic encephalomyelitis (ME) in most of the world. The name Chronic Fatigue Syndrome is a horribly degrading title for the disease that sufferers go through. We need to tell our own stories and help to education our communities and our families about the seriousness of Chronic Fatigue Syndrome, or, myalgic encephalomyelitis. --And the other invisible diseases as well! An invisible disease is called "invisible" for two reasons 1. The internal suffering that is experienced is not seen by others. 2. Current medicine does not know the exact testing, cause, evolution or treatment for these illnesses. A diagnosis of Chronic Fatigue Syndrome (ME), Fibromyalgia and Lyme disease can turn into, or may sometimes be a result of, a Dysautonomia such as POTS (Postural Orthostatic Tachycardia Syndrome.)...And now you see a little more, about why it is SO important to tell our stories and to help support those who survive through this horror. ...Together, we will survive. Someday, through hope and help, there will be a cure! ~~~~~~~~~ Myalgic Encephalomyelitis, the REAL name for Chronic Fatigue Syndrome ...

http://wn.com/Dr_Franky_Dolan_Powerful_plea,_CFS_Chronic_Fatigue_Syndrome_and_other_Invisible_Diseases_help!

Chronic Fatigue Syndrome - CHANGE THE NAME (ME/CFS/CFIDS)

Order: Reorder
Duration: 4:34
Updated: 04 Jan 2013

CFS is a multi-system disease which causes extreme fatigue, muscle weakness, cognitive dysfunction, hypersensitivity, orthostatic intolerance, digestive disturbances, depression, poor immune response, and cardiac and respiratory problems. According to the CDC, studies show that disability in CFIDS patients is comparable to multiple sclerosis, AIDS, lupus, rheumatoid arthritis, heart disease, end-stage renal disease, and chronic obstructive pulmonary disease. Yet, studies have shown that patients diagnosed with "Chronic Fatigue Syndrome" are not taken as seriously as patients with the same symptoms but a different name for their diagnosis. Thus, the name CFS not only affects the quality of treatment patients receive, but the amount of money committed to research! PWCs deserve to be taken seriously, to have a name for their illness that preserves their dignity, and to receive appropriate medical care! Spread the message -- CFS: Change the Name!

http://wn.com/Chronic_Fatigue_Syndrome_CHANGE_THE_NAME_ME_CFS_CFIDS

CFS & The Viral Connection

Order: Reorder
Duration: 75:00
Updated: 05 Feb 2013

CFS researcher and clinician Dr. Anthony Komaroff of Harvard Medical School and Brigham and Women's Hospital explores some of the infectious agents connected to CFS, including Epstein-Barr Virus (EBV), Human Herpesvirus (HHV)-6, Q-fever, Ross River virus, borrelia burgdorferi (agent that causes Lyme disease), Parvovirus, Borna disease virus, Influenza A (H1N1) virus (swine flu), enteroviruses and mycoplasmas, as well as recent associations with XMRV and polytropic murine leukemia viruses. Dr. Komaroff reviews other research that definitively demonstrates the biological nature of CFS.

http://wn.com/CFS_The_Viral_Connection

Make changes yourself !

http://wn.com/CFS

Related pages:

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